tag:blogger.com,1999:blog-118554072024-03-13T03:51:11.717-04:00Here and ThereWhere I share about my archives, special collections, and museum experiences; my travels; and a range of other topics.Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.comBlogger1023125tag:blogger.com,1999:blog-11855407.post-51008664028649368022022-10-08T22:21:00.000-04:002022-10-08T22:21:01.009-04:00The Breast Cancer Diaries, vol. 2, issue 22<h2 style="text-align: left;">Cancerversary, Back to Work on Campus, and Personal Victories</h2><div style="text-align: left;">It's now over a year since my diagnosis (Sept. 2021). I had a mammogram, which led to another mammogram and ultrasound, then a biopsy, then a breast surgeon, then a uterine biopsy, then a lumpectomy, then radiation, then some really bad burns and treatment, then a new dermatologist, then Tamoxifen, then terrible non-stop migraines and hot flashes, then no Tamoxifen, then lymphedema therapy, then an oophorectomy, then menopause, then Letrozole, then ALL the painful side effects, then no Letrozole, then a trip to the emergency room, then damage to my right hand, then another mammogram, then loads of tests. And, here we are. </div><div style="text-align: left;"><br /></div><div style="text-align: left;">Of course, from reading all of these diary entries (and if you're a FB friend, you also get the Quickies) you know there has been much more to it than that, but if you wanted a cut and dried summary, that's the driest one I can provide. It's hard to believe a year has passed already, although during it, I was aware that my life had become a fairly nuts and painful runaway train. At least for now, life is greatly improved. More on that below. </div><div style="text-align: left;"></div><div style="text-align: left;"><h4 style="text-align: left;">Back to the Archives and Special Collections</h4></div><div style="text-align: left;">Beginning in September, I returned to campus on Mondays and Wednesdays from 10-2 and worked the other weekdays at home. It was a good way to ease my transition back to in-person work. I've been working from home all this time, but I missed being with the materials and colleagues on site. Coming back in person was exciting, anxiety-producing, and exhausting. Also, a big learning experience.</div><div style="text-align: left;"><br /></div><div style="text-align: left;">I learned that being there only 4 hours (plus the 2 hours of commuting time) was inefficient. Also, with that schedule, I didn't get a lunch, which was difficult because I need to eat nutritiously more frequently for better healing. So, starting in October, I split my hours between three days in the office Monday, Wednesday, and Friday. But that will change in December.</div><div style="text-align: left;"><br /></div><div style="text-align: left;">A couple of weeks ago, the Grants folks, who had helped me write a big grant application (also with help from the Dean of the Library), let me know that we did, in fact, land this whopper of a grant. If you're interested, a summary is here: <a href="https://www.imls.gov/grants/awarded/st-252518-oms-22">https://www.imls.gov/grants/awarded/st-252518-oms-22</a>. And, now I'm on another runaway train, which is trying to manage the big project that is this grant. It is essentially a three-part series of projects, some of which overlap. </div><div style="text-align: left;"><br /></div><div style="text-align: left;">More importantly, I'm figuring out what I need to manage the stress of it (MEDITATION, very good diet, and exercise), as well as the fatigue that comes with radiation -- the gift that keeps on giving. Lymphedema causes fatigue, too, but not anywhere near as rough as the radiation. Having the days off in between is incredibly helpful. But, come December 1, I will gain another 9 hours, thanks to the grantors. My plan is to serve those additional hours at home on Thursdays. </div><div style="text-align: left;"><br /></div><div style="text-align: left;">Overall, I'm glad to be back. However, it is unnerving that I am in a teeny minority of people who still wear masks. I wear mine all day in the Archives because there are study rooms adjacent to the Archives space, and when folks are wearing fragrance, I can smell it. So, shared air. I know some folks think that I may be overly cautious, and that's OK. I'm good with that. A secondary benefit is that my allergies are much improved by being masked in the Archives. </div><div style="text-align: left;"> </div><div style="text-align: left;">Since my in-person return (and prior to it, but much more so now), I have been open about the breast cancer, as well as the lymphedema. Because I wear an arm compression sleeve, I am visible in a different kind of way than just being the archivist with the blue or purple crew cut. I take it as an opportunity to raise awareness of lymphedema as a secondary disease from breast cancer treatment. </div><div style="text-align: left;"></div><div style="text-align: left;"><h4 style="text-align: left;">Personal Victories</h4></div><div style="text-align: left;">Speaking of lymphedema, I went to see Lisa the bra fitter this week to try a smaller compression bra. Miracle of miracles, I dropped an entire size! She was very happy for me and said that she could tell right away that I had lost some weight. Don't get me wrong, I still carry significantly more me than I did last year, but I can now see results from the exercise and better dietary choices. </div><div style="text-align: left;"> </div><div style="text-align: left;">Importantly, the inframammary fold burns have improved so that I use compression every day for most of the day. I know. That is big news, too. For the last month or so, I stopped using all the ointments and switched to baby powder to keep it dry and chafe free under my left breast. It took a while to be able to do so. Previously, I tried powder, and the burns just flared right back up. So far, I am cautiously optimistic, and Dr. Singh was happily surprised. The skin remains very discolored, which he said would take a year or more to clear up. But, for the past few weeks, I have felt much better in the burn area. It is such a relief. It also makes me feel hopeful. </div><div style="text-align: left;"><br /></div><div style="text-align: left;">Back to the bras, this morning, I fit into an athletic bra that I couldn't fasten in more than a year. I wore it on a walk. It was a tight fit, but as you can guess, I'm still happy about it. </div><div style="text-align: left;"></div><div style="text-align: left;"><h4 style="text-align: left;">Other Stuff</h4></div><div style="text-align: left;">I still experience pain in my right hand. Physical therapy helped, but then Cigna denied my continuing the therapy, which isn't helpful at all. The physical therapist is trying to sort it out, but in the meantime, it hurts and feels tight all the time.</div><div style="text-align: left;"> <br /></div><div style="text-align: left;">I am a member of a few breast cancer and lymphedema (and breast cancer with lymphedema) Facebook groups. Like all of the members, I
have a cancer story to tell with all its pain, ugliness, and moments of
triumph, however small.</div><div style="text-align: left;"> </div><div style="text-align: left;">It amazes me that I'm already to the point where time has tempered some of the experience. Which doesn't mean that my journey with BC is over. Far from it. I'll be monitored with blood tests every 6 months; mammograms on my left breast every 6 months and both annually; and every time I go to any kind of doctor, there are many more tests just because I have cancer and had a positive lymph node. There's also the daily wearing of compression garments, which I'll do for the rest of my life. </div><div style="text-align: left;"> </div><div style="text-align: left;">By the way, Cigna isn't paying for the compression bras despite having said they would. The ones I wear are $75 a pop. Thankfully, they pay for the arm sleeves, which are custom and cost a lot more. There's a bill up before Congress to get Medicare to pay for them. Once they do, we all get a break. </div><div style="text-align: left;"> </div><div style="text-align: left;">All of these medical garments I wear have a life of about 6 months. The first two arm sleeves have already stretched in length despite my handwashing and babying all of the compression gear. Since I've changed to a smaller compression bra, I'll now need to replace the two I've been using (which are now 6 months old). So it goes. Another line in the budget. </div><div style="text-align: left;"><br /></div><div style="text-align: left;">Lastly, I have been living my life in CAPITAL LETTERS<span> as I said I would. I took a road trip to see my very dear friend Jane in Erie, PA, and this time next week, I will be on another adventure with another dear friend Joy. I travel a bit differently than I have in the past. Now I pack baggies of turkey tail mushroom powder to eat in my morning oatmeal. I also bring my lymphedema and post-surgical exercise handouts with me.</span></div><div style="text-align: left;"><span> </span></div><div style="text-align: left;">As ever, I am grateful for your continued reading of these diary
entries. Thanks especially to those who have sent love, prayers, hugs,
very silly gifts, very timely gifts, and shared their own experience.</div><div style="text-align: left;"> </div><div style="text-align: left;">Don't forget to get your screenings. Early detection is key!<span> </span></div><div style="text-align: left;"> </div><div style="text-align: left;"><br /></div><p><br /></p><p><br /></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-53677626093212593342022-09-03T12:48:00.001-04:002022-09-03T12:48:08.928-04:00The Breast Cancer Diaries, vol. 2, issue 21<h2 style="text-align: left;"><b>A New Chapter in Many Ways</b></h2><p>It took me about a month since the last BCD to come to terms with the emotional load I've been chewing on since the last meeting with Dr. Omene. [Quick recap: I can't tolerate the medications to prevent a cancer recurrence. One also happens to be what they give to women with my kind of breast cancer that becomes metastatic. Given my reactions to medications, I likely won't be able to tolerate chemo, either. So, if metastasis occurs, I'm f*©ked.] Although, while I'm clear about <u>the possibility</u> of a ticking clock, I have come to espouse the following view, expressed in questions: "What if it works out alright? What if I don't have a recurrence?" </p><p>It's a bit of a take off on Rose's "just in time worrying" practice, meaning worrying when there's actually something to worry about. In short, I'm making a decision not to live in the probability of metastasis, instead preferring to LIVE MY LIFE. Yup, live it in capital letters, my friends and family. </p><p>Don't get me wrong, as I've been working my way through this emotional journey there have been moments that were unexpected and knocked me off my pins for a day or so. Some songs hit me a completely different way now. Recently, I was exercising on the treadmill, listening to one of my favorite artists, Neko Case. She sang a cover of the Harry Nilsson song "Don't Forget Me." Now, this wasn't the first time I've cried to that song. It used to wreck me during and immediately after the divorce. This time, when I heard the line about being old and full of cancer, I lost it. Wept all over the treadmill. Makes me a bit tender just writing about it now. <br /></p><p>I could go on about songs, but I'll just share on one more and move forward. On one of my recent walks in the park, I was listening to U2's album All That You Can't Leave Behind. After 9-11, I had it on constantly. This time, when I heard the song "Walk On," it made me profoundly sad (look up the lyrics). Afterward, I had the epiphany that I needed to stop living as if recurrence was a foregone conclusion. Sure, it's likely because I had 1 positive node (and cancer seems to get all of us sooner or later). But I really needed to shake off this way of thinking otherwise I wouldn't be able to live the life I do have to the fullest. <br /></p><p>Which doesn't mean that I put all the health stuff aside. I won't and haven't. But much more on that below. </p><h3 style="text-align: left;"><b>Starting Ongoing Surveillance </b><br /></h3><p>Dr. Gwozdz, my primary care guy, ordered all kinds of tests to set a baseline for my post-treatment surveillance. Nearly all of the results were normal, and the 3 that weren't were just outside of the normal ranges. So, he's not concerned about any of it. We'll test again in another 6 months. <br /></p><h3 style="text-align: left;"><b>All the Updates</b></h3><p><b>Left Breast and Arm Lymphedema and Right Hand Physical Therapy <br /></b></p><p>Two weeks ago, Manasee discharged me from the lymphedema drainage massage treatment. We had gotten to the point of my knowing what to do (wear compression garments, do my 2x daily exercises and massage, and protect my left arm, hand, and breast from any injury) and being able to do it with results when able. She is confident that I'll be able to increase lifting to 5-8 lbs, but not more, which makes me a bit sad. However, I accept it because I now know what happens when I lift too much.</p><p>I had a small flood in my kitchen and tried to flatten my laminate floor before it curled up badly. With my friend Jim's help, I took all the heavy things I own (mostly books, bottled water, pavers, etc.) and placed them on wood on top of the floor. When it became clear that it wasn't going to help, I didn't wait for Jim, and instead carried all the heavy stuff back to whence it came. The next day, I experienced such profound breast pain and swelling that I was down for a whole day. It took a week to fully recover. You can bet that I won't be doing that again. <br /></p><p>What remains is the daily balance between compression and burn care (more on that later). </p><p>I've also been working with Lisa the fitter to get set up with more compression bras. There has been a bit of an issue with her external biller saying that they won't file because insurance won't cover them. Turns out, insurance (or at least Cigna) does cover them with the correct codes. I had to call Cigna and go through a bit of a rigamarole there, but they said they would cover them. It's a good thing, too, because I'll need at least 8 of these per year (yes, I do hand wash them and baby them to make them last as long as possible). They cost at least $70 a piece, depending on the model. I'm awaiting a few reimbursement checks. </p><p>Speaking of insurance, my oncology nurse navigator Becca has discharged me. If I need her, I can always call, but since I'm no longer being treated actively, she must close her services. I'll miss her monthly calls. She will help me in November, though, when it comes to requesting ongoing insurance because the divorce COBRA ends in December. <br /></p><p>For the arm/hand compression, I've been having a very positive experience with the pros at Luna Medical. Amazingly, my insurance covers 8 gloves and sleeves per year (I don't generally need the gloves except when exercising, but Manasee is concerned with possible swelling.). Luna hipped me to some very cool designs by Juzo that fit me better than the Lymphedivas sleeves. They are pretty comfortable and helpful. I wear them for at least 4 hours a day at home, especially when I exercise, and any time I leave the house (I also wear a silicone bracelet that says "No needles or BP in this arm." People have been really complimentary about them. <br /></p><p>The week following my lymphedema discharge, I began physical therapy for the damage done to my hand thanks to the blood draw in the RWJ emergency room. I've had all kinds of nerve testing and x-rays and none show any permanent damage, except mild carpal tunnel. My hand specialist, Liz Henriquez, thinks it is likely soft tissue damage from the blood draw that's causing the tingling and numbness in my hand when I do most things. </p><p>Liz gave me a handful of exercises to do. She also looked at photos I'd taken of my home office set up and the wrist splints I've been wearing. Turns out, I had to get a different splint. She also said that she doesn't expect me to get 100% better. Hoping for 60% is what we're aiming for now. That also makes me sad, but at least I know what life is going to be like for my right hand moving forward. I'll be meeting with her 2x weekly for the next few months.<br /></p><h3 style="text-align: left;">The Inframammary Fold</h3><p>Three weeks ago, Dr. Singh took a look at the continuing flare up. I mentioned that Dr. Omene thought there might be a fungal infection. Although he said he saw no sign of one, he gave me another steroid to try that comes with an antifungal: clotrimazole/betameth cream. He also said that if doesn't improve significantly by the next time I see him (at the end of this month), he will take a biopsy. I dread the thought of the lymphedema hell that's going to unleash, but this has been going on for long enough to take a sample of the skin. <br /></p><p>Like all the steroids I've used, they turn the affected area much redder. I used it for two weeks, and the burn area did improve. As per usual with all of these treatments, when I switched back to tacrolimus, I underwent a painful peel. </p><p>I've also begun to use cornstarch baby powder in the area (after cleaning first) prior to putting on a jog bra for exercise. So far, that hasn't been a problem (with the exception of some minor peeling on occasion). I'm going to try using it more frequently in an effort to use tacrolimus less often. <br /></p><p></p><h3 style="text-align: left;"><b>All the Rest<br /></b></h3><p>I met with Dr. Rihacek, the rheumatologist, last month. He also sent me for all kinds of tests and x-rays. I'll meet with him at the end of this month to talk about the outcomes. But Dr. Gwozdz look at the blood tests and explained a few things I had questions about. </p><p>My next doctor's appointment is with the awesome Dr. Goldstein, my gastroenterologist. I'm overdue for a colonoscopy (a little cancer got in the way), and I'm sure she'll want an update on all the cancer business. Other than physical therapy, it will be nice to get through a few weeks without medical attention. <br /></p><p>I return to work in person (on a limited basis) next week, and I'm excited and a little anxious about it. I'm going to need help lifting heavy things, and that will need to be worked out. I'm looking forward to the hands-on work, as well as seeing folks in person once again. </p><p>Last, but not least, I will take my first vacation in a long while. I will head north and west to visit my very dear friend Jane in Erie, PA. There will be stops at a couple of gluten-free shops on the way. </p><p>As ever, I am grateful for your continued reading of these diary entries. Thanks especially to those who have sent love, prayers, hugs, very silly gifts, very timely gifts, and shared their own experience.</p><p>Don't forget to get your screenings. Early detection is key!<br /></p><p><br /></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-29536460388408011812022-08-02T20:01:00.001-04:002022-08-02T20:35:44.394-04:00The Breast Cancer Diaries, vol. 2, issue 20<p><b>The End of the Line for Now, and Other Updates</b><br /></p><p>Yesterday, Monday Aug. 1st, was a tough one. I met with my oncologist to talk about what's next.<br /></p><p>Intellectually knowing that I'm out of options as far as medicines go is a bit different than being there in the moment and hearing "Now, we focus on monitoring for changes, signs, and symptoms." It felt a bit odd because I had expected that Dr. Omene might try to sell me trying on another aromatase inhibitor. She did not. In fact, she said that, with my sensitivities, I would likely experience side effects from the medications that she would give me to treat the AI side effects.</p><p>She won't be the one doing the monitoring, although the results will be shared with her every 6 months (or sooner, if there's something abnormal). Instead, I'll visit my
primary care physician more frequently to order blood tests, monitor all
manner of vitals, and generally have him pay close attention to even
subtle changes. I have an appointment with him in two days to kick off this regimen. </p><p>There also will be the 6-month interval mammogram nightmare. Since my
recent mammogram 2 weeks ago, I've had a really bad burn flare up and
lymphedema swelling in the left breast. I've also developed a rash in the inframmamary fold that
I'm having Dr. Singh take a look at tomorrow. It's very red, inflamed,
painful and itchy. </p><p>Consequently, physical therapy for the
lymphedema in the breast is difficult for Manassee to do. We're moving away
from every week to every other week because we know what works.
Unfortunately, while I'm this inflamed from the burns, very little
progress can be made because inflammation leads to swelling and pain. It all depends on healing the burns. </p><p></p><p>But back to the oncology...</p><p>After I left Dr. Omene at the Cancer Institute, I felt a range of different feelings. There was relief about not having to defend my choices, but at the same time, I realized that we had exhaused the choices that might help prevent future recurrences. It's not a given that just because someone takes one of these hormone blockers they won't have a recurrence/metastasis. From spending time in breast cancer support groups (including one for those of us with lymphedema), there's an unfortunately high number of people who talk about their metastatic breast cancer after having taken AIs, as well as tamoxifen (whether with chemo or without, mastectomy or lumpectomy). <br /></p><p>Regardless of my good prognosis, because I had 1 positive node, some cancer traveled outside the breast. It's difficult not to think about that as a ticking clock.<br /></p><p>However, after I finished work, I reached out to a couple of very close friends and one of my dear BC sisters to talk through my feelings and cry about it a bit. Today, I'm in a state of acceptance. I've put away the ticking clock for the time being, mainly because no one knows what the future brings. <br /></p><p>There is a whole lot of research underway in the field of breast cancer recurrence treatment, and hopefully, someday soon, one I can tolerate will be developed. Dr. Omene said that it was a good thing that I had my ovaries removed. That will greatly lessen the amount of estrogen to tempt any errant IDC cells that escaped the surgery and radiation. </p><p>Otherwise,
I've been walking nearly every day for an hour, whether outdoors (if
it's cool enough in the early morning) or on the treadmill downstairs.
Manasee gave me more excercises to do, and in addition to doing those twice daily, I have
been exercising with the yoga ball and lifting 2 lb weights. Now that
I've got my lymphedema sleeves and gloves for my left arm, I can start
back up with home yoga again. Although, I've been warned to take it slow
(as with everything, it seems). </p><p>I wear the sleeves daily, but do not sleep in them. They come in some pretty cool designs. I tried Lymphedivas, because they have so many great designs, but found that the top band tends to roll down. Lisa, my fitter (for compression bras and sleeves/gloves) ordered me some Juzo sleeves. They are more comfortable and never roll down.</p><p>Luna Medical is in network for my insurance provider, and they had many more fun designs and colors for the Juzo sleeves. Since I met my deductible early, I'll be set for sleeves for a while. These medical devices have a lifespan of about 6 months. I'll have a few of them to rotate in use to try to stretch the life of them longer. <br /></p><p>Later this week, I'll go back to Lisa for more compression bra fitting. <br /></p><p>Lastly, I have mapped out what my return to campus (partially) will look like for the month of September. The plan is to be in the archive two days a week, 4 hours each day. I will start later (at 10) to accommodate all the extra exercises, lymphatic massage, and radiation burn care that must be done in the mornings. I'm really looking forward to being among my colleagues again, but at the same time, I have some anxiety about folks not masking. I'll be wearing my KN 95. </p><p><span>Thanks, as ever, to everyone who
takes the time to comment on these posts. It means a lot to me that you
do. Thanks also for all the kind words, thoughts, prayers, good vibes,
funny jokes, love, and gifts. I appreciate all of it. </span><br /><br /><span>Don't forget to schedule your screenings. Early detection is key.</span></p><p><br /></p><p> </p><p><br /></p><br /><p><br /></p><p><br /></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-28556005826452789312022-07-17T20:29:00.007-04:002022-07-17T20:29:35.409-04:00 The Breast Cancer Diaries, vol. 2, issue 19<p><span></span><b><span>The Good News and the Not-Great News</span></b><br /><br /><span>Good news first. When I saw Dr. Busono, the neurologist, on Friday, he tested my right hand for permanent nerve damage (from that blood draw in the emergency room 3 weeks ago). I'd never had a nerve study, but had heard it would hurt. It did, but only for the moments when he was stimulating various nerves in my hand and arm.</span><br /><br /><span>Prior to starting, the doc wanted to test my left arm as well. I had to tell him 4 times (FOUR TIMES) that he would not be touching my left arm because I have lymphedema in that arm. He finally got it, and we moved forward with the test. </span><br /><br /><span>He had me lie down on a low, padded examination table and attached an array of electrodes to my right arm and hand. He said that my right hand was too cold. (I'd been hot flashing on my short drive over to Princeton and Rutgers Neurology, and had been blasting the A/C.) He asked a nurse to fill a glove with warm water for me to hold to warm my hand. Five minutes later, my hand was warm enough for the test. </span><br /><br /><span>He used a device to measure the nerve responses as he activated the electrodes. It felt like painful, little shocks. Then, he used needles similar to acupuncture needles to test the nerves around my hand and arm. The pains were momentary and also felt like needle jabs, then shocks. The only one that really hurt was the one in the fleshy part of my hand between my thumb and index finger. </span><br /><br /><span>The good news is that there's no permanent nerve damage, and that over time, my hand will feel better. Currently, my fingers and thumb on my right hand are sore and stiff, and go very tingly when I use the hose (even with the trigger locked on the sprayer) to water the garden, when I'm writing with a pen/pencil, and when I'm holding my phone in my right hand. Also, when I'm driving. It doesn't bother me much when I'm knitting or typing. </span><br /><br /><span>The not-great news is that the doctor saw clearly that I have carpal tunnel in my right hand. I need to get a splint. I already have an ergo setup at my desks at home and at work, and have been using a mouse with my left hand for 20 years+. I will learn more about what I need to do to care for this syndrome when I meet up with my neuro nurse in a couple of weeks. </span><br /><br /><b><span>Lymphie Deb and the Burns</span></b><br /><br /><span>Until I receive the lymphedema sleeves that Lisa, the fitter, ordered, I'm wearing Lymphediva sleeves. They are very colorful (at least the ones I ordered) sleeves that look somewhat like arm tattoo sleeves. They provide some compression and fit reasonably well, although the end rolls down a little around my armpit despite the gripper material around the top of the sleeve. </span><br /><br /><span>I've been limiting the time I'm wearing compression garments on my breast to avoid another burn flare up. Currently, the burned area is much improved, and I want to keep it that way. </span><br /><br /><span>To help with the breast compression, I have been inserting Swell Spot chip pads inside my cotton bras, when I'm wearing them instead of the Hugger or the binder (the garment that looks like a tube top from the 1970s). The chip pads are exactly that. They are pre-formed pads with channels sewn into them to move the lymph fluid away from the swelling. Inside the pads are cut up pieces (chips) of polyurethane foam that massage the tissue to also help drain the fluid. They come in all kinds of shapes and sizes for specific uses, especially after surgery where lymphnodes were removed and swelling has occurred. </span><br /><br /><span>I insert mine by the underarm, were the seroma was. That area still experiences swelling, and the chip pads, as well as the binder, work well to move that fluid. However, I have to do some kind of compression every day. Otherwise, lymph builds up, which makes Lefty, my armpit, and left arm hurt. </span><br /><br /><b><span>Notes on Lefty</span></b><br /><br /><span>Speaking of Lefty experiencing pain... I figured out why I was getting the recurrence of the lightning/zingers. I was overstretching the pecs and the lats. Instead of stopping when I felt a gentle stretch (as directed), I kept going. No pain, no gain. Well, I was wrong. Pain = more pain later. I have learned my lesson and have been stretching those muscles properly now. Subsequently, no more zingers. </span><br /><br /><span>I continue to try to find the balance between the compression and healing the burns. Other than the obvious reasons, I also go for my first post-lumpectomy 3D mammogram on Tuesday (2 days from today). I'm a bit worried about tearing the skin where the burns are. The clobetosol has thinned my skin in the inframammary fold, and it remains sensitive. </span><br /><br /><span>For those who haven't experienced it, the mechanics of mammogram machines is that the bottom plate goes right up against the ribs under the breast (where my burn area is), and the tech pulls the breast as forward as possible, trapping it between the top, plastic plate. Then, the tech squeezes the top plate down further than you think possible and asks you to hold your breath as she goes behind a protective area and takes the image. Then, she raises the plate to free the breast temporarily before turning the whole squeezing mechanism to other, uncomfortable positions for additional views of the breast. It sucks and hurts under normal conditions. </span><br /><br /><span>Manasee has warned me that it will suck, and I that will swell up afterward. I'll be bringing my most compressive garment (the binder) to wear after the mammogram. </span><br /><br /><span>Regardless of how much it will suck, I have to do it because I can't get an MRI (not even sure insurance would pay for it, if it were an option for me). Really, after all this time reading these posts, it surprises you that I can't get an MRI?</span><br /><br /><span>Over the years, I've had a lot of metal inserted into my mouth and jaw. Yes, I know people with extensive dental work get MRIs all the time. Believe me, I tried it before I knew any better. It felt as though my upper jaw was being pulled out of my head. Scared the daylights out of me. Suffice to say, I stopped the procedure.</span><br /><br /><span>Yes, I know. It's long been on the ever-growing list of things that make me tough to treat. </span><br /><br /><b><span>Other Topics</span></b><br /><br /><span>After calling Dr. Omene a second time, I spoke with a nurse who asked a few questions and said she'd relay the information to Dr. Omene. I haven't heard from the doctor, but I have a follow up appointment with her in a few weeks. I'm not sure there's all that much to say, except that on the whole, I feel much better off the Letrozole. </span><br /><br /><span>I have been working to increase the amount of exercise I'm doing each day to lose (eventually) the weight I gained since I was diagnosed last September. I still walk nearly every morning, either outside before it gets hot or on the treadmill (which I like less. I much prefer the elliptical trainer, which will, hopefully, be repaired and returned to me soon). </span><br /><br /><span>I also picked up a set of 2 lb barbells to start building strength back in my arms. Manasee said I have to start small, otherwise face the wrath of lymphedema. </span><br /><br /><span>A new addition to the exercise routine is another yoga ball. Besides the one I use at my desk, I also have a larger one. This new one is sized so that I can sit on it and have my legs parallel to the floor. It makes doing different exercises more ergonomic correct. In the evening, after I've done my lymphedema drainage massage and exercises, I also do yoga ball exercises targeted to the core. Again, I am starting slowly to work myself up to more repetitions and harder exercises. </span><br /><br /><span>Finally, since I've been feeling better, I'm back to cooking/making most of my own food again (just looking at my FB feed, that's easy to see). My goal is to greatly diminish the amount of processed food in the house. I'd gotten used to a lot of pre-made meals and foods, as well as snacky foods after the surgeries because I just didn't have the energy or interest in cooking for myself the way I typically do.</span><br /><br /><span>Now that I have lymphedema, I have to watch all kinds of stuff that I didn't previously. Like salt. Also, now that I'm menopausal, I have to watch my cholesterol. During the month that I was on Letrozole, my cholesterol rose significantly. I'll be tested again in 5 months. My guess is that it will be closer to my normal by then. (My triglycerides are good and my HDLs are high.) While I haven't given up cheese, I've cut way back on how many times and how much I eat of it per week. </span><br /><br /><span>I'm still on track to begin returning to work in person in September. It will be partial at first, but I'm really looking forward to being back in the archives and on campus in general. I'll be wearing my KN95, which should help with the dust allergies. It will be especially good to see my colleagues in person once again.</span><br /><br /><span>Last, but not least, I made a decision to get out and live my life (more than I have been, and much more like I usually do). I've made plans for two road trips. One small one to visit my dear friend Jane in Erie, PA in September, and the other to have a big adventure driving through New England to Prince Edward Island, Canada with another dear friend, Joy, in October. </span><br /><br /><span>Thanks, as ever, to everyone who takes the time to comment on these posts. It means a lot to me that you do. Thanks also for all the kind words, thoughts, prayers, good vibes, funny jokes, love, and gifts. I appreciate all of it. </span><br /><br /><span>Don't forget to schedule your screenings. Early detection is key.</span></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-37773079611171825092022-07-06T17:47:00.008-04:002022-07-06T17:47:35.427-04:00 The Breast Cancer Diaries, vol. 2, issue 18<p><span></span><b><span>When It Rains... or Running the Gauntlet</span></b><br /><span>You know how it feels when you don't know where to begin because there's just been so much going on, and it's a bit overwhelming? That's how I've been feeling when catching up with folks I haven't spoken with/written to in a while. It's very much how I feel writing this BCD entry right now. </span><br /><br /><span>There's some catching up, an emergency room visit, and new issues. Told you there was a lot. </span><br /><br /><b><span>No More Cancer Drugs for a While</span></b><br /><span>The last time I wrote a full issue and not just a Quickie for Facebook, I was still on Letrozole. Since then, the side effects had become so painful and/or difficult that they interfered with my being able to keep on with daily living. After I called and spoke with her nurse, Dr. Omene took me off the Letrozole for 2 weeks and told me to call her on July 5 (yesterday). I left a message yesterday, letting her know that I am much improved. </span><br /><br /><span>She hasn't yet returned the call, but when she does, I will let her know that I will be taking a break from trying more medications. At least a 6-month break to let my body heal from the 2 surgeries, radiation and its burns, two separate trials of medications that my body couldn't tolerate, and lymphedema. It's been a rough go since last September, and hoo boy could I use a rest.</span><br /><br /><span>After stopping the Letrozole, at first, there was little difference. But after a week, I started feeling better. Today, more than 2 weeks later, about 80% of the joint and muscle pain is gone or greatly lessened. There's still issues with my right hip, wrist, and shoulder, and my left thumb. But they are not nearly as bad as they were 3 weeks ago. I did make an appointment to see a local rheumatologist, though because one of the side effects of Letrozole is arthritis/RA. </span><br /><br /><span>The hot flashes are much improved. There are far fewer and, for the most part, they pass in about half the time. They aren't as intense, either. If I must, I can sit through one without disrobing or sticking a fan in front of me. They are nearly back to what they were prior to the Letrozole. </span><br /><br /><span>I'd been having headaches nearly daily. Last week, I didn't have a headache until Sunday, when the weather changed. </span><br /><br /><span>Energy was at a premium. Doing anything was a real struggle, especially sleeping. I might have slept 2-3 hours total between waking frequently from hot flashes and/or the joint pain. It was brutal. </span><br /><br /><span>I'm glad that more people don't experience it so badly. Mind you, more than 1/3 of people who take aromatase inhibitors stop due to side effects, so I'm not alone. Still, it doesn't make it any better. I do want to know where all those folks are. It doesn't seem that anyone is doing any studies on how they are doing (Mom looked). </span><br /><br /><span>Importantly, I had been sinking into a pretty bad depression. Beyond blue. I hadn't been in a funk like that since 2003. Thankfully, that lifted pretty quickly after stopping Letrozole, and now I'm back to feeling much more like myself. </span><br /><br /><b><span>Lymphie Deb and the ER</span></b><br /><span>A week ago, I had a pretty scary experience. I'd just taken a decent morning walk around the neighborhood and started watering the garden when I had a pain in my left arm that I'd never experienced before. It was swelling and feeling tight from it, moving up my arm from my wrist. I thought I might be having a heart attack. Instead, I was experiencing my first lymphedema swelling in that arm. </span><br /><br /><span>The way I experience lymphedema in my breast is very different, so I was completely taken off guard. I knew I was seeing Manasee for physical therapy in a couple of days, so I waited to contact her. In the meantime, I found a YouTube channel created by an oncology physical therapist who specializes in breast cancer and lymphedema. I used some of her methods of lymphatic drainage massage to some success.</span><br /><br /><span>When I saw Manasee last Friday, she measured my arm in a handful of places and saw that it was somewhat larger than when I'd started with her. She put in a request to Dr. Hopkins for prescriptions for arm sleeves and compression bras (I hadn't gotten a prescription before I went to Lisa, the fitter, last time.). </span><br /><br /><span>She also was very concerned at the speed of my swelling and asked me to call Dr. Omene's office while I was receiving treatment from her. I had it on speaker, and Manasee spoke with the nurse about what was happening and her concerns. The nurse contacted Dr. Omene, and then called me back 40 minutes later, just as I was arriving home from PT. </span><br /><br /><span>She said that Dr. Omene wanted me to get to the emergency room right away because I might have a blood clot in my arm, and they needed to check. I hadn't eaten yet that day, so I told her that I was going to have something to eat before leaving for Robert Wood Johnson hospital. I'm glad that I did because I didn't get home from that trip until hours later. </span><br /><br /><span>After going through a screening process, I was taken back to a relatively quiet section of the ER (with the exception of a LOT of beeping monitors). I was wheeled to a gurney stationed in front of the nurses' station to wait. It wasn't long before a hospital admissions person walked over, pushing a computer atop a mobile standing desk. She reviewed my information and got me further into the system than the front desk nurse did at the screening area. </span><br /><br /><span>Not much later, a doctor came to see why I was there and put in the orders for the Doppler ultrasound procedure. He also put in for blood work, although I'm not sure why, but I guess for a potential blood clot situation, you have to cover your bases. </span><br /><br /><span>A nurse came by to take blood. When he inserted the needle into my right hand, he hit a nerve, and I felt as if all the electricity in the room went through my hand and out my pinky. I was in so much pain that I nearly fainted (and I'm not a fainter or someone who can't handle pain). </span><br /><br /><span>(Today, I'm still having pain in my right hand, tingling, and pins and needles in my fingers. I will have someone take a look at it because that's not right. Yesterday morning, I could hardly write with a pencil. Today is better, but there's still pain. I've been using Arnica gel very frequently to bring down the swelling and bruising. It has been effective.)</span><br /><br /><span>Afterward, I was taken to another part of the hospital to the Vascular Lab for the Doppler ultrasound. There, I was wheeled into a curtained cubicle by a nice tech who told me what she would do. She asked me to remove my shirt (as I had a compression garment on underneath, I was pretty well covered) so that she could take the measurements of my vascular activity and check out the state of my veins and arteries in both arms, around my shoulders, and under my arms. </span><br /><br /><span>She pushed pretty hard into my left armpit, and I knew I'd be feeling that later. But, it didn't take longer than about 10-15 minutes to complete the whole test. No blood clots or any other issues, thankfully. </span><br /><br /><span>Then, they wheeled my gurney all the way back to the ER, where the waiting began. Well, waiting and panicking because there were two other people on gurneys behind me with no masks. No masks in the ER while our numbers here in Jersey are rising once again. I nearly checked out AMA, and pestered the nurse who jabbed me about my blood test results. Eventually they came (everything was fine), and the doctor released me. </span><br /><span> </span><br /><span>I'm glad my medical team was cautious, but now my hand really hurts, and I'm concerned that there may be permanent nerve damage.</span><br /><br /><span>The last bit about lymphedema -- heat and humidity makes it worse. I am counting down the days until fall. </span><br /><br /><b><span>The Burns</span></b><br /><span>While recuperating from these events over the weekend, the burns flared up (when it rains...). I'd been using compression often because the burned area was doing really well. (Oh, the hope!)</span><br /><br /><span>I guess it was only a matter of time because Sunday night, it started getting itchy, red, and bumpy as it does at the beginning of a flare up. Continuing the tacrolimus, I waited until Monday to restart clobetasol because it really does a number on my skin, but it has brought down the bumps and gave me some relief. I'm going to return to the tacrolimus to prevent the big, painful peel that happens with clobetasol. Fun. </span><br /><br /><b><span>Lightning Strikes Again</span></b><br /><span>So, this morning, Lefty must have been feeling left out because I awoke to feeling lightning strikes in my breast again. It's been months since these pains! This time, they were only in one spot under my breast, where radiation scar tissue is located. When pressing in the area, it feels like a horizontally oblong lump about an inch long. There are a couple of these in the inframmamary fold, along the underside of the breast, under the burned tissue. </span><br /><br /><span>When I went to see Manasee today at noon, she called the pains "zingers," which is a lot less cumbersome than saying "lightning strikes," and expresses the sentiment pretty well. I had been having them throughout the morning. I felt a couple while she was doing her manual lymphatic drainage massage. </span><br /><br /><span>She told me that I need to massage my scars, both in the armpit and along the side of the breast. The scars are tightening everything up, which may be causing the zingers. I had been doing it, but when I had to switch up exercises, I forgot to continue. Suffice to say, when I arrived home today, I wrote myself a note on the lymphatic drainage exercises sheet that Manasee gave me last week after the whole arm swelling debacle. </span><br /><br /><span>I definitely feel as if I've been running the gauntlet. Thankfully, I'm not in the same emotional space I was a couple of weeks ago. I have come to a place of acceptance with the lymphedema and will learn how to wear compression sleeves. At least they won't cause my radiation burns to act up. </span><br /><br /><span>It's all been a bit exhausting, frankly. Taking a break from medication side effects is a welcome change. Now, if the rest of my body would get in line, I'll be set. </span><br /><br /><span>Thanks everyone for all your kind thoughts, good vibes, hugs, private messages of hope, jokes, adventure days, and love. I always get so much out of your comments and feedback, whether in the Comments section below or privately. </span><br /><br /><span>Remember to get your screenings, whether mammograms, colonoscopies, or whatever you need. Early detection is key!</span></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-60394488233647061992022-06-16T12:47:00.001-04:002022-06-20T14:16:27.521-04:00 The Breast Cancer Diaries, vol. 2, issue 17<p><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Caveat: You might want to settle in with a nice cup of tea and a cookie. This one is long and detailed.","type":"text","version":1}" data-lexical-node-type="text">Caveat: You might want to settle in with a nice cup of tea and a cookie. This one is long and detailed.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><b><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Almost a Month on Letrozole","type":"text","version":1}" data-lexical-node-type="text">Almost a Month on Letrozole</span></b><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"It's a milestone and should be marked. In the past two weeks, some side effects have intensified while others have disappeared. First, the good news, the heartburn and nausea are gone. Also gone are the mood swings that I had been dealing with after the oophorectomy. In general, my mood has been much better and very even since having my ovaries out, despite the challenges you'll read about below. ","type":"text","version":1}" data-lexical-node-type="text">It's a milestone and should be marked. In the past two weeks, some side effects have intensified while others have disappeared. First, the good news, the heartburn and nausea are gone. Also gone are the mood swings that I had been dealing with after the oophorectomy. In general, my mood has been much better and very even since having my ovaries out, despite the challenges you'll read about below. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><b><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Joint Pain","type":"text","version":1}" data-lexical-node-type="text">Joint Pain</span></b><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"I thought it would have taken longer for the serious joint pain, but it arrived last week. The worst of it lives in the right hip and shoulder. Starting two days ago, the knuckle of my left thumb has been fairly stiff and has required frequent bending, flexing, and massage to loosen up. I switched back to my left hand for mouse use because the right wrist pain became too much. I'm also feeling it in my elbows and knees. Most days, the pain is greatest early in the morning, especially in the hip and shoulder (no matter which side I'm sleeping on). I make lots of noises getting out of bed. There's cursing involved.","type":"text","version":1}" data-lexical-node-type="text">I thought it would have taken longer for the serious joint pain, but it arrived last week. The worst of it lives in the right hip and shoulder. Starting two days ago, the knuckle of my left thumb has been fairly stiff and has required frequent bending, flexing, and massage to loosen up. I switched back to my left hand for mouse use because the right wrist pain became too much. I'm also feeling it in my elbows and knees. Most days, the pain is greatest early in the morning, especially in the hip and shoulder (no matter which side I'm sleeping on). I make lots of noises getting out of bed. There's cursing involved.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"What helps the most is movement. If I'm sitting (for work, etc.), I get up and walk around every 15 minutes, and flex my joints. It's also more comfortable to sit on an exercise ball than in a chair, although I switch them after a few hours. Yes, I do bounce and roll from left to right on the ball to keep from stiffening up.","type":"text","version":1}" data-lexical-node-type="text">What helps the most is movement. If I'm sitting (for work, etc.), I get up and walk around every 15 minutes, and flex my joints. It's also more comfortable to sit on an exercise ball than in a chair, although I switch them after a few hours. Yes, I do bounce and roll from left to right on the ball to keep from stiffening up.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"I keep a grip strengthener for my hands on my desk and in my car. For many years, I've kept one in the car for squeezing during traffic lights and other stops. It's calming and very helpful with any hand-related issues. ","type":"text","version":1}" data-lexical-node-type="text">I keep a grip strengthener for my hands on my desk and in my car. For many years, I've kept one in the car for squeezing during traffic lights and other stops. It's calming and very helpful with any hand-related issues. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Yoga stretches also help, although the hip pain takes a while to ease. The other tricky part is when I'm dealing with a radiation burn flare up, which has been the case for weeks now. More on the flare up later.","type":"text","version":1}" data-lexical-node-type="text">Yoga stretches also help, although the hip pain takes a while to ease. The other tricky part is when I'm dealing with a radiation burn flare up, which has been the case for weeks now. More on the flare up later.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":" ","type":"text","version":1}" data-lexical-node-type="text"> </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><b><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Way Too Much on Hot Flashes","type":"text","version":1}" data-lexical-node-type="text">Way Too Much on Hot Flashes</span></b><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"The hot flashes are much hotter now and are lasting about 3-5 minutes most times. For a couple of days this week, I documented the time and duration for each flash. Consequently, I can predict some of the times when I'll have them. During the daytime hours, I average 1-2 per hour.","type":"text","version":1}" data-lexical-node-type="text">The hot flashes are much hotter now and are lasting about 3-5 minutes most times. For a couple of days this week, I documented the time and duration for each flash. Consequently, I can predict some of the times when I'll have them. During the daytime hours, I average 1-2 per hour.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"If I have ginger, such as in a ginger soda, that will bring one on almost immediately (but I will not give up ginger because I enjoy it in food, and it calms my stomach like nothing else). Nearly any time I eat, I'll have at least one hot flash. Although, when I'm drinking my cold smoothie (with ginger), I don't have one. Drinking water or anything cold, especially when it starts, helps.","type":"text","version":1}" data-lexical-node-type="text">If I have ginger, such as in a ginger soda, that will bring one on almost immediately (but I will not give up ginger because I enjoy it in food, and it calms my stomach like nothing else). Nearly any time I eat, I'll have at least one hot flash. Although, when I'm drinking my cold smoothie (with ginger), I don't have one. Drinking water or anything cold, especially when it starts, helps.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"My bestie, Joy, gave me a truly useful gift when I had the oophorectomy -- a fan worn around the neck. It has vents along two arms (it looks a bit like a headset, but horizontal) that send air straight up to cool my neck and head. I keep it downstairs to use when I'm eating at the table or knitting on the sofa. I also have worn it on a walk or two.","type":"text","version":1}" data-lexical-node-type="text">My bestie, Joy, gave me a truly useful gift when I had the oophorectomy -- a fan worn around the neck. It has vents along two arms (it looks a bit like a headset, but horizontal) that send air straight up to cool my neck and head. I keep it downstairs to use when I'm eating at the table or knitting on the sofa. I also have worn it on a walk or two.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"While it's very effective at cooling my head, I'm now feeling the hot flashes from my waist up. In fact, about half of the time, that's the sensation -- intensifying heat rolling up my body (the other half of the time, the high heat hits me all at once). The rolling feeling is a bit of a warning and gives me time to turn on a fan or take off a layer of clothing before I heat up in earnest. ","type":"text","version":1}" data-lexical-node-type="text">While it's very effective at cooling my head, I'm now feeling the hot flashes from my waist up. In fact, about half of the time, that's the sensation -- intensifying heat rolling up my body (the other half of the time, the high heat hits me all at once). The rolling feeling is a bit of a warning and gives me time to turn on a fan or take off a layer of clothing before I heat up in earnest. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"I say \"layer\" because I've had to keep the a/c on higher than ever due to all the hot flashing and the lymphedema (more on that later). All the library/archives cardigans have come in handy, though. Whichever I'm wearing will be taken off and put back on all day and night. It's like having an broken internal thermometer swinging from hot to cold. ","type":"text","version":1}" data-lexical-node-type="text">I say "layer" because I've had to keep the a/c on higher than ever due to all the hot flashing and the lymphedema (more on that later). All the library/archives cardigans have come in handy, though. Whichever I'm wearing will be taken off and put back on all day and night. It's like having an broken internal thermometer swinging from hot to cold. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"If I experience an emotional stressor, I'll have a hot flash. Almost every time I share in a recovery meeting, I have one. It also happens when I'm on work Zoom meetings. Thankfully, I have a pretty powerful fan in my home office blowing cool air when I need it. I'll probably wear out the power switch from turning it off and on, and off again several times an hour.","type":"text","version":1}" data-lexical-node-type="text">If I experience an emotional stressor, I'll have a hot flash. Almost every time I share in a recovery meeting, I have one. It also happens when I'm on work Zoom meetings. Thankfully, I have a pretty powerful fan in my home office blowing cool air when I need it. I'll probably wear out the power switch from turning it off and on, and off again several times an hour.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"I have at least 3 hot flashes throughout the night, and they wake me up. I'll turn on the ceiling fan, kick off the sheet and light blanket, and wait it out before trying to resume sleep. Sometimes I can, sometimes I can't get back to sleep. ","type":"text","version":1}" data-lexical-node-type="text">I have at least 3 hot flashes throughout the night, and they wake me up. I'll turn on the ceiling fan, kick off the sheet and light blanket, and wait it out before trying to resume sleep. Sometimes I can, sometimes I can't get back to sleep. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Otherwise, it's hard to tell if I'm having one when I'm outside walking or if it's just the exertion and ambient heat. I'm much more sensitive to heat than I had been previously (give me a snowstorm any day). I've begun getting out earlier for walks, although sometimes, I'm just so exhausted that I don't get out of bed until 6. ","type":"text","version":1}" data-lexical-node-type="text">Otherwise, it's hard to tell if I'm having one when I'm outside walking or if it's just the exertion and ambient heat. I'm much more sensitive to heat than I had been previously (give me a snowstorm any day). I've begun getting out earlier for walks, although sometimes, I'm just so exhausted that I don't get out of bed until 6. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><b><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Fatigue","type":"text","version":1}" data-lexical-node-type="text">Fatigue</span></b><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"There's my transition to writing about fatigue. Whether it's the Letrozole; still healing from 2 surgeries within six months (it's now 8 months from the lumpectomy and 2 from the ooph); radiation treatment and the burns that don't want to heal; lymphedema; interrupted/little sleep; or, more than likely, all of the above, it's been a real struggle to deal with the fatigue. Some days, I wake up and have loads of energy. I feel like ME again. Then, I crash in the afternoon and evening, or it hits me a day or two later. Then, I'm horizontal for as long as I can be. The hip pain increases when I'm horizontal, though.","type":"text","version":1}" data-lexical-node-type="text">There's my transition to writing about fatigue. Whether it's the Letrozole; still healing from 2 surgeries within six months (it's now 8 months from the lumpectomy and 2 from the ooph); radiation treatment and the burns that don't want to heal; lymphedema; interrupted/little sleep; or, more than likely, all of the above, it's been a real struggle to deal with the fatigue. Some days, I wake up and have loads of energy. I feel like ME again. Then, I crash in the afternoon and evening, or it hits me a day or two later. Then, I'm horizontal for as long as I can be. The hip pain increases when I'm horizontal, though.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Last week, in an effort to retrain my body, I changed to my old work schedule, while working at home: Monday and Wednesday 8-4, Thursday 2-12. I was completely done by the end of the days. I crashed on Friday and Sunday. I'm hoping that my body evens out and gets used to it. This week, it was a bit better, although (more on this later) the radiation burn flare up has been particularly painful and required more care.","type":"text","version":1}" data-lexical-node-type="text">Last week, in an effort to retrain my body, I changed to my old work schedule, while working at home: Monday and Wednesday 8-4, Thursday 8-12. I was completely done by the end of the days. I crashed on Friday and Sunday. I'm hoping that my body evens out and gets used to it. This week, it was a bit better, although (more on this later) the radiation burn flare up has been particularly painful and required more care.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><b><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"The Burns and Lymphedema","type":"text","version":1}" data-lexical-node-type="text">The Burns and Lymphedema</span></b><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Well, there's not a lot to say except that I've had an ongoing flare-up since the last time I wrote one of these BCD entries (May 27). Some days are better than others. Today is not one of those days. ","type":"text","version":1}" data-lexical-node-type="text">Well, there's not a lot to say except that I've had an ongoing flare-up since the last time I wrote one of these BCD entries (May 27). Some days are better than others. Today is not one of those days. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"I was back on clobetasol for a two weeks, then tacrolimus, then clobetasol. This week is a tacrolimus week. I've endured yet another big peel. It's red and angry in the inframammary fold these days. Today is one of those days when I feel like I'm on fire under my left breast. ","type":"text","version":1}" data-lexical-node-type="text">I was back on clobetasol for a two weeks, then tacrolimus, then clobetasol. This week is a tacrolimus week. I've endured yet another big peel. It's red and angry in the inframammary fold these days. Today is one of those days when I feel like I'm on fire under my left breast. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Maybe it's the heat. The burns definitely improve the more I'm on my back exposing the fold to circulating air. Maybe it's the compression to deal with the lymphedema. I'm not sure. But, what works for the burns doesn't work for the lymphedema and vice versa. ","type":"text","version":1}" data-lexical-node-type="text">Maybe it's the heat. The burns definitely improve the more I'm on my back exposing the fold to circulating air. Maybe it's the compression to deal with the lymphedema. I'm not sure. But, what works for the burns doesn't work for the lymphedema and vice versa. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Manasee, the physical therapist, told me that hot weather increases lymphedema swelling. She also said it worsens when the burns are bad because there is increased inflammation. As a result, I have to do lighter and less frequent compression to help with the burns. When they look like they are improving, I use more compression. Then, the lymphedema really improves, but the burns flare up harder, usually the following day. ","type":"text","version":1}" data-lexical-node-type="text">Manasee, the physical therapist, told me that hot weather increases lymphedema swelling. She also said it worsens when the burns are bad because there is increased inflammation. As a result, I have to do lighter and less frequent compression to help with the burns. When they look like they are improving, I use more compression. Then, the lymphedema really improves, but the burns flare up harder, usually the following day. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"It's frustrating and painful. It's really frustrating because the burns had really been improving. It's a big challenge because compression works well on the lymphedema. There's big pain relief in the left breast and arm, as well as improvements in range of motion in the arm when I'm able to use the tighter compression. ","type":"text","version":1}" data-lexical-node-type="text">It's frustrating and painful. It's really frustrating because the burns had really been improving. It's a big challenge because compression works well on the lymphedema. There's big pain relief in the left breast and arm, as well as improvements in range of motion in the arm when I'm able to use the tighter compression. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"There's also the matter of getting out and walking in the warmer weather. Sweat causes problems with the burns. I try to get out earlier in the day (as I mentioned earlier) to avoid the issue, but sometimes, it's not possible. ","type":"text","version":1}" data-lexical-node-type="text">There's also the matter of getting out and walking in the warmer weather. Sweat causes problems with the burns. I try to get out earlier in the day (as I mentioned earlier) to avoid the issue, but sometimes, it's not possible. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Just to circle back to the hot flash discussion. Wearing the compression gear and dealing with hot flashes sucks. It provides an extra layer of insulation. I generally just take it off when the flash happens, and put it back on after it passes. Although, sometimes, it sets off the burns at the same time. In that case, I stop the compression altogether for the day. As Manasee says, some compression is better than no compression. ","type":"text","version":1}" data-lexical-node-type="text">Just to circle back to the hot flash discussion. Wearing the compression gear and dealing with hot flashes sucks. It provides an extra layer of insulation. I generally just take it off when the flash happens, and put it back on after it passes. Although, sometimes, it sets off the burns at the same time. In that case, I stop the compression altogether for the day. As Manasee says, some compression is better than no compression. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><b><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Closing Thoughts","type":"text","version":1}" data-lexical-node-type="text">Closing Thoughts</span></b><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Sometimes, I don't want to share this kind of detail with you, Dear Reader, because I know it's difficult to read, especially for those who know and love me well. But, if you've been reading along since the beginning, you will remember that I lean heavily on \"this too shall pass,\" or what the Buddhists refer to as \"impermanence.\" It won't always feel this way. ","type":"text","version":1}" data-lexical-node-type="text">Sometimes, I don't want to share this kind of detail with you, Dear Reader, because I know it's difficult to read, especially for those who know and love me well. But, if you've been reading along since the beginning, you will remember that I lean heavily on "this too shall pass," or what the Buddhists refer to as "impermanence." It won't always feel this way. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"And, sometimes it just sucks until it's done sucking.","type":"text","version":1}" data-lexical-node-type="text">And, sometimes it just sucks until it's done sucking.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Getting out into nature helps. Just going outside my house to look at the garden (and occasionally do a bit of clean up) does wonders for me. Meditation and online recovery meetings are key. Talking with friends and family, and visiting with folks in person go a long way toward taking my mind off my physical self. ","type":"text","version":1}" data-lexical-node-type="text">Getting out into nature helps. Just going outside my house to look at the garden (and occasionally do a bit of clean up) does wonders for me. Meditation and online recovery meetings are key. Talking with friends and family, and visiting with folks in person go a long way toward taking my mind off my physical self. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"As you know, I've been through much worse. Although, I won't lie to you. Sometimes, it's a lot. And, sometimes self-care looks like a plate of nachos and a night of watching \"Whose Line Is It Anyway\" while knitting.","type":"text","version":1}" data-lexical-node-type="text">As you know, I've been through much worse. Although, I won't lie to you. Sometimes, it's a lot. And, sometimes self-care looks like a plate of nachos and a night of watching "Whose Line Is It Anyway" while knitting.</span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Thanks everyone for all your kind thoughts, good vibes, hugs, private messages of hope (I'm looking at you, Valerie Messina), jokes, adventure days, and love. It makes my day when people comment on these posts. ","type":"text","version":1}" data-lexical-node-type="text">Thanks everyone for all your kind thoughts, good vibes, hugs, private messages of hope (I'm looking at you, Valerie Messina), jokes, adventure days, and love. It makes my day when people comment on these posts. </span><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><br data-lexical-editor-key="khyoq" data-lexical-node-json="{"type":"linebreak","version":1}" data-lexical-node-type="linebreak" /><span data-lexical-editor-key="khyoq" data-lexical-node-json="{"detail":0,"format":0,"mode":"normal","style":"","text":"Remember to get your screenings, whether mammograms, colonoscopies, or whatever you need. Early detection is key! ","type":"text","version":1}" data-lexical-node-type="text">Remember to get your screenings, whether mammograms, colonoscopies, or whatever you need. Early detection is key! </span></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-58845375157884726422022-05-27T12:12:00.005-04:002022-05-27T12:12:57.369-04:00The Breast Cancer Diaries, vol. 2, issue 16<p><b><span data-offset-key="cboi8-0-0"><span data-text="true">The Bra Fitter</span></span></b></p><div data-contents="true"><div class="" data-block="true" data-editor="1d6i8" data-offset-key="gtpr-0-0"><div class="_1mf _1mj" data-offset-key="gtpr-0-0"><span data-offset-key="gtpr-0-0"></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="d74au-0-0"><div class="_1mf _1mj" data-offset-key="d74au-0-0"><span data-offset-key="d74au-0-0"><span data-text="true">Yesterday, at the urging of my lymphedema physical therapist Manasee, I met with Lisa Lindenberg, the awesome certified mastectomy and lumpectomy bra fitter at the Steeplechase Cancer Center at Robert Wood Johnson University Hospital in Somerville, NJ. We had spoken on the phone on Wednesday, so she had an idea of what was happening with the burns and the lymphedema. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="e5ups-0-0"><div class="_1mf _1mj" data-offset-key="e5ups-0-0"><span data-offset-key="e5ups-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="cidl1-0-0"><div class="_1mf _1mj" data-offset-key="cidl1-0-0"><span data-offset-key="cidl1-0-0"><span data-text="true">Lisa has many years of experience and has seen it all with regard to post-surgical breast cancer patients. She took one look at me and pulled out a bin with Prairie Wear compression bras. She fitted me with one called the Hugger Prima, which has adjustable straps. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="56gfo-0-0"><div class="_1mf _1mj" data-offset-key="56gfo-0-0"><span data-offset-key="56gfo-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="koi3-0-0"><div class="_1mf _1mj" data-offset-key="koi3-0-0"><span data-offset-key="koi3-0-0"><span data-text="true">It's definitely a snug fit across the breasts. It comes with inserts, but more importantly, it fits the Swell Spot pad that Manasee wants me to wear. The Swell Spot is a large, ungainly thing. It's a soft, quilted piece that covers the breast and wraps around the side, under the arm to my back. It contains small pieces of foam that provide a specific kind of compression to move the lymph fluid away from the breast and armpit. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="fejq8-0-0"><div class="_1mf _1mj" data-offset-key="fejq8-0-0"><span data-offset-key="fejq8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="dqls0-0-0"><div class="_1mf _1mj" data-offset-key="dqls0-0-0"><span data-offset-key="dqls0-0-0"><span data-text="true">I previously had been using it in that wraparound compression tube top kind of garment. It's a much better fit in the Hugger Prima. There's a YouTube video of someone inserting the Swell Spot into the openings where the inserts go, but since I'm big, so is my Swell Spot. It doesn't fit into my Hugger's insert section.</span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="2u8i8-0-0"><div class="_1mf _1mj" data-offset-key="2u8i8-0-0"><span data-offset-key="2u8i8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="c98cl-0-0"><div class="_1mf _1mj" data-offset-key="c98cl-0-0"><span data-offset-key="c98cl-0-0"><span data-text="true">Regardless, Lisa had one that she demonstrated in the fitting. I was able to wear it myself in the Hugger for an hour (so far) this morning. I'll try it again later to limit the amount of time I could possible disturb the burn site. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="cklg9-0-0"><div class="_1mf _1mj" data-offset-key="cklg9-0-0"><span data-offset-key="cklg9-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="3femi-0-0"><div class="_1mf _1mj" data-offset-key="3femi-0-0"><span data-offset-key="3femi-0-0"><span data-text="true">Two of these Huggers cost me $150. While Lisa told me they would not be covered by insurance, my friend Tom suggested that I try my insurance company anyway because they are being sold as medical devices, from a hospital, to manage my lymphedema, a medical condition. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="4vgtn-0-0"><div class="_1mf _1mj" data-offset-key="4vgtn-0-0"><span data-offset-key="4vgtn-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="33emt-0-0"><div class="_1mf _1mj" data-offset-key="33emt-0-0"><span data-offset-key="33emt-0-0"><span data-text="true">I wouldn't wear these out because they zip up the front, and the zipper can be easily seen under a shirt. Also, they don't provide the level of support I need. But, I can wear them to sleep, if possible, and at home to manage the symptoms. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="efqbr-0-0"><div class="_1mf _1mj" data-offset-key="efqbr-0-0"><span data-offset-key="efqbr-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="70em2-0-0"><div class="_1mf _1mj" data-offset-key="70em2-0-0"><span data-offset-key="70em2-0-0"><span data-text="true">The bottom line is that we know that compression works for me. I just need to figure out how to do it without angering the burns in inframammary fold. I'm really hoping that these bras provide the answer. So far, the bottom portion doesn't come in contact with the burn area, which is a really good start. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="22fa0-0-0"><div class="_1mf _1mj" data-offset-key="22fa0-0-0"><span data-offset-key="22fa0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="e9tjv-0-0"><div class="_1mf _1mj" data-offset-key="e9tjv-0-0"><b><span data-offset-key="e9tjv-0-0"><span data-text="true">Letrozole Updates</span></span></b></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="1u9rh-0-0"><div class="_1mf _1mj" data-offset-key="1u9rh-0-0"><span data-offset-key="1u9rh-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="4j3bp-0-0"><div class="_1mf _1mj" data-offset-key="4j3bp-0-0"><span data-offset-key="4j3bp-0-0"><span data-text="true">I'm now a week into taking the Letrozole, and the side effects have been manageable. I have experienced bad heartburn 3 of the 7 days (especially the first two days), but each time, I was able to treat it fine. On Wednesday, ginger alone kicked its butt. The previous two times, it was Nexium. I use ginger in my morning smoothies, and have added 1 teaspoon turmeric to try to deal with the inflammation of the burns. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="1l6sg-0-0"><div class="_1mf _1mj" data-offset-key="1l6sg-0-0"><span data-offset-key="1l6sg-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="16jj5-0-0"><div class="_1mf _1mj" data-offset-key="16jj5-0-0"><span data-offset-key="16jj5-0-0"><span data-text="true">The hot flashes have increased in number, length, and severity. Which means that they went from my feeling very hot from my chest upward for a minute or two a few times a day to occurrences throughout the day and night lasting up to 10 minutes, sometimes with my becoming sweaty (although not all the time). </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="2j2h-0-0"><div class="_1mf _1mj" data-offset-key="2j2h-0-0"><span data-offset-key="2j2h-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="f4aon-0-0"><div class="_1mf _1mj" data-offset-key="f4aon-0-0"><span data-offset-key="f4aon-0-0"><span data-text="true">The nighttime ones are the worst because they wake me up. This ties into the insomnia. For the first three days on Letrozole, I slept soundly, even after waking up in the middle of the night -- something I'd not experienced since Sept. 2021. It was wonderful. It also helped me figure out that my memory problems are due to lack of sleep because during those days, I had ZERO memory issues. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="19k0e-0-0"><div class="_1mf _1mj" data-offset-key="19k0e-0-0"><span data-offset-key="19k0e-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="5ocvr-0-0"><div class="_1mf _1mj" data-offset-key="5ocvr-0-0"><span data-offset-key="5ocvr-0-0"><span data-text="true">But, now I'm not able to fall asleep easily, which is new. I didn't have a problem falling asleep, just staying asleep. And as of Sunday, it's both. On average, the past few days have seen 2-3 hours of sleep each.</span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="e5j7o-0-0"><div class="_1mf _1mj" data-offset-key="e5j7o-0-0"><span data-offset-key="e5j7o-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="cbkiq-0-0"><div class="_1mf _1mj" data-offset-key="cbkiq-0-0"><span data-offset-key="cbkiq-0-0"><span data-text="true">Finally, there is some joint pain here and there. That's not actually supposed to hit hard until month 2, but I'm keeping an eye on it. To date, all of it has been easily addressed with movement. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="3perh-0-0"><div class="_1mf _1mj" data-offset-key="3perh-0-0"><span data-offset-key="3perh-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="9cnh1-0-0"><div class="_1mf _1mj" data-offset-key="9cnh1-0-0"><span data-offset-key="9cnh1-0-0"><span data-text="true">All said, 1 week into it, not so bad. Mind you, it took two weeks for Tamoxifen's side effects to take me down. This time around, I strongly hope that eventually, my body will even out with the side effects, especially the hot flashes. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="416f0-0-0"><div class="_1mf _1mj" data-offset-key="416f0-0-0"><span data-offset-key="416f0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="1j6jt-0-0"><div class="_1mf _1mj" data-offset-key="1j6jt-0-0"><span data-offset-key="1j6jt-0-0"><span data-text="true">Otherwise, I've had to put a dent in the credit cards even more than the lymphedema bras. Letrozole and sun exposure do not mix well, so I've been purchasing UPF 50 clothing and a new sun hat to try to deal with that. Wearing extra layers and hot flashing will be a challenge. But, I'm willing to deal with it if it means I can tolerate Letrozole and just know that's my medication to prevent future breast cancer. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="dllh0-0-0"><div class="_1mf _1mj" data-offset-key="dllh0-0-0"><span data-offset-key="dllh0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="6hh0c-0-0"><div class="_1mf _1mj" data-offset-key="6hh0c-0-0"><span data-offset-key="6hh0c-0-0"><span data-text="true">As ever, thanks for your kind thoughts and words, useful feedback, funny comments and private messages, adventure day company, prayers, love, good vibes, and gifts. </span></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="d9nbb-0-0"><div class="_1mf _1mj" data-offset-key="d9nbb-0-0"><span data-offset-key="d9nbb-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="1d6i8" data-offset-key="l28f-0-0"><div class="_1mf _1mj" data-offset-key="l28f-0-0"><span data-offset-key="l28f-0-0"><span data-text="true">Remember to get your screenings, folks. Early detection is key. </span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-4269657658277644182022-05-18T16:20:00.005-04:002022-05-18T16:20:24.163-04:00The Breast Cancer Diaries, vol. 2, issue 15<div data-contents="true"><div class="" data-block="true" data-editor="ba5bq" data-offset-key="be140-0-0"><div class="_1mf _1mj" data-offset-key="be140-0-0"><b><span data-offset-key="be140-0-0"><span data-text="true">The Next Leg of Treatment and Some Updates</span></span></b></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="3crk0-0-0"><div class="_1mf _1mj" data-offset-key="3crk0-0-0"><span data-offset-key="3crk0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="cv9kn-0-0"><div class="_1mf _1mj" data-offset-key="cv9kn-0-0"><span data-offset-key="cv9kn-0-0"><span data-text="true">Yesterday, I met with Dr. Omene to map out my treatment now that I've had the oophorectomy and am menopausal. She answered all of my questions and explained what I can expect moving forward. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="abend-0-0"><div class="_1mf _1mj" data-offset-key="abend-0-0"><span data-offset-key="abend-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="dge2m-0-0"><div class="_1mf _1mj" data-offset-key="dge2m-0-0"><span data-offset-key="dge2m-0-0"><span data-text="true">I will begin taking Letrozole, an aromatase inhibitor, once daily as a pill. The enzyme aromatase is found all over the body in muscle, skin, and breast tissues, as well as in fat. Its job is to convert hormones known as androgens into estrogen. By blocking aromatase, my cancer, which loves estrogen (and progesterone), won't have fuel to feed new tumors. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="7pbef-0-0"><div class="_1mf _1mj" data-offset-key="7pbef-0-0"><span data-offset-key="7pbef-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="7qjq9-0-0"><div class="_1mf _1mj" data-offset-key="7qjq9-0-0"><span data-offset-key="7qjq9-0-0"><span data-text="true">Letrozole has a really good record of preventing recurrence, so, if I can tolerate it, that's the way I'm going to fight cancer recurrence for the next 7 years. Like every other drug, it has its share of side effects. Most commonly, these appear as menopausal symptoms. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="669j9-0-0"><div class="_1mf _1mj" data-offset-key="669j9-0-0"><span data-offset-key="669j9-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="lajp-0-0"><div class="_1mf _1mj" data-offset-key="lajp-0-0"><span data-offset-key="lajp-0-0"><span data-text="true">I'm already experiencing those, especially hot flashing. A couple of days ago, I discovered that Dijon mustard brings on a hot flash. Rest assured, that will not stop me from using it. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="b1o9j-0-0"><div class="_1mf _1mj" data-offset-key="b1o9j-0-0"><span data-offset-key="b1o9j-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="ljq4-0-0"><div class="_1mf _1mj" data-offset-key="ljq4-0-0"><span data-offset-key="ljq4-0-0"><span data-text="true">Other common side effects include difficulty sleeping (have I mentioned my insomnia?), fatigue, nausea, loss of appetite, arthritis in the hands, rash, hair loss, depression, vaginal dryness/bleeding, high cholesterol, and osteoporosis. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="f5tgh-0-0"><div class="_1mf _1mj" data-offset-key="f5tgh-0-0"><span data-offset-key="f5tgh-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="crhj4-0-0"><div class="_1mf _1mj" data-offset-key="crhj4-0-0"><span data-offset-key="crhj4-0-0"><span data-text="true">To combat the last one, I'm taking calcium and vitamin D supplements. On Saturday morning, I will have a bone density scan to get a baseline early in treatment. I had one of these scans back in 2017, when I was having trouble with my back, and I know there's nothing to it. I'll be horizontal on a table for about 15 minutes as they run the X-ray machine over my body. A part of me wonders about all of this radiation I'm experiencing. Causes cancer, you know. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="2lsk6-0-0"><div class="_1mf _1mj" data-offset-key="2lsk6-0-0"><span data-offset-key="2lsk6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="6gcu6-0-0"><div class="_1mf _1mj" data-offset-key="6gcu6-0-0"><span data-offset-key="6gcu6-0-0"><span data-text="true">Before my next regular appointment with my endocrinologist, I'll get my cholesterol checked, as well as my thyroid numbers. We do that every 6 months anyway. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="dt5us-0-0"><div class="_1mf _1mj" data-offset-key="dt5us-0-0"><span data-offset-key="dt5us-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="4tf7c-0-0"><div class="_1mf _1mj" data-offset-key="4tf7c-0-0"><span data-offset-key="4tf7c-0-0"><span data-text="true">I did ask Dr. Omene what kinds of monitoring she'll be doing. Turns out, periodic blood tests are not the standard anymore. Oncologists found that they did not impact the patient's survival. Instead, she'll be looking for "signs and symptoms." Whether that's a indicative rash, other changes in the same breast, fluid in the lungs, profound headaches that just won't pass, or something else, as always, I'll be keeping a diary of exactly what I'm experiencing on a daily basis. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="evnc9-0-0"><div class="_1mf _1mj" data-offset-key="evnc9-0-0"><span data-offset-key="evnc9-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="n348-0-0"><div class="_1mf _1mj" data-offset-key="n348-0-0"><span data-offset-key="n348-0-0"><span data-text="true">I will receive a bone density scan every 2 years, though, because once you start tinkering with estrogen, brittle bones can become a thing. In the beginning, I will see Dr. Omene every couple of months (2 to start). Then, it will be every 6 months, if all goes well. In the meantime, my other docs will do their monitoring. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="alnup-0-0"><div class="_1mf _1mj" data-offset-key="alnup-0-0"><span data-offset-key="alnup-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="22kht-0-0"><div class="_1mf _1mj" data-offset-key="22kht-0-0"><b><span data-offset-key="22kht-0-0"><span data-text="true">Sad News</span></span></b></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="5k1io-0-0"><div class="_1mf _1mj" data-offset-key="5k1io-0-0"><span data-offset-key="5k1io-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="9lgn8-0-0"><div class="_1mf _1mj" data-offset-key="9lgn8-0-0"><span data-offset-key="9lgn8-0-0"><span data-text="true">It's not really sad news; I'm just bit bummed about it. When I saw Dr. McManus (also yesterday), she said that she will be retiring in July. This visit, my 6-month follow-up, would be my last one with her. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="ad92l-0-0"><div class="_1mf _1mj" data-offset-key="ad92l-0-0"><span data-offset-key="ad92l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="3dj8j-0-0"><div class="_1mf _1mj" data-offset-key="3dj8j-0-0"><span data-offset-key="3dj8j-0-0"><span data-text="true">She introduced me to Valerie Shander, my new nurse practitioner from here on out. She impressed me as being attentive and sharp, and asked all the questions you'd want your medical professional to ask (and in the right way). My new breast surgeon will be Dr. Lisa Hopkins, whom I haven't met yet. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="emhvj-0-0"><div class="_1mf _1mj" data-offset-key="emhvj-0-0"><span data-offset-key="emhvj-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="2qhh3-0-0"><div class="_1mf _1mj" data-offset-key="2qhh3-0-0"><span data-offset-key="2qhh3-0-0"><span data-text="true">Dr. McManus was dismayed to see that the burn inflammation, redness, and irritation in the inframammary fold have returned. There had been so much improvement since I started using tacrolimus. But, since late last week, there has been a gradual return of the radiation burn symptoms. It's disappointing and painful. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="1cjc8-0-0"><div class="_1mf _1mj" data-offset-key="1cjc8-0-0"><span data-offset-key="1cjc8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="8op18-0-0"><div class="_1mf _1mj" data-offset-key="8op18-0-0"><span data-offset-key="8op18-0-0"><span data-text="true">My hypothesis is that because I've been wearing compression garments to deal with the lymphedema, the skin in that area hasn't been getting the kind of airflow that it has enjoyed previously. In any case, it's inflamed and sensitive. I've resumed using the clobetasol ointment to deal with it. Most importantly, I'm off compression for a bit until it heals up, and the physical therapist needs to avoid the area. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="dud5h-0-0"><div class="_1mf _1mj" data-offset-key="dud5h-0-0"><span data-offset-key="dud5h-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="6slvl-0-0"><div class="_1mf _1mj" data-offset-key="6slvl-0-0"><span data-offset-key="6slvl-0-0"><span data-text="true">The good news about the compression, though, is that it works. I dropped a full cup size of swelling, from DDD to DD. That's a big deal. Unfortunately, I have to find some kind of balance with compression and the burn area.</span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="4tepd-0-0"><div class="_1mf _1mj" data-offset-key="4tepd-0-0"><span data-offset-key="4tepd-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="e59q1-0-0"><div class="_1mf _1mj" data-offset-key="e59q1-0-0"><span data-offset-key="e59q1-0-0"><span data-text="true">Dr. McManus had asked if I had been exercising. I do the post-surgical and lymphedema exercises every morning and night. I get out and walk daily, and have been gradually increasing my pace. I'm nearly at my regular walking rate, and will likely be there next week, all things being equal. I've also begun to try basic yoga stretches. Some I can do, some I can't yet. But, I'll keep at it, slowly. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="fsbo6-0-0"><div class="_1mf _1mj" data-offset-key="fsbo6-0-0"><span data-offset-key="fsbo6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="3avfl-0-0"><div class="_1mf _1mj" data-offset-key="3avfl-0-0"><span data-offset-key="3avfl-0-0"><span data-text="true">Otherwise, I am still healing up from the oophorectomy. There is still some discomfort when I bend or move certain ways, but each day, I feel a bit more like myself. The crazy mood swings are gone, thankfully. The hot flashes are mostly unpredictable. Some days, I'm hot all the time. Today, not so much. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="4d8p5-0-0"><div class="_1mf _1mj" data-offset-key="4d8p5-0-0"><span data-offset-key="4d8p5-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="1djga-0-0"><div class="_1mf _1mj" data-offset-key="1djga-0-0"><span data-offset-key="1djga-0-0"><span data-text="true">I have been having headaches most days, which sucks. Whether hormones, allergies, or weather, it's painful and annoying. Thankfully, they have been treatable. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="ean4v-0-0"><div class="_1mf _1mj" data-offset-key="ean4v-0-0"><span data-offset-key="ean4v-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="8kano-0-0"><div class="_1mf _1mj" data-offset-key="8kano-0-0"><span data-offset-key="8kano-0-0"><span data-text="true">Emotionally speaking, I'm feeling more like myself, but a much calmer me thanks to a lot of meditation. Recently, during my solo walks, I have been listening to inspiring guided meditations on an app called Insight Timer. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="8gqv7-0-0"><div class="_1mf _1mj" data-offset-key="8gqv7-0-0"><span data-offset-key="8gqv7-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="7qisi-0-0"><div class="_1mf _1mj" data-offset-key="7qisi-0-0"><span data-offset-key="7qisi-0-0"><span data-text="true">Even though there are the ongoing challenges of the burn resurgence and lymphedema, I feel as if I've emerged from a long haul of difficult days. Which is not to say that trying the new medication won't have it's own challenges, but I'm really hoping that they are manageable enough to stick with it for the 7-year treatment. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="cu7de-0-0"><div class="_1mf _1mj" data-offset-key="cu7de-0-0"><span data-offset-key="cu7de-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="akr3-0-0"><div class="_1mf _1mj" data-offset-key="akr3-0-0"><span data-offset-key="akr3-0-0"><span data-text="true">As always, I am grateful for all your support, love, kindness, funny jokes, silly comics, in-person visits, calls, texts, letters, adventure day company, shares of experience, prayers, and gifts. </span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="ea98l-0-0"><div class="_1mf _1mj" data-offset-key="ea98l-0-0"><span data-offset-key="ea98l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="9i317-0-0"><div class="_1mf _1mj" data-offset-key="9i317-0-0"><span data-offset-key="9i317-0-0"><span data-text="true">Remember to get your screenings, folks. Early detection is key.</span></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="b0p4g-0-0"><div class="_1mf _1mj" data-offset-key="b0p4g-0-0"><span data-offset-key="b0p4g-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="9041q-0-0"><div class="_1mf _1mj" data-offset-key="9041q-0-0"><span data-offset-key="9041q-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="ba5bq" data-offset-key="bhcrm-0-0"><div class="_1mf _1mj" data-offset-key="bhcrm-0-0"><span data-offset-key="bhcrm-0-0"><br data-text="true" /><br /></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-54356344110973068652022-05-03T22:00:00.000-04:002022-05-03T22:00:05.718-04:00The Breast Cancer Diaries, vol. 2, issue 14<p><b><span data-offset-key="9nkos-0-0"><span data-text="true">OOPH!</span></span></b></p><div data-contents="true"><div class="" data-block="true" data-editor="521n0" data-offset-key="db77l-0-0"><div class="_1mf _1mj" data-offset-key="db77l-0-0"><span data-offset-key="db77l-0-0"></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="b20pe-0-0"><div class="_1mf _1mj" data-offset-key="b20pe-0-0"><span data-offset-key="b20pe-0-0"><span data-text="true">On Friday (today is Tuesday), I had my ovaries and fallopian tubes removed in a laparoscopic surgery known as an oophorectomy. The purpose of the surgery was twofold: 1. to cut off the majority of my body's supply of estrogen and progesterone because my cancer LOVES those two hormones, and 2. to put me into menopause so that I can try taking aromatase inhibitors because I couldn't tolerate Tamoxifen. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="8bop3-0-0"><div class="_1mf _1mj" data-offset-key="8bop3-0-0"><span data-offset-key="8bop3-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="2ir0f-0-0"><div class="_1mf _1mj" data-offset-key="2ir0f-0-0"><span data-offset-key="2ir0f-0-0"><span data-text="true">Because the human body also produces estrogen in locations other than the ovaries, it will be necessary for me to try the other therapies to avoid breast cancer recurrence in the future. All that said, it's still possible to experience recurrence or metastatic breast cancer (or even a different cancer from the treatment itself or some other reason). But, my medical team and I will try to do what we can to avoid that from happening. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="et5it-0-0"><div class="_1mf _1mj" data-offset-key="et5it-0-0"><span data-offset-key="et5it-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="7r65t-0-0"><div class="_1mf _1mj" data-offset-key="7r65t-0-0"><b><span data-offset-key="7r65t-0-0"><span data-text="true">How Am I Doing Post-surgery?</span></span></b></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="2v3pc-0-0"><div class="_1mf _1mj" data-offset-key="2v3pc-0-0"><span data-offset-key="2v3pc-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="6ff0c-0-0"><div class="_1mf _1mj" data-offset-key="6ff0c-0-0"><span data-offset-key="6ff0c-0-0"><span data-text="true">When I started working with Dr. Cernadas on this surgery, she told me that I'd feel like a truck hit me for the first three days. I'm not sure I'd describe it that way. Let me know if you think what I'm describing fits her description. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="4cmm3-0-0"><div class="_1mf _1mj" data-offset-key="4cmm3-0-0"><span data-offset-key="4cmm3-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="v5en-0-0"><div class="_1mf _1mj" data-offset-key="v5en-0-0"><span data-offset-key="v5en-0-0"><span data-text="true">It's been 4 days since the ooph, and I'm pretty sore in the incision areas, especially at the belly button and the 2-3 inches below it. It's a tough spot because that's where pants hit me. Forget about wearing jeans or garments that use buttons to fasten for a month or so until I'm healed up. It's elastic-waist garments for the time being. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="afpsq-0-0"><div class="_1mf _1mj" data-offset-key="afpsq-0-0"><span data-offset-key="afpsq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="1v14e-0-0"><div class="_1mf _1mj" data-offset-key="1v14e-0-0"><span data-offset-key="1v14e-0-0"><span data-text="true">It's also going to be very loosely fitted garments because I'm still distended from the surgery. The doc used gas to blow up my belly like a balloon to better see and perform the surgery. They vacuumed most of the gas out, but immediately after the surgery, there was some left. That whole area may take a couple of weeks to get back to normal. According to this site: </span></span><span class="py34i1dx"><span data-offset-key="1v14e-1-0"><span data-text="true">https://goldcoastprivatehospital.com.au/blogs/tips-and-tricks-laparoscopic-surgery</span></span></span><span data-offset-key="1v14e-2-0"><span data-text="true">, my intestines were shocked a bit and became distended by the surgery. It's just going to take time for everything to settle back down again. Until then, it's uncomfortable, and I look like I'm pregnant. Oh the irony. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="aj8gm-0-0"><div class="_1mf _1mj" data-offset-key="aj8gm-0-0"><span data-offset-key="aj8gm-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="ff9tc-0-0"><div class="_1mf _1mj" data-offset-key="ff9tc-0-0"><span data-offset-key="ff9tc-0-0"><span data-text="true">The twin side incision points are about an inch north of where each leg meets my torso. They are lower than expected, but small. They're not as bruised as the belly button area is. Thanks to the arnica I've been applying, the very large bruise surrounding my belly button and extending 3 inches south is gradually fading. (The very large bruise, about 4 inches in diameter, on my right forearm from the IV is a different story. That's still dark purple and taking longer to fade.) Dr. Cernadas removed the ovaries and the tubes from the middle incision, which it why it had to be larger (and, consequently, more uncomfortable). </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="7pcju-0-0"><div class="_1mf _1mj" data-offset-key="7pcju-0-0"><span data-offset-key="7pcju-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="a1dsq-0-0"><div class="_1mf _1mj" data-offset-key="a1dsq-0-0"><span data-offset-key="a1dsq-0-0"><span data-text="true">As you'd expect if you've been following along, I did not take any narcotics, nor opiates as part of the surgery or afterward. It's been Alleve and SIU (sucking it up) for me. Thankfully, the pain has been manageable enough that way. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="fp42s-0-0"><div class="_1mf _1mj" data-offset-key="fp42s-0-0"><span data-offset-key="fp42s-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="5749n-0-0"><div class="_1mf _1mj" data-offset-key="5749n-0-0"><span data-offset-key="5749n-0-0"><span data-text="true">After the Alleve, what has been helping the most has been walking around. I posted one of the walks I took with Patty the day after the surgery at Leonard J. Buck gardens (if you're in the NJ area for the next few weeks, it's a must-see). It was a slow, painful walk around the bottom of the garden, but the weather was so fantastic, and so many plants and trees were blooming that it made for an excellent distraction for a while. Did a lot for my spirit.</span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="bmrm6-0-0"><div class="_1mf _1mj" data-offset-key="bmrm6-0-0"><span data-offset-key="bmrm6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="j8ve-0-0"><div class="_1mf _1mj" data-offset-key="j8ve-0-0"><span data-offset-key="j8ve-0-0"><span data-text="true">The following day, Sunday afternoon, Patty and I met up with Jim at Colonial Park for another slow walk. It was a nice, long walk with a rest on one of the many well-placed benches in the rose garden. Today, I took two slow walks around my neighborhood. The second walk, also with my pal Jim, was shorter because I was hurting a bit and needed to get home and rest. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="80v7o-0-0"><div class="_1mf _1mj" data-offset-key="80v7o-0-0"><span data-offset-key="80v7o-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="acs43-0-0"><div class="_1mf _1mj" data-offset-key="acs43-0-0"><span data-offset-key="acs43-0-0"><span data-text="true">Sitting is very uncomfortable. In fact, I've been writing this entry over the course of 12 hours, with some long breaks in between (especially when Jim came for dinner). Mainly, I've had to get up and walk around because it becomes painful after a few minutes sitting in front of the computer. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="427mf-0-0"><div class="_1mf _1mj" data-offset-key="427mf-0-0"><span data-offset-key="427mf-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="15v27-0-0"><div class="_1mf _1mj" data-offset-key="15v27-0-0"><span data-offset-key="15v27-0-0"><span data-text="true">The first night of the surgery, I was instructed to sleep sitting up in the recliner so that I wouldn't end up with back or shoulder pain from the inflation gas. I tried it until 1 am, but gave up because I was so uncomfortable that I ended up pacing around the first floor until I was utterly exhausted. (I watched the Andy Warhol Diaries on Netflix, which wasn't adequately distracting, but interesting nonetheless, especially from an archival point of view.) Finally, I very slowly and painfully climbed the stairs, and thought long and hard about how I would get on top of my bed. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="3c7bv-0-0"><div class="_1mf _1mj" data-offset-key="3c7bv-0-0"><span data-offset-key="3c7bv-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="cntdf-0-0"><div class="_1mf _1mj" data-offset-key="cntdf-0-0"><span data-offset-key="cntdf-0-0"><span data-text="true">My bed is pretty high off the ground thanks to a tall mattress and a 3-inch memory foam topper, plus bedding. I'm 5'2" on a good day, so it's normally a bit of a challenge. I hauled myself up there, trying not to make noise from the pain and wake Patty sleeping in the room across the hall. I lay on my back for several hours, not sleeping. I did breathing exercises and meditated. It was a rough first night, but being in my bed rather than trying to make a go of it on the couch any longer was an improvement. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="1cju1-0-0"><div class="_1mf _1mj" data-offset-key="1cju1-0-0"><span data-offset-key="1cju1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="67l83-0-0"><div class="_1mf _1mj" data-offset-key="67l83-0-0"><span data-offset-key="67l83-0-0"><span data-text="true">Lower abdominal surgery is no picnic, even laparoscopically. In addition to the belly pain, I also have some groin pain and stiffness on the right side due to my right leg's position during the surgery, according to Dr. Cernadas' fellow. It makes going upstairs more challenging than just the surgical pain. Same with sitting.</span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="2r4re-0-0"><div class="_1mf _1mj" data-offset-key="2r4re-0-0"><span data-offset-key="2r4re-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="81dv-0-0"><div class="_1mf _1mj" data-offset-key="81dv-0-0"><span data-offset-key="81dv-0-0"><span data-text="true">There's another piece of this whole experience that made it even more of a challenge. On the night before the surgery, I got my period. If I said my body betrayed me yet again, I probably wouldn't get an argument from most women. Insult to injury? Sure, I'd go with that. Going out with a bang? Well, now you've gone too far. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="fhufp-0-0"><div class="_1mf _1mj" data-offset-key="fhufp-0-0"><span data-offset-key="fhufp-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="1vcq0-0-0"><div class="_1mf _1mj" data-offset-key="1vcq0-0-0"><span data-offset-key="1vcq0-0-0"><span data-text="true">The thing about having your period at any time, not just during surgery, is that your body is so much more sensitive to pain. Just try going to the dentist for a cleaning or a procedure during your cycle. It sucks. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="7fbje-0-0"><div class="_1mf _1mj" data-offset-key="7fbje-0-0"><span data-offset-key="7fbje-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="bqlvb-0-0"><div class="_1mf _1mj" data-offset-key="bqlvb-0-0"><span data-offset-key="bqlvb-0-0"><span data-text="true">For the first two days after the surgery, I was uncomfortable in many ways. The nature of dealing with the hygienics of being in my cycle and not being able to bend my body without a great deal of pain really sucked. I'm so glad it was my last period ever. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="ct3pa-0-0"><div class="_1mf _1mj" data-offset-key="ct3pa-0-0"><span data-offset-key="ct3pa-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="6600n-0-0"><div class="_1mf _1mj" data-offset-key="6600n-0-0"><b><span data-offset-key="6600n-0-0"><span data-text="true">Things They Didn't Tell Me</span></span></b></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="cr6cn-0-0"><div class="_1mf _1mj" data-offset-key="cr6cn-0-0"><span data-offset-key="cr6cn-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="8d21e-0-0"><div class="_1mf _1mj" data-offset-key="8d21e-0-0"><span data-offset-key="8d21e-0-0"><span data-text="true">I didn't know I'd be catheterized. I should have expected it. I had been for the breast surgery, but didn't feel a thing afterward. Not so this time. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="dvevv-0-0"><div class="_1mf _1mj" data-offset-key="dvevv-0-0"><span data-offset-key="dvevv-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="ac497-0-0"><div class="_1mf _1mj" data-offset-key="ac497-0-0"><span data-offset-key="ac497-0-0"><span data-text="true">You know how after you've gone through recovery and the nurses won't let you leave the hospital until you've peed, eaten something, and had something to drink (not necessarily in that order)? That's never been an issue for me, and wasn't this time either, until I sat down and experienced burning I've never felt before. I thought there was something seriously wrong. I couldn't tell if I was bleeding from my urethra or not because I was already bleeding menstrually. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="27g4v-0-0"><div class="_1mf _1mj" data-offset-key="27g4v-0-0"><span data-offset-key="27g4v-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="821rk-0-0"><div class="_1mf _1mj" data-offset-key="821rk-0-0"><span data-offset-key="821rk-0-0"><span data-text="true">Turns out, it's pretty common to have this painful pee burning afterward. And, you know what relieves it (EVENTUALLY)? Drinking lots of water and peeing more. Here, have some more pain with your pain! The burning lasted all night. Thankfully, by Saturday morning, it was hardly there and eventually disipated completely. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="3croe-0-0"><div class="_1mf _1mj" data-offset-key="3croe-0-0"><span data-offset-key="3croe-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="8jdgi-0-0"><div class="_1mf _1mj" data-offset-key="8jdgi-0-0"><span data-offset-key="8jdgi-0-0"><span data-text="true">While we're down there, I also wish I'd been warned that my intestines might go on strike for a few days. Which they did. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="6lgmt-0-0"><div class="_1mf _1mj" data-offset-key="6lgmt-0-0"><span data-offset-key="6lgmt-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="tdqi-0-0"><div class="_1mf _1mj" data-offset-key="tdqi-0-0"><span data-offset-key="tdqi-0-0"><span data-text="true">When you're already bloated from menstruation and surgery where they literally blow you up with gas, it's hard to tell if some of the swelling might also be because you haven't evacuated your bowels since the morning of your surgery. By Sunday, I was getting a bit nervous because I'm one of those very regular people. I eat a high fiber diet and drink kefir. You can set your watch by me. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="ee7fp-0-0"><div class="_1mf _1mj" data-offset-key="ee7fp-0-0"><span data-offset-key="ee7fp-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="82atf-0-0"><div class="_1mf _1mj" data-offset-key="82atf-0-0"><span data-offset-key="82atf-0-0"><span data-text="true">A fellow librarian, whose mom is a pharmacist, recommended a stool softener. I settled on a laxative that didn't look too bad chemically and took a teeny pink pill with a bottle of water Sunday evening. It didn't agree with me, and I felt queasy and crampy, but I was determined to jumpstart my system. At midnight, it was only minimally effective, so I took another teeny pink pill (the instructions said 1 to 3 for an adult dosage) and drank another bottle of water. I didn't sleep the entire night for feeling poorly. At 6 a.m. on Monday, same deal. I took the last pill. By 9, I was in and out of the bathroom feeling like total crap (I know) and having an "everybody out!" day. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="5mrqv-0-0"><div class="_1mf _1mj" data-offset-key="5mrqv-0-0"><span data-offset-key="5mrqv-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="f8an0-0-0"><div class="_1mf _1mj" data-offset-key="f8an0-0-0"><span data-offset-key="f8an0-0-0"><span data-text="true">The cramps were so painful and my body was already so pissed off at me that I cried a bit. Then, I accepted my fate and put a good novel in the bathroom to try and distract myself. It helped some. Finally, by around 6 pm on Monday, it stopped, and I was completely wrung out.</span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="5qko2-0-0"><div class="_1mf _1mj" data-offset-key="5qko2-0-0"><span data-offset-key="5qko2-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="6b7h3-0-0"><div class="_1mf _1mj" data-offset-key="6b7h3-0-0"><span data-offset-key="6b7h3-0-0"><span data-text="true">On the flip side of that coin, I slept better last night than I have in many months. I awoke feeling somewhat like myself with a bit of energy despite the pain in my abdomen and groin. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="43vf6-0-0"><div class="_1mf _1mj" data-offset-key="43vf6-0-0"><span data-offset-key="43vf6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="1ks90-0-0"><div class="_1mf _1mj" data-offset-key="1ks90-0-0"><span data-offset-key="1ks90-0-0"><span data-text="true">Thanks tons to Patty Scott who stayed with me from Thursday to Monday, took me to the hospital and told me good things while I was anxious, cared for me in so many ways in the days after the surgery, and showed up for me as my spiritual sister. I'm very grateful to have such a dear and kind friend. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="8foss-0-0"><div class="_1mf _1mj" data-offset-key="8foss-0-0"><span data-offset-key="8foss-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="92lj9-0-0"><div class="_1mf _1mj" data-offset-key="92lj9-0-0"><span data-offset-key="92lj9-0-0"><span data-text="true">Thanks also to Jim Nordhausen for being an exceedingly helpful dear friend, too. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="3k1fq-0-0"><div class="_1mf _1mj" data-offset-key="3k1fq-0-0"><span data-offset-key="3k1fq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="7c0gi-0-0"><div class="_1mf _1mj" data-offset-key="7c0gi-0-0"><span data-offset-key="7c0gi-0-0"><span data-text="true">Thanks to everyone who has sent good vibes, kind words and thoughts, love, hugs, funny bits, and caring comments. Thanks especially to those who continue to check in on me. I appreciate all of it. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="2atn8-0-0"><div class="_1mf _1mj" data-offset-key="2atn8-0-0"><span data-offset-key="2atn8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="5364h-0-0"><div class="_1mf _1mj" data-offset-key="5364h-0-0"><span data-offset-key="5364h-0-0"><span data-text="true">Don't forget to get your screenings. Early detection is key. </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="7a0f6-0-0"><div class="_1mf _1mj" data-offset-key="7a0f6-0-0"><span data-offset-key="7a0f6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="f66m2-0-0"><div class="_1mf _1mj" data-offset-key="f66m2-0-0"><span data-offset-key="f66m2-0-0"><span data-text="true"> </span></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="gfrp-0-0"><div class="_1mf _1mj" data-offset-key="gfrp-0-0"><span data-offset-key="gfrp-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="2u0n4-0-0"><div class="_1mf _1mj" data-offset-key="2u0n4-0-0"><span data-offset-key="2u0n4-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="191pq-0-0"><div class="_1mf _1mj" data-offset-key="191pq-0-0"><span data-offset-key="191pq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="f39j0-0-0"><div class="_1mf _1mj" data-offset-key="f39j0-0-0"><span data-offset-key="f39j0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="71ku8-0-0"><div class="_1mf _1mj" data-offset-key="71ku8-0-0"><span data-offset-key="71ku8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="cj45a-0-0"><div class="_1mf _1mj" data-offset-key="cj45a-0-0"><span data-offset-key="cj45a-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="521n0" data-offset-key="aemvj-0-0"><div class="_1mf _1mj" data-offset-key="aemvj-0-0"><span data-offset-key="aemvj-0-0"><br data-text="true" /><br /></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-41788046625090487932022-04-23T14:25:00.001-04:002022-04-23T17:27:55.928-04:00The Breast Cancer Diaries, vol. 2, issue 13<p></p><div data-contents="true"><div data-block="true" data-editor="cggoi" data-offset-key="7bpsi-0-0"><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">It's been several weeks since I've written a full post (the Quickies are useful for FB, but don't appear on my Here and There blog). And, a LOT of things have happened since then. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><b><span data-offset-key="7bpsi-0-0"><span data-text="true">Status of the Inframammary Fold</span></span></b></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Thanks to the Tacrolimus ointment, I haven't had to use the steroid ointment any more. It's been pretty well miraculous, but I have to keep using it otherwise the burns flare back up again. The range of skin colors under my left breast changes from day to day, but there has been definite improvement, and for that I'm grateful. I may end up experiencing permanent skin color changes of the entire breast, but it's such small potatoes compared to everything else that I just don't care. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">I will see Dr. Singh on Monday for my monthly visit with him. It will be nice to report that I only experienced severe burning and pain this month after I got my third J&J shot. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"><b>Ooph! and Genes Update</b> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">As of today, I still don't know what the status is with the genetic testing for Lynch's Syndrome. It's been frustrating to wait for nearly a month without those results, and it's been anxiety provoking to be in limbo about the kind of surgery I'll have next week.
Yesterday, I reached out to the genetic testing company, Invitae, and heard back from customer service. They said the results will return on or before May 3. My surgery is April 29th. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">I sat with it for a bit before I made a decision. I decided that I'll go ahead with the oophorectomy (ovaries and tubes out) unless the results come back by end of day Tuesday and say that I've got Lynch's. In that case, it's a hysterectomy. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">When I met with Dr. Cernadas on the 12th, she said that if I do need a hysterectomy, I can keep the same surgery date, and she'll do it laproscopically using a fancy robot. She also told me a lot about Lynch's Syndrome that was very helpful. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Lymphedema</span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Thanks to all the damage I've experienced due to surgery, removal of two lymph nodes, and especially the radiation burns, I'm now being treated for lymphedema of my left breast and arm. Twice a week (with a break for the surgery and healing afterward), I'm meeting with talented physical therapist and lymphedema specialist Manasee Korgaonkar. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">The first time we met, Manassee asked me many questions and performed a fair number of measurements. The difference between my two arms is very small, but I'm experiencing pain from my inner elbow up to my shoulder on the left side, as well as in the breast. She said the pain is the result of the strain of my lymph system to remove the fluid that's causing the swelling, primarily in my left breast and armpit area. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">The thing is that it's not hugely noticable in appearance (although Manasee's trained eye noticed the breast swelling as soon as I removed my bra during the exam). But it's painful all the time now. The worst is first thing in the morning. Sometimes, I can barely lift my arm over my head before I do the exercises. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Other than the exercises that I received from St. Peter's in advance of the surgery, so far, the treatment is gentle movement and massage by Manasee. The goal is to move the lymph fluid swelling away from the breast and armpit to be absorbed by the lymph system throughout my torso. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Prior to the burns and after the seroma (remember my seroma? I know. Seems like a year ago already.), I had been wearing compressive jog bras, which had been helping. However, the burns prevented me from wearing any such clothing from January until this week. Now that the Tacrolimus has worked magic, I'm returning to wearing them again to help with the treatment. Manasee gave me a gel pad that looks and feels like silicone, but isn't, to wear between my burned skin and the band of the bra. I've tried it a couple of times, and I'm undecided if I'm going to keep wearing it. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Manasee also told me to buy some lymphedema-specific garments to wrap around me while I sleep, as well as different, compressive bras. So much fun. I'm not sure how that will work after the surgery, but I'll ask Dr. Cernadas.
Manasee also said to practice deep breathing and work on my posture. It also will help with the post-lower abdomical surgery healing. I already do this a few times daily for extended periods thanks to meditation. I'll just have to focus on it a few more times a day. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><b><span data-offset-key="7bpsi-0-0"><span data-text="true">Mental Health</span></span></b></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Because it's been getting rough to deal with the runaway train that has become all the medical stuff, I've returned to talking with my therapist on a weekly basis. So far, it's been powerfully effective. We've always worked well together, but it definitely works best when I hit the ground running and go for the deep dive. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">When I talk with folks about what's happening right now, what I hear most is, "That's a lot." Yes, it is. It's a whole lot.
I'm especially down about the lymphedema bit. Manasee said that from here on out, I have to be really careful about how I treat my left arm and breast so that I don't risk further swelling and pain. I had been looking forward to working out like I used to, but that's just not how it's going to be. I'm having a tough time wrapping my mind around that. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">Prior to making the decision about the surgery, I had been anxious and frustrated about not having the genetic testing results. I know what it's like to live in limbo about all kinds of things, but the stress level was just getting to be too much for me. Making that decision was empowering and relieved some of the stress. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-0-0"><span data-text="true">I also had been filling so much of this month with many social engagements, adventure days, and activites. I needed to slow down and deal with everything. At this point, I only have one more adventure day before the surgery (tomorrow with </span></span><span class="diy96o5h" data-offset-key="7bpsi-1-0" spellcheck="false" start="5738"><span data-offset-key="7bpsi-1-0"><span data-text="true">Thom Curtis</span></span></span><span data-offset-key="7bpsi-2-0"><span data-text="true"> at the NY Botanical Garden), and I'm going to enjoy it fully before this extremely full surgery week. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-2-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-2-0"><span data-text="true">Last, but far from least, thanks millions in advance to my very dear friend </span></span><span class="diy96o5h" data-offset-key="7bpsi-3-0" spellcheck="false" start="5929"><span data-offset-key="7bpsi-3-0"><span data-text="true">Patty Scott</span></span></span><span data-offset-key="7bpsi-4-0"><span data-text="true">, who will be coming to take me for the surgery and care for me for the first couple of days. I'm incredibly fortunate to have her in my life, as well as a handful of other wonderful folks who will be showing up for me in my time of need. </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-4-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="7bpsi-0-0"><span data-offset-key="7bpsi-4-0"><span data-text="true">Thanks to you, dear reader, for keeping up with my Breast Cancer Diaries. Thank you for all your kind support in all the ways you give it.
Don't forget your screenings. Early detection is key.</span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-45221637243917812802022-04-03T19:18:00.006-04:002022-04-03T19:18:41.232-04:00The Breast Cancer Diaries, vol. 2, issue 12<p></p><div data-contents="true"><div class="" data-block="true" data-editor="7dd2" data-offset-key="clbcc-0-0"><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><b><span data-offset-key="clbcc-1-0"><span data-text="true">Updates and Scary Bits</span></span></b></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Last week, it was all docs, all cancer, all the time. Those weeks are exhausting both physically and mentally. This update, as most of them are, is a mix of good and crap news, with a funny bit at the end. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><b><span data-offset-key="clbcc-1-0"><span data-text="true">Status of the Inframammary Fold</span></span></b></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Unfortunately, after I wrote my last BCD entry, the burns flared back up again during the week off the steroid. Now that I'm ending a week "on," it's much calmer.</span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">I had my what has now become a monthly follow-up with Dr. Singh last Monday. The most significant change is that it took a few days longer than usual to break out into an itchy, painful rash in the burn area. Also, it wasn't as bad as the previous month, so I'm grateful for that. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Dr. Singh said that it will be a few more months yet until this heals up, which means the week on/week off schedule will continue. I asked him what could be done about the flare ups during the week off. He prescribed Tacrolimus ointment. It's a different kind of drug than what I've used so far, an immunosuppressant. When the flare ups return, I'll give it a try. I return to see Dr. Singh toward the end of this month, hopefully, with good news. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"><b>Ooph! and Genes</b> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">The oophorectomy has now been scheduled for April 29th. I am very grateful for my dear friend Patty who volunteered right away to accompany me and take care of me after the surgery. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">The surgery itself may be subject to change if the results of the genetic testing leans in certain directions. I was interviewed by one of the Cancer Institute's genetic counselors, Sandra, on March 31. Prior to the interview, I had answered a LOT of family medical history questions (thanks to Mom for help there) and provided my own details. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Based on all the information she was given, in addition to our interview, Sandra said they would not only cast a broad net of panel testing because I qualify, but also test for some pretty specific situations, such as the BRCA mutations, the CDKN2A gene, and a very scary Lynch Syndrome. While it's unlikely I'm positive for BRCA since no one in my family that I know of has breast cancer (and my beloved, late Aunt Elaine tested negative during her pancreatic cancer), the BRCA tests have become much more sensitive in the past few years. And, since I'm having my ovaries out, it's a bit of a non-issue if I am, especially since all my medical professionals will be on the lookout for breast cancer recurrence in the same and other breast. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">The CDKN2A gene raises the lifetime risk of having pancreatic cancer and melanoma. I've already had a melanoma removed from my left hand (right in the crease where the thumb meets the palm) back in my early 20s, which checks one box. I know, I'm a bit glib about these things now, but when I was having the conversation with Sandra, my guess is that my blood pressure wasn't my usual 117 over 70. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Lynch Syndrome is particularly awful. According to Sandra, among other scary things, it raises the risk of colon cancer to 70-75%. Think colonoscopies annually rather than every 3 to 5. Here's the kicker, though, if I come up positive for Lynch Syndrome, I'd have a 50-60% chance of developing endometrial (think uterine) cancer. Sandra advised that I consider a hysterectomy rather than an oophorectomy, if Lynch Syndrome is positive. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">That's a whole other kettle of fish than an oophorectomy. I was knocked off my pins for a bit when I heard that. But, I'm back to practicing what Rose calls "Just-in-Time Worrying." I will worry if there's something to worry about. Otherwise, it's wasted energy and undesirable stress. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">All things considered, I'd rather know than not know. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"><b>Perio News</b> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"></span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Back when Dr. Omene was talking about having me try Zometa (the osteoporosis drug that can cause necrosis of the jaw), I had made an appointment with my awesome periodontist Dr. Peter Cornick (if you ever need extensive dental/gum work, he's your guy). I hadn't seen him since 2017 since all has been well with me, periodontically speaking. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">I spent two hours in his office Thursday, which cost me a mint. His assistant took a full set of X-rays, looking more extensively at my jaw than my dentist typically does. Then, Dr. Cornick spent a good 40 minutes with me talking through the health of my teeth and taking measurements (think poking into the gums with a tiny pin). Finally, I had a deep cleaning. Even though things were in good shape, Dr. Cornick wants me to come 2x annually in addition to my biannual trips to the dentist. He's seen cancer therapies cause all manner of dental/oral shenanigans. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">I won't mind going to see Dr. Cornick because he's just the nicest person, and we talk skiing. However, it's going to add up very quickly because my dental insurance only covers 2 visits a year (and not all of that either). On the other hand, it's a lot less expensive than having dental work done (I met Dr. Cornick because I had to have a set of crowns replaced and an implant in the front of my mouth. It was a significant investment of money and time.) </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><b><span data-offset-key="clbcc-1-0"><span data-text="true">The Funny Bit at the End (well, Patty and I think it's funny) </span></span></b></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"></span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">A number of years ago, I had a second surgery on my right foot. It didn't heal well, and subsequently predicts when it's going to rain (as does the migraine now taking up residence in the left side of my face as it's storming outside). Joining my menagerie of barometric predictors is Lefty. Yes, it's true. It took me a couple of weeks to figure it out because there has been premenstrual breast pain, intermittent surgical healing pain, and, of course, radiation pain. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">But, after keeping an even more detailed health journal than usual (however can that be, I just don't know), I have discovered that I have a weather boob. A boobrometer. I get the burning, stabbing pains through Lefty when the barometric pressure changes significantly. It does suck when it's happening. I won't deny it. However, I won't NOT laugh about the reason. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Life is short, Friends. I've got to find the funny where I can. Best to laugh along with me. And, it's funny to say boobrometer. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-1-0"><span data-text="true">Thanks, as ever for all your kindness, support, prayers, love, and friendship. I always appreciate your positive feedback. I haven't put the wish list up in a while, but a friend asked for it, so here it is: </span></span><span class="py34i1dx"><span data-offset-key="clbcc-2-0"><span data-text="true">https://www.amazon.com/hz/wishlist/ls/1F3HNL09N3G7C</span></span></span><span data-offset-key="clbcc-3-0"><span data-text="true">. For those who wish to support other organizations instead, the organization that provides my free breast cancer support group (which has been so helpful) is Hope Connections: </span></span><span class="py34i1dx"><span data-offset-key="clbcc-4-0"><span data-text="true">https://hopeconnectionsforcancer.org/</span></span></span><span data-offset-key="clbcc-5-0"><span data-text="true">. </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-5-0"><span data-text="true"> </span></span></div><div class="_1mf _1mj" data-offset-key="clbcc-0-0"><span data-offset-key="clbcc-5-0"><span data-text="true">Don't forget your screenings. Early detection is key.</span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-60024685797902654242022-03-24T21:08:00.000-04:002022-03-24T21:08:03.304-04:00The Breast Cancer Diaries, vol. 2, issue 11<div data-contents="true"><div class="" data-block="true" data-editor="5g3ai" data-offset-key="bpq5r-0-0"><div class="_1mf _1mj" data-offset-key="bpq5r-0-0"><span data-offset-key="bpq5r-0-0"><span data-text="true"><b>Next Up, Bilateral Oophorectomy</b> </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="fr6r5-0-0"><div class="_1mf _1mj" data-offset-key="fr6r5-0-0"><span data-offset-key="fr6r5-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="5eu4l-0-0"><div class="_1mf _1mj" data-offset-key="5eu4l-0-0"><span data-offset-key="5eu4l-0-0"><span data-text="true">It has been nearly a month since the last update to the BCD. Since I've had some doctors' visits and news this week, I figured it was time for the next installment. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="fp018-0-0"><div class="_1mf _1mj" data-offset-key="fp018-0-0"><span data-offset-key="fp018-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="ck6pp-0-0"><div class="_1mf _1mj" data-offset-key="ck6pp-0-0"><b><span data-offset-key="ck6pp-0-0"><span data-text="true">But First, the Burns and Other Concerns</span></span></b></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="fm2bl-0-0"><div class="_1mf _1mj" data-offset-key="fm2bl-0-0"><span data-offset-key="fm2bl-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="5mdkv-0-0"><div class="_1mf _1mj" data-offset-key="5mdkv-0-0"><span data-offset-key="5mdkv-0-0"><span data-text="true">Here's the latest update on the radiation burns in what I will now be calling the inframammary fold (its medical name). At the moment, 4 days off the steroid ointment, there is much improvement. I am very glad for it, but also wary because I've been here before right before it flares right back up. But for now, I'll take it. I see Dr. Singh for a month follow-up early next week.</span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="a74hn-0-0"><div class="_1mf _1mj" data-offset-key="a74hn-0-0"><span data-offset-key="a74hn-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="qbsu-0-0"><div class="_1mf _1mj" data-offset-key="qbsu-0-0"><span data-offset-key="qbsu-0-0"><span data-text="true">There has been a great deal of pain throughout the breast, especially premenstrually. I saw Dr. McManus (my awesome breast surgeon) on Tuesday, March 22, and she said that I could be experiencing pain for 6 to 9 months because that's how long it typically takes to heal from radiation treatment. Also, she said that sometimes, women take up to 2 years to heal. Yes, I know. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="at9km-0-0"><div class="_1mf _1mj" data-offset-key="at9km-0-0"><span data-offset-key="at9km-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="9bcif-0-0"><div class="_1mf _1mj" data-offset-key="9bcif-0-0"><span data-offset-key="9bcif-0-0"><span data-text="true">I had returned to Dr. McManus for a couple of reasons, but primarily because I was concerned that I might have lymphedema in the breast and in my left arm. She examined me at length and said that while she believes that what is going on is skin edema, and not lymphedema in the breast, she wants me to see a lymphedema physical therapist about my left arm. The arm isn't presenting with swelling, just pain running from my elbow up to my armpit and less range of motion than the right arm (not a huge difference, but noticeable to me). </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="b905l-0-0"><div class="_1mf _1mj" data-offset-key="b905l-0-0"><span data-offset-key="b905l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="1u7a2-0-0"><div class="_1mf _1mj" data-offset-key="1u7a2-0-0"><span data-offset-key="1u7a2-0-0"><span data-text="true">The specialist in lymphedema she recommended is Manasee Korgaonkar. Unfortunately, while she's at St. Peter's like Dr. McManus, she's not in my Cigna network, so that will be out of pocket for a chunk of change. Hopefully, she'll give me a bunch of exercises to do, and I won't need many sessions. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="14smq-0-0"><div class="_1mf _1mj" data-offset-key="14smq-0-0"><span data-offset-key="14smq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="3962q-0-0"><div class="_1mf _1mj" data-offset-key="3962q-0-0"><span data-offset-key="3962q-0-0"><span data-text="true">Dr. McManus was very pleased with how the rest of my skin above the inframammary fold was healing from the radiation. In fact, she said that whatever my regimen was (just Cetaphil eczema cream at this point, everywhere except the burned area), it was doing much better than typical treatments at this point in healing, especially in terms of discoloration.</span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="sqkv-0-0"><div class="_1mf _1mj" data-offset-key="sqkv-0-0"><span data-offset-key="sqkv-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="6e4qh-0-0"><div class="_1mf _1mj" data-offset-key="6e4qh-0-0"><span data-offset-key="6e4qh-0-0"><span data-text="true">However, she said that it's likely that the radiation damage to the areola is permanent and the topography will remain changed. The painful hypersensitivity to that area and the nipple itself is slowly calming down, for which I am very grateful. It's gone from an 11 to a 7. So, still painful, but not screamingly painful. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="902gl-0-0"><div class="_1mf _1mj" data-offset-key="902gl-0-0"><span data-offset-key="902gl-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="384rg-0-0"><div class="_1mf _1mj" data-offset-key="384rg-0-0"><span data-offset-key="384rg-0-0"><span data-text="true">Oh, I learned something from a friend who works at the Cancer Institute. Cancer brain, even for folks like me who haven't had chemo, is a real thing. Turns out, because my body's systems are working so hard on healing the stuff below my neck, the brain isn't getting the same level of attention as it usually does. Hence, I have trouble remembering words and feel genuinely stupid on any given day (and while I've had memory problems for a good long time, I'm generally a pretty sharp knife). </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="r3eq-0-0"><div class="_1mf _1mj" data-offset-key="r3eq-0-0"><span data-offset-key="r3eq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="738cr-0-0"><div class="_1mf _1mj" data-offset-key="738cr-0-0"><span data-offset-key="738cr-0-0"><span data-text="true">A year ago, I'd probably be a bit miffed if you finished my sentence for me or tried to say the word I'm missing. Now, I'm grateful for it. Go right ahead, folks, I'll take the leg up. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="2jqg8-0-0"><div class="_1mf _1mj" data-offset-key="2jqg8-0-0"><span data-offset-key="2jqg8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="9r9be-0-0"><div class="_1mf _1mj" data-offset-key="9r9be-0-0"><b><span data-offset-key="9r9be-0-0"><span data-text="true">The Crappy Bit</span></span></b></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="92fdk-0-0"><div class="_1mf _1mj" data-offset-key="92fdk-0-0"><span data-offset-key="92fdk-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="5srvd-0-0"><div class="_1mf _1mj" data-offset-key="5srvd-0-0"><span data-offset-key="5srvd-0-0"><span data-text="true">The last bit of help Dr. McManus gave me was huge. Prior to my appointment with her, I'd seen yet another gynecologist in the form of Dr. Kira Moore, who is the successor to my now-retired Dr. Tom Magliaro, who was the nicest gyno on two feet. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="6bod6-0-0"><div class="_1mf _1mj" data-offset-key="6bod6-0-0"><span data-offset-key="6bod6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="d5an7-0-0"><div class="_1mf _1mj" data-offset-key="d5an7-0-0"><span data-offset-key="d5an7-0-0"><span data-text="true">Dr. Moore is young and inexperienced in a number of ways. She did not know how to speak with a cancer patient. For one example, she asked who was making the decisions for me. I said, "Me! I'm making the decisions for me!" She corrected herself and asked who my medical oncologist was. She also was unkind and rude, cutting me off as I tried to answer her questions. She focused solely on what she called "the business of medicine," and not the patient and her needs to discuss having her ovaries removed to help prevent future breast cancer. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="1oe0r-0-0"><div class="_1mf _1mj" data-offset-key="1oe0r-0-0"><span data-offset-key="1oe0r-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="46vbe-0-0"><div class="_1mf _1mj" data-offset-key="46vbe-0-0"><span data-offset-key="46vbe-0-0"><span data-text="true">I left with a very bad taste in my mouth and was pretty upset by the experience. I returned home to get my head on straight (and to calm down before I drove out to Flemington in the loaner Subaru to pick up my Impreza, which needed front brakes and some other work--bye-bye tax refunds!). On my return trip, I spoke with a friend from my breast cancer support group, who was exactly the right person to speak with at that moment (thanks N!).</span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="7f5pt-0-0"><div class="_1mf _1mj" data-offset-key="7f5pt-0-0"><span data-offset-key="7f5pt-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="4jaid-0-0"><div class="_1mf _1mj" data-offset-key="4jaid-0-0"><span data-offset-key="4jaid-0-0"><span data-text="true">So, I was very appreciative of Dr. McManus' recommendation. In fact, she said that if she was having my oophorectomy, she'd want Dr. Cernadas' hands doing it. Subsequently, yesterday, I spent 4 hours trying to get all my pertinent medical records over to Dr. Cernadas' office so that she could review them prior to seeing me this afternoon. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="ekl3l-0-0"><div class="_1mf _1mj" data-offset-key="ekl3l-0-0"><span data-offset-key="ekl3l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="55lk0-0-0"><div class="_1mf _1mj" data-offset-key="55lk0-0-0"><span data-offset-key="55lk0-0-0"><span data-text="true">Just as an aside, I'm convinced that saying Dr. McManus' name enough made the impossible possible. When I initially contacted Dr. Cernadas' very busy office on Tuesday afternoon, my contact there said that the soonest she could see me would be September. I told her my story (Readers' Digest condensed version) and told her what Dr. McManus had told me. She said she'd talk with her manager and call me in a couple of hours. She did, and I had a consult 2 days later. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="e95p3-0-0"><div class="_1mf _1mj" data-offset-key="e95p3-0-0"><span data-offset-key="e95p3-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="3q0df-0-0"><div class="_1mf _1mj" data-offset-key="3q0df-0-0"><span data-offset-key="3q0df-0-0"><span data-text="true">Immediately after meeting Dr. Cernadas, I felt very much at ease. She had read all those records that I worked hard to get to her, and went over them with me with a high degree of understanding, especially with regard to my sensitivity to medications. She got it all and clearly. I can't adequately express to you the relief I felt when she said, "This should be the least of your problems." </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="1032p-0-0"><div class="_1mf _1mj" data-offset-key="1032p-0-0"><span data-offset-key="1032p-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="ea0eh-0-0"><div class="_1mf _1mj" data-offset-key="ea0eh-0-0"><span data-offset-key="ea0eh-0-0"><span data-text="true">She described the laparoscopic procedure, but did caution me that if there was scar tissue involving major organs or the colon, she'd have to make a small incision at the bikini line to perform the surgery that way (and the healing time would be longer). But, it's likely we'll be good with the laparoscopy.</span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="4r8uv-0-0"><div class="_1mf _1mj" data-offset-key="4r8uv-0-0"><span data-offset-key="4r8uv-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="e4atg-0-0"><div class="_1mf _1mj" data-offset-key="e4atg-0-0"><span data-offset-key="e4atg-0-0"><span data-text="true">There will be three incisions, one at each ovary and one under the belly button. She'll remove the ovaries and tubes, as well as any cysts (I have functional cysts by my ovaries that have been nothing but trouble, so I'll be glad to see the backs of them) through the belly button hole. Afterward, I'll be in instant menopause, but likely won't have any symptoms for 2 weeks or so because estrogen will remain in my system for some time.</span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="6kg8l-0-0"><div class="_1mf _1mj" data-offset-key="6kg8l-0-0"><span data-offset-key="6kg8l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="92brt-0-0"><div class="_1mf _1mj" data-offset-key="92brt-0-0"><span data-offset-key="92brt-0-0"><span data-text="true">If all goes well, I'll have same-day surgery. She said to expect to feel like crap for the first 3-5 days. She recommended 2 Tylenol and 2 Advil as a pain reliever periodically. I'll return for a follow up after 2 weeks. I'll be able to walk up and down the stairs, but no heavy lifting or exercising for 2 weeks. Déjà vu. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="2vrr-0-0"><div class="_1mf _1mj" data-offset-key="2vrr-0-0"><span data-offset-key="2vrr-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="efgmf-0-0"><div class="_1mf _1mj" data-offset-key="efgmf-0-0"><span data-offset-key="efgmf-0-0"><span data-text="true">Dr. Cernadas said that if I had been able to tolerate Tamoxifen, she would have advised removing the uterus for the full hysterectomy since Tamoxifen has a bad habit of causing uterine cancer. But, I get to keep mine because aromatase inhibitors don't have that particular side effect (plenty of other nasty ones, but not uterine cancer). </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="94t1r-0-0"><div class="_1mf _1mj" data-offset-key="94t1r-0-0"><span data-offset-key="94t1r-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="am08-0-0"><div class="_1mf _1mj" data-offset-key="am08-0-0"><span data-offset-key="am08-0-0"><span data-text="true">I should hear from her scheduler tomorrow. We agreed that sooner would be better than later. So, the next adventure approaches. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="8n3qg-0-0"><div class="_1mf _1mj" data-offset-key="8n3qg-0-0"><span data-offset-key="8n3qg-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="fm8ag-0-0"><div class="_1mf _1mj" data-offset-key="fm8ag-0-0"><span data-offset-key="fm8ag-0-0"><span data-text="true">As ever, thank you for continuing to read along and support me in all the best possible ways: your kindness, compassion, good vibes, powerful positive thinking, prayers, love, hugs, jokes, adventure days, walks in the park, phone calls, texts, letters, post cards, and gifts. I'm especially missing my MARAC friends now since it's conference time. Hopefully, we'll all be together again soon. </span></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="44fdt-0-0"><div class="_1mf _1mj" data-offset-key="44fdt-0-0"><span data-offset-key="44fdt-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="5g3ai" data-offset-key="ec0de-0-0"><div class="_1mf _1mj" data-offset-key="ec0de-0-0"><span data-offset-key="ec0de-0-0"><span data-text="true">Don't forget to schedule your screenings (mammograms, colonoscopies, etc.). Early detection is key.</span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-82907879842988774582022-02-28T19:51:00.009-05:002022-02-28T19:51:35.019-05:00The Breast Cancer Diaries, vol. 2, issue 10<p><b><span class="d2edcug0 hpfvmrgz qv66sw1b c1et5uql lr9zc1uh a8c37x1j fe6kdd0r mau55g9w c8b282yb keod5gw0 nxhoafnm aigsh9s9 d3f4x2em iv3no6db jq4qci2q a3bd9o3v b1v8xokw oo9gr5id hzawbc8m" dir="auto"></span></b></p><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;"><b>March Comes in Like a Dermatologist and Goes Out Like a Genetic Counselor</b></div></div><p></p><div><div class="" dir="auto"><div class="ecm0bbzt hv4rvrfc dati1w0a e5nlhep0" data-ad-comet-preview="message" data-ad-preview="message" id="jsc_c_5lj"><div class="j83agx80 cbu4d94t ew0dbk1b irj2b8pg"><div class="qzhwtbm6 knvmm38d"><span class="d2edcug0 hpfvmrgz qv66sw1b c1et5uql lr9zc1uh a8c37x1j fe6kdd0r mau55g9w c8b282yb keod5gw0 nxhoafnm aigsh9s9 d3f4x2em iv3no6db jq4qci2q a3bd9o3v b1v8xokw oo9gr5id hzawbc8m" dir="auto"><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Today, I went back to see Dr. Singh because the radiation burns, which seemed as though they had been healing prior to the Tamoxifen, have returned to nearly the same raw, painful state I was in when I saw him the first time back in January, but without the blisters. I'd been trying to use the steroid cream, but it seemed to be making it worse, so I stopped. In fact, even the most harmless stuff (Vaseline) seemed to be aggravating it. On Saturday and Sunday, the only thing I put on that area of skin was corn starch baby powder, just to keep it from chafing while walking/moving around. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Using a large magnifying loupe (as is typical with his examinations), Dr. Singh took a look at all the affected tissue under the left breast. He said that the skin cells are not becoming normal cells. I'm not exactly sure what that means, but he said the area isn't healing properly from the radiation. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">He prescribed a stronger steroid ointment, Clobetasol, and put me back on the Mupirocin, which is burning already as I write this. Dr. Singh said one week on, next week off for the steroid for a month, and then we'll check in again. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Aside from the physical pain, I'm frustrated and feel like I can't move forward with this part of my life because that area just won't heal. I knew it would be a slog, but I didn't expect that it would get painful, swollen, and itchy all over again, especially after seeing so much improvement. It's upsetting and disappointing. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Thankfully, the headaches are much improved. Saturday was the first day in 8 that I didn't have a headache (have had 1 since). On the other side of that coin, the neurologist doubled the dose of Ubrelvy and increased the quantity (they get doled out in sets of 10). My insurance promptly placed that prescription on hold and required a preapproval for it. There's paperwork trading hands and hopefully that will be cleared up soon because I only have one dose left. I have a telemedicine appointment with the neuro on Thursday to talk through other options. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Speaking of other options, my March calendar is pretty full of doctor calls and visits having to do with the cancer recurrence prevention plan. I'm trying to be sanguine about the situation, but it's a bit overwhelming to have that many visits/calls already mapped out. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">During the period from September through January, my life was this runaway train of procedures, surgery, radiation, and side effects while living at a survival-first pace. Now that things have slowed for a bit so that I can heal, I'm catching up with the emotional piece of being a person being treated for cancer. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Something that's become clear from talks with friends recently is that I've been feeling two-dimensional. My conversations tend to focus on this damn cancer and its damnable treatments (although more often than not, you will hear me say "F'ing cancer!" but it's not "f'ing"). </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">I feel like I need to yell at the top of my lungs, "I am more than my cancer!"</div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">When I recently had the experience of mentoring Rutgers archives students, I felt more like myself than I have in a good while. The person I am, this multifaceted human, is still here. And, I'm glad that the next breast cancer support group meeting is tomorrow evening. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">As always, I'm grateful for your kindness, love, prayers, good vibes, magical thinking, and righteous indignation on my behalf. For those who have contributed wool, I thank you greatly for giving my hands somthing to do while I await doctors, sit in meetings, and watch TV (I'm nearly done with a project I've been working on for a bit and will post photos when it's complete). I especially enjoy the very silly emails, private messages, masked walks, and long conversations that cover a hundred different topics (other than cancer). </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Don't forget to get screened. Early detection is key.</div></div></span></div></div></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-41606165585347263822022-02-20T04:34:00.007-05:002022-02-20T04:34:26.673-05:00The Breast Cancer Diaries, vol. 2, issue 9<p><b> <span data-offset-key="ec7f4-0-0"><span data-text="true">The Faucet of Side Effects</span></span></b></p><div data-contents="true"><div class="" data-block="true" data-editor="8td97" data-offset-key="cuh11-0-0"><div class="_1mf _1mj" data-offset-key="cuh11-0-0"><span data-offset-key="cuh11-0-0"><span data-text="true">Up until Thursday (4 days ago), I thought I might actually experience a miracle and sail through taking Tamoxifen. There had only been minor hot flashes and 2 days of feeling a bit nervy and tremor-y. No such luck.</span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="7hp77-0-0"><div class="_1mf _1mj" data-offset-key="7hp77-0-0"><span data-offset-key="7hp77-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="854pp-0-0"><div class="_1mf _1mj" data-offset-key="854pp-0-0"><span data-offset-key="854pp-0-0"><span data-text="true">On Thursday afternoon, it was as if some force had turned the faucet of side effects on full blast because they came on all at once. The worst have been the migraines. Since that time, I've had one migraine after another, like a non-stop vise on my head. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="20g7g-0-0"><div class="_1mf _1mj" data-offset-key="20g7g-0-0"><span data-offset-key="20g7g-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="6md1d-0-0"><div class="_1mf _1mj" data-offset-key="6md1d-0-0"><span data-offset-key="6md1d-0-0"><span data-text="true">Back in August, I began working with a neurologist, Dr. Leconte, because my pretty typical migraines had gotten much worse. Remember, that's part of the beginning of the BC story -- I went to get a CT of my sinuses and had a mammogram the same day since I was at University Radiology. (The sinuses were clear, BTW.)</span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="mptk-0-0"><div class="_1mf _1mj" data-offset-key="mptk-0-0"><span data-offset-key="mptk-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="1qoiu-0-0"><div class="_1mf _1mj" data-offset-key="1qoiu-0-0"><span data-offset-key="1qoiu-0-0"><span data-text="true">Dr. Leconte prescribed Ubrelvy, which is taken as soon as I feel a migraine ramping up. It works within an hour to stop it or I take another dose within 2 hours, which will get it if the first one doesn't. It makes me feel a bit tired, though. Up until 4 days ago, since I've been taking Ubrelvy, I haven't had migraines day after day. I might have one a week or one every two weeks, or even just the one really bad one before I start my cycle. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="1504s-0-0"><div class="_1mf _1mj" data-offset-key="1504s-0-0"><span data-offset-key="1504s-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="dl1vd-0-0"><div class="_1mf _1mj" data-offset-key="dl1vd-0-0"><span data-offset-key="dl1vd-0-0"><span data-text="true">The headaches I've been having since Thursday are treatable with the Ubrelvy, but only to a degree. Also, there's a limit to how much Ubrelvy I can take in a day (200 mg or 2 big doses, smaller doses are 50 mg). Because I'm waking up in the middle of the night with what seems like the next migraine flight about to take off, it ends up my needing 3 big doses a day.</span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="26gq3-0-0"><div class="_1mf _1mj" data-offset-key="26gq3-0-0"><span data-offset-key="26gq3-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="a77c7-0-0"><div class="_1mf _1mj" data-offset-key="a77c7-0-0"><span data-offset-key="a77c7-0-0"><span data-text="true">At the same time the headaches started, so did the hot flashes. I don't mind these half as much because they are short-lived. However, they wake me up when I'm sleeping every couple of hours, which is not cool at all. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="123p4-0-0"><div class="_1mf _1mj" data-offset-key="123p4-0-0"><span data-offset-key="123p4-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="al54b-0-0"><div class="_1mf _1mj" data-offset-key="al54b-0-0"><span data-offset-key="al54b-0-0"><span data-text="true">Why am I up at 3:30 a.m. writing this? An hour ago, I had a full-on night sweat, where I woke up completely soaked. Prior to taking Tamoxifen, a night sweat wasn't unfamiliar to me. In fact, before my most recent period, I had a run of them. It was the same each time, I'd awake with the front of my night gown or sleep shirt soaked from the chest up, as well as the back of my neck. I'd go towel off, perhaps put a large towel down on the bed (if needed), and go back to sleep. This time, I was in a pool of sweat down to my knees. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="d6du0-0-0"><div class="_1mf _1mj" data-offset-key="d6du0-0-0"><span data-offset-key="d6du0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="78bao-0-0"><div class="_1mf _1mj" data-offset-key="78bao-0-0"><span data-offset-key="78bao-0-0"><span data-text="true">I had to towel off, re-clean my radiation burn area and re-apply the steroid cream (oh, just in case you thought I'd be free from any skin changes, the itchiness and irritation has returned in the past few days, too). </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="5ibtr-0-0"><div class="_1mf _1mj" data-offset-key="5ibtr-0-0"><span data-offset-key="5ibtr-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="fcbhu-0-0"><div class="_1mf _1mj" data-offset-key="fcbhu-0-0"><span data-offset-key="fcbhu-0-0"><span data-text="true">I took an Ubrelvy because the next migraine was queued up and sat down, wrapped up in my Aniversario blanket to write this to you. And now, I just unwrapped because I'm having another hot flash. Oh, the fun.</span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="tvdv-0-0"><div class="_1mf _1mj" data-offset-key="tvdv-0-0"><span data-offset-key="tvdv-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="alknj-0-0"><div class="_1mf _1mj" data-offset-key="alknj-0-0"><span data-offset-key="alknj-0-0"><span data-text="true">There has been some weepiness, as well. For most of my life, PMDD (I have a type of PMS that's pretty severe, gee what a surprise) has looked like either really weepy and down or really angry. Sounds like typical PMS? Well, the really weepy end can get pretty dark, and I don't talk about it much except to very trusted friends. I can tell it's hormonal because I don't typically feel this way except during PMDD (athough I felt pretty crappy about myself during the years prior to my divorice, but that's a whole other kettle of fish). </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="6dt7q-0-0"><div class="_1mf _1mj" data-offset-key="6dt7q-0-0"><span data-offset-key="6dt7q-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="frmds-0-0"><div class="_1mf _1mj" data-offset-key="frmds-0-0"><span data-offset-key="frmds-0-0"><span data-text="true">The last side effect is that I've started bleeding/spotting. This is definitely the Tamoxifen because it started on Thursday, at the very same time as everything else. I'd just ended a pretty typical period cycle on the 8th (today is the 20th), so it definitely wasn't time. This side effect should be watched because Tamoxifen causes endometrial (the lining of the uterus) cancer in 1 of 500 patients who take it. I'll be having an annual gynecological exam in a month, and I'm sure to be checked very carefully. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="8nu4l-0-0"><div class="_1mf _1mj" data-offset-key="8nu4l-0-0"><span data-offset-key="8nu4l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="5vkvg-0-0"><div class="_1mf _1mj" data-offset-key="5vkvg-0-0"><span data-offset-key="5vkvg-0-0"><span data-text="true">On Friday, I called Dr. Omene to speak with her about the faucet of side effects, but most importantly, the bad migraines. After hearing my experience, she suggested I take "a holiday" for 2 weeks from the Tamoxifen to see if it truly is the drug that's causing what's happening to me. Because I already get migraines (but not like this) and night sweats (but not the hot flashes), we have to test it. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="4fdu0-0-0"><div class="_1mf _1mj" data-offset-key="4fdu0-0-0"><span data-offset-key="4fdu0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="7eauf-0-0"><div class="_1mf _1mj" data-offset-key="7eauf-0-0"><span data-offset-key="7eauf-0-0"><span data-text="true">She really wants me to be able to tolerate the Tamoxifen because if I can't, then we're in a bit of a pickle. I'm unable try the other type of drug (aromatase inhibitors) for breast cancer recurrence prevention until I'm menopausal. We spoke a bit about my preference for oopherectomy over taking the ovarian supressant drug. While she prefers the drug, the surgery would quickly put me into menopause (and I'd get whatever I'd get as far as hot flashes, etc.), and then we could try the aromatase inhibitors.</span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="nmb7-0-0"><div class="_1mf _1mj" data-offset-key="nmb7-0-0"><span data-offset-key="nmb7-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="apnem-0-0"><div class="_1mf _1mj" data-offset-key="apnem-0-0"><span data-offset-key="apnem-0-0"><span data-text="true">Those can be tough to tolerate for other reasons, but are much more effective in preventing recurrence than Tamoxifen in postmenopausal women. The one that Dr. Omene wants to try causes bone loss and pain, but taking calcium after menopause is necessary anyway, especially for women with osteoporosis in their family (me) and/or who might already be osteoporotic (also me, although to a small degree, as detected in spinal x-rays from a number of years ago). </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="8mkf1-0-0"><div class="_1mf _1mj" data-offset-key="8mkf1-0-0"><span data-offset-key="8mkf1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="djp47-0-0"><div class="_1mf _1mj" data-offset-key="djp47-0-0"><span data-offset-key="djp47-0-0"><span data-text="true">So, I'm on "holiday" from Tamoxifen for a couple of weeks, awaiting the half life of 5-7 days to weaken and stop the migraines. It would be great if I didn't have to take any medications, but since the likelihood of recurrence is greater without them, it's best if I can try to take them. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="votn-0-0"><div class="_1mf _1mj" data-offset-key="votn-0-0"><span data-offset-key="votn-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="3mg70-0-0"><div class="_1mf _1mj" data-offset-key="3mg70-0-0"><span data-offset-key="3mg70-0-0"><span data-text="true">Thanks for continuing to read along, send prayers and love, and support me in all the ways you do. Yesterday, as I wound the wool sent to me by Djaz, Mom and Dave, and Tom into workable balls, I thought about all the generousity of spirit and purse that has been aimed my way during this now 6-month journey. As ever, I am enormously grateful for every tiny bit of positive energy expended for my benefit. Every moment of it helps. Thank you. </span></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="dmacm-0-0"><div class="_1mf _1mj" data-offset-key="dmacm-0-0"><span data-offset-key="dmacm-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="8td97" data-offset-key="8kro7-0-0"><div class="_1mf _1mj" data-offset-key="8kro7-0-0"><span data-offset-key="8kro7-0-0"><span data-text="true">Remember to schedule your screenings. Early detection is key.</span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-86943566620647877442022-02-15T17:10:00.000-05:002022-02-15T17:10:01.881-05:00The Breast Cancer Diaries, vol. 2, issue 8<p><b><span data-offset-key="3vq4t-0-0"><span data-text="true">Updates and Changes</span></span></b></p><div data-contents="true"><div class="" data-block="true" data-editor="cf1pl" data-offset-key="fk7fs-0-0"><div class="_1mf _1mj" data-offset-key="fk7fs-0-0"><span data-offset-key="fk7fs-0-0"></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="8gp88-0-0"><div class="_1mf _1mj" data-offset-key="8gp88-0-0"><span data-offset-key="8gp88-0-0"><span data-text="true">It's been 15 days since the last BCD entry, and a whole lot can happen in two weeks. Or, in my case, a whole lot doesn't happen. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="cisek-0-0"><div class="_1mf _1mj" data-offset-key="cisek-0-0"><span data-offset-key="cisek-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="q77g-0-0"><div class="_1mf _1mj" data-offset-key="q77g-0-0"><span data-offset-key="q77g-0-0"><span data-text="true">I made the decision not to go ahead with the Zoladex (ovarian suppressant) shot originally scheduled for the 7th, and then rescheduled for the 14th because my insurance hadn't approved it yet. Why not? I haven't yet been tested for the BRCA gene mutations. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="87n9a-0-0"><div class="_1mf _1mj" data-offset-key="87n9a-0-0"><span data-offset-key="87n9a-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="5h5lo-0-0"><div class="_1mf _1mj" data-offset-key="5h5lo-0-0"><span data-offset-key="5h5lo-0-0"><span data-text="true">If it turns out that I'm BRCA positive in any way, I'll have my ovaries removed. In that case, I wouldn't have needed the ovarian suppressant. I also want to see my new gynecologist to hear her take on ovarian suppression versus oophorectomy (removal of the ovaries and fallopian tubes). </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="130rm-0-0"><div class="_1mf _1mj" data-offset-key="130rm-0-0"><span data-offset-key="130rm-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="7tqit-0-0"><div class="_1mf _1mj" data-offset-key="7tqit-0-0"><span data-offset-key="7tqit-0-0"><span data-text="true">I'm also doubtful that I'm going to take the Zometa infusion. However, I spoke with my incredibly nice periodontist, Dr. Cornick who was up to date on everything and asked me to come in for a different set of x-rays, which would tell him a lot more about the bones in my jaw. He also wanted to see the state of things since the last I saw him was in 2017. I hadn't returned because things have been going very well, dentally speaking. All that said, Dr. Omene said that if I didn't feel comfortable with it, I didn't have to do it. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="fj20-0-0"><div class="_1mf _1mj" data-offset-key="fj20-0-0"><span data-offset-key="fj20-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="96ovg-0-0"><div class="_1mf _1mj" data-offset-key="96ovg-0-0"><span data-offset-key="96ovg-0-0"><span data-text="true">The Tamoxifen, which I've been taking since February 3, has only affected me in the most minor ways, and for very short amounts of time. For instance, I had a hot flash that was different. Last week, I was looking under the bathroom sink for some extra dental floss, when suddenly I became very hot. Not sweaty, just really hot. Like Phoenix-in-the-summer hot. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="14o5b-0-0"><div class="_1mf _1mj" data-offset-key="14o5b-0-0"><span data-offset-key="14o5b-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="5kfu4-0-0"><div class="_1mf _1mj" data-offset-key="5kfu4-0-0"><span data-offset-key="5kfu4-0-0"><span data-text="true">I rose, walked over to the bed, laid down, and turned on the ceiling fan. By the time I was settled, I already felt cold. It was weird and intense, but only for 1.5 minutes. Since then, I've had a few night sweats, but nothing compared to what I've had in the past.</span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="aefbq-0-0"><div class="_1mf _1mj" data-offset-key="aefbq-0-0"><span data-offset-key="aefbq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="9f26u-0-0"><div class="_1mf _1mj" data-offset-key="9f26u-0-0"><span data-offset-key="9f26u-0-0"><span data-text="true">In terms of other effects, I felt pretty jittery for two days last week, hands trembling and everything, but that passed very quickly. My understanding is that Tamoxifen needs to build up in the system, which means there will be more to come, but so far, it hasn't been taxing, thankfully. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="c76gr-0-0"><div class="_1mf _1mj" data-offset-key="c76gr-0-0"><span data-offset-key="c76gr-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="7pnt1-0-0"><div class="_1mf _1mj" data-offset-key="7pnt1-0-0"><span data-offset-key="7pnt1-0-0"><span data-text="true">The state of things in Radiation Burns Land is much improved, thanks to the steroid cream and antibiotic ointment prescribed by my dermatologist, Dr. Singh. I saw him yesterday for a follow-up and a full-body scan. The full-body scan was fine, and I'll return every 6 months now for another scan.</span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="enc4q-0-0"><div class="_1mf _1mj" data-offset-key="enc4q-0-0"><span data-offset-key="enc4q-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="99fl2-0-0"><div class="_1mf _1mj" data-offset-key="99fl2-0-0"><span data-offset-key="99fl2-0-0"><span data-text="true">He was happy to see how the radiation burns are healing, and said that in another month or so, I should be able to wear a bra properly (meaning that I'll be able to wear the band under the boobs as it's supposed to be, not pulled down on my stomach as I've been doing to avoid the band from abraiding the burned region). It's not as quick as I'd like, but it's a tough location to heal from burns. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="ash20-0-0"><div class="_1mf _1mj" data-offset-key="ash20-0-0"><span data-offset-key="ash20-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="7sm4o-0-0"><div class="_1mf _1mj" data-offset-key="7sm4o-0-0"><span data-offset-key="7sm4o-0-0"><span data-text="true">Importantly, I'm still using the calendula ointment between applications of the the steroid cream. I haven't had to use the antibiotic in a while, which is good because it burned like crazy. Dr. Singh was suprised by that since they use it to treat burns. I'm not at all surprised. If you look at me wrong, my skin throws a rash.</span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="cn2q1-0-0"><div class="_1mf _1mj" data-offset-key="cn2q1-0-0"><span data-offset-key="cn2q1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="eouhr-0-0"><div class="_1mf _1mj" data-offset-key="eouhr-0-0"><span data-offset-key="eouhr-0-0"><span data-text="true">In the beginning of February, I tried using an oncology recovery cream, whose ingredients looked harmless, to try to speed up the healing. But true to form, my skin wasn't having any of it and became a lot worse very quickly. Last week, I had another big peel, raw bits and all. It sucked mightily. Thankfully, it's much better now. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="ag37c-0-0"><div class="_1mf _1mj" data-offset-key="ag37c-0-0"><span data-offset-key="ag37c-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="bu15k-0-0"><div class="_1mf _1mj" data-offset-key="bu15k-0-0"><span data-offset-key="bu15k-0-0"><span data-text="true">The random breast pains continue to lessen in quantity and frequency, but they still return from time to time, as predicted by Dr. McManus. Today and yesterday, especially, I've had the searing lightning strike feeling a bunch of times. So, I take some Alleve, and it eases up. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="c9ot0-0-0"><div class="_1mf _1mj" data-offset-key="c9ot0-0-0"><span data-offset-key="c9ot0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="85bka-0-0"><div class="_1mf _1mj" data-offset-key="85bka-0-0"><span data-offset-key="85bka-0-0"><span data-text="true">I'm not going to discuss the issue with St. Peter's, but it's still unsettled. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="8skro-0-0"><div class="_1mf _1mj" data-offset-key="8skro-0-0"><span data-offset-key="8skro-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="c828r-0-0"><div class="_1mf _1mj" data-offset-key="c828r-0-0"><span data-offset-key="c828r-0-0"><span data-text="true">In cancer prevention news, I'm going to start adding turkey tail mushroom powder to my daily pea protein/mushroom powder/fruit smoothie in the morning. There's some data showing its success in fighting breast cancer recurrence. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="79edt-0-0"><div class="_1mf _1mj" data-offset-key="79edt-0-0"><span data-offset-key="79edt-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="eep4d-0-0"><div class="_1mf _1mj" data-offset-key="eep4d-0-0"><span data-offset-key="eep4d-0-0"><span data-text="true">I also have started Yoga with Adriene's 30 Days of Yoga series for this year. There are things that I'm just not able to do yet, and that's fine. I do what I can--slowly--but I'm working to add more activity to my day to increase healing and start the slow walk toward getting back in shape after all this. When the weather's been warmer, I have been getting out and walking in the park or around the neighborhood. Once in a while, I meet up with a friend for a masked walk. I'd like more of these. </span></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="8v2hd-0-0"><div class="_1mf _1mj" data-offset-key="8v2hd-0-0"><span data-offset-key="8v2hd-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="cf1pl" data-offset-key="4vomh-0-0"><div class="_1mf _1mj" data-offset-key="4vomh-0-0"><span data-offset-key="4vomh-0-0"><span data-text="true">As ever, I am grateful for all your support, kind words, great vibes, funny jokes/emails/private messages, in-person walks, long phone calls that cover lots of topics other than cancer, love, prayers, gifts, and puppy photos. Last week, I hit my limit with every single day being all-cancer-all-the-time. It's just been such a gift to have a few days when that is NOT the case. </span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-38906894883681325942022-02-01T17:06:00.003-05:002022-02-01T17:06:09.369-05:00The Breast Cancer Diaries, vol. 2, issue 7 <p><span class="d2edcug0 hpfvmrgz qv66sw1b c1et5uql lr9zc1uh a8c37x1j fe6kdd0r mau55g9w c8b282yb keod5gw0 nxhoafnm aigsh9s9 d3f4x2em iv3no6db jq4qci2q a3bd9o3v b1v8xokw oo9gr5id hzawbc8m" dir="auto"></span></p><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;"><b>Switching Gears</b></div><div dir="auto" style="text-align: start;"><b> </b></div></div><span class="d2edcug0 hpfvmrgz qv66sw1b c1et5uql lr9zc1uh a8c37x1j fe6kdd0r mau55g9w c8b282yb keod5gw0 nxhoafnm aigsh9s9 d3f4x2em iv3no6db jq4qci2q a3bd9o3v b1v8xokw oo9gr5id hzawbc8m" dir="auto"><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;"></div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">You may have noticed that issues 5 and 6 have not been made public. This is purposeful. Here is the latest issue. <br /></div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Yesterday, after an hour + wait for Dr. Omene at the Rutgers Cancer Institute, I met with my medical oncologist and her nurse Trish (before and after Dr. Omene) for over an hour. We discussed at length the now three medications that will be on my horizon for some time: Tamoxifen, Zoladex, and Zometa. I had many questions, which Dr. Omene and Trish took the time to answer. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">The amount of information I wrote down and received in print outs, as well as the papers Dr. Omene cited (thanks to Mom and Dave for their searches) is sizeable. I've been a bit overwhelmed by all of it and the implications of what I'm about to put my body through. On the other side of the coin, as you'll read later, there is good reason to go to such lengths. So, I've been making sense of it in pieces. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">First, I will be taking a 20-mg pill of Tamoxifen daily for 7 years as an estrogen blocker. It's been given for decades to women like me whose cancer is positive for estrogen receptors. The tamoxifen binds to estrogen receptors, preventing cancer cells from connecting to them to feed.</div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">While it's long been used to prevent a secondary breast cancer or recurrence in the same breast, it comes with a host of side effects, although some are stronger than others. Most are consistent with menopause, such as hot flashes; night sweats; irregular bleeding; and vaginal discharge, dryness, and itching. Tamoxifen also has a history of causing uterine cancer, strokes, cataracts, and blood clots in some patients. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Once a month for approximately 2 years, I will be given Zoladex in a separate treatment area at the Cancer Institute by an oncology nurse. The goal of Zoladex is to suppress my ovaries and send me into menopause. The shot is actually a small, 3.6-mg pellet that's injected just under the skin in my abdomen. Then, it will spend the next 28 days dispersing, then suppressing my ovaries.</div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">I've been told to expect intense menopausal symptoms for the first few months until my body evens out. In addition to the ones listed above for Tamoxifen, there may be a loss of libido, leg cramps, headaches, mood swings, and other side effects. After 2 months, Dr. Omene will test my blood for lutenizing hormone and follicle-stimulating hormone to see the effectiveness of the ovarian suppression. Within 4 months of taking this treatment, menopause should be achieved. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Separately, I'll be contacting my primary care doc, to whom I've been asking all the oncology folks to send my records. Dr. Omene said that they don't do the kind of surveillance that I'd like (instead watching for signs and symptoms), but recommended I call my GP for annual physicals and a full blood panel to watch for abnormal levels. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Speaking of testing, Dr. Omene put in an order to test me for BRCA mutations. I haven't been tested for them previously because I am the first in my family to have breast cancer. This testing will be done remotely. I'll have a phone or zoom conversation with the Rutgers Cancer Institute's Genetics Department to get a full background interview. They, in turn, will mail me a saliva test to return to them, similar to the popular DNA kits. If it turns out that I am positive, I'll discontinue the Zoladex and have my ovaries removed. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">Moving on to drug #3. After I'm menopausal, every three months for 2 years I will receive a 4-mg IV infusion of Zometa. It's a completely different kind of drug, a biophosphate that targets osteoclasts, and is typically given to patients with osteoporosis to strengthen bones. It's been shown to reduce breast cancer spreading to the bones when used as a treatment in women with my prognostic indicators. More importantly, there is evidence that it cuts the recurrence rate significantly in post-menopausal women. So, getting the Zoladex to do its magic first is key. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">The side effects with Zometa suck. There's also a lot of blood monitoring and examining kidney function. I'll feel highly crappy for a few days after the infusion -- flu-like symptoms, aches and bone pain, headaches, etc. The scariest side effect is osteonecrosis of the jaw. I'm someone who has had a LOT of dental work, including a cyst removed from my jaw, so it has me a bit worried. I have a call in to Dr. Omene's nurse to ask some questions and let them know about my extensive dental surgery history. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">In case you're interested in learning more about the meta-analyses of Zometa trials that Dr. Omene based her treatment plan on, here's the link: <span><a class="oajrlxb2 g5ia77u1 qu0x051f esr5mh6w e9989ue4 r7d6kgcz rq0escxv nhd2j8a9 nc684nl6 p7hjln8o kvgmc6g5 cxmmr5t8 oygrvhab hcukyx3x jb3vyjys rz4wbd8a qt6c0cv9 a8nywdso i1ao9s8h esuyzwwr f1sip0of lzcic4wl gpro0wi8 py34i1dx" href="https://pubmed.ncbi.nlm.nih.gov/26211824/?fbclid=IwAR0shOV2_vmpxpZ0WairbjQtPqZyuSQDWd-U0mFuLj4xydbD1lwR8yfLpEY" rel="nofollow noopener" role="link" tabindex="0" target="_blank">https://pubmed.ncbi.nlm.nih.gov/26211824/</a></span>. </div><div dir="auto" style="text-align: start;"> </div></div><div class="cxmmr5t8 oygrvhab hcukyx3x c1et5uql o9v6fnle ii04i59q"><div dir="auto" style="text-align: start;">It's all a bit much at the moment, but as with everything else in this journey, I'll keep on going and writing about it. </div></div></span><p></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-40050576415432179782022-01-20T12:35:00.003-05:002022-01-20T12:35:10.418-05:00The Breast Cancer Diaries, vol. 2, issue 4<p></p><div data-contents="true"><div class="" data-block="true" data-editor="757s2" data-offset-key="b8hde-0-0"><div class="_1mf _1mj" data-offset-key="b8hde-0-0"><b><span data-offset-key="b8hde-0-0"><span data-text="true">1 Week Post-Radiation and My First BC Support Group Session</span></span></b></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="62qn4-0-0"><div class="_1mf _1mj" data-offset-key="62qn4-0-0"><span data-offset-key="62qn4-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="avgfk-0-0"><div class="_1mf _1mj" data-offset-key="avgfk-0-0"><span data-offset-key="avgfk-0-0"><span data-text="true">I am happy to say that thanks to the topical medications from Dr. Singh, there has been some progress in healing the radiation burns. While most of my report is a good one, there remain the severely blistered and open wounds under the breast. However, there have been some small improvements as the burned skin has sloughed off and new skin has formed in some areas. It's still pretty painful under there, though. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="7ddh7-0-0"><div class="_1mf _1mj" data-offset-key="7ddh7-0-0"><span data-offset-key="7ddh7-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="8ia9g-0-0"><div class="_1mf _1mj" data-offset-key="8ia9g-0-0"><span data-offset-key="8ia9g-0-0"><span data-text="true">The armpit area is in much better shape than it was, and has returned to its typical color and has been pain free for a few days now. The steroid cream worked like a charm there. I'm still pretty itchy on the skin above the breast, which is dark red. The nipple area has peeled and is healing, although its topography is still mishapen from being so badly burned. It's insanely sensitive and painful most of the time. Several people who have been through it have told me that it will take a while, but will return to normal eventually. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="5siha-0-0"><div class="_1mf _1mj" data-offset-key="5siha-0-0"><span data-offset-key="5siha-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="2j89p-0-0"><div class="_1mf _1mj" data-offset-key="2j89p-0-0"><span data-offset-key="2j89p-0-0"><span data-text="true">A new color change has appeared where the "booster" treatment took place. It's a darker oval that covers the breast scar and an inch around it. That made an appearance on Tuesday. It's similar in how the armpit pain and issues appeared 5 days after the main treatment had ended. Clearly, I'm still being cooked from the inside out. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="5m3k5-0-0"><div class="_1mf _1mj" data-offset-key="5m3k5-0-0"><span data-offset-key="5m3k5-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="4eihl-0-0"><div class="_1mf _1mj" data-offset-key="4eihl-0-0"><span data-offset-key="4eihl-0-0"><span data-text="true">On the whole, I've been keeping up with the Cetaphil eczema/calendula cream ritual on the whole red area (except the underboob) every 1 to 2 hours when awake. It's a lot, to be sure, but it helps lower the pain level. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="av6uq-0-0"><div class="_1mf _1mj" data-offset-key="av6uq-0-0"><span data-offset-key="av6uq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="5dkhr-0-0"><div class="_1mf _1mj" data-offset-key="5dkhr-0-0"><span data-offset-key="5dkhr-0-0"><span data-text="true">Along with the moisturization care and feeding, the very tender and angry area under the breast that requires frequent care. After I clean it with the Hurt Free liquid (doesn't matter folks, it still burns there), twice a day I apply the antibiotic ointment. It burns like mad for a good half hour now (sometimes longer). There is much cursing and making of angry faces. I now have a new wrinkle, a vertical line next to my right eyebrow, that can be traced directly to the radiation burn pain. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="1r2d4-0-0"><div class="_1mf _1mj" data-offset-key="1r2d4-0-0"><span data-offset-key="1r2d4-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="dln96-0-0"><div class="_1mf _1mj" data-offset-key="dln96-0-0"><span data-offset-key="dln96-0-0"><span data-text="true">Several times a day, I also will clean the wounds and treat them with calendula ointment (great call, Sam). That doesn't burn as long as the antibiotic, thankfully. It also stays with me longer. It's like spreading really thick vaseline on the area. When I awake during the overnight (1, 2, or 3 a.m. each night), I'll treat it with the calendula. That has brought some comfort after the burning. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="9f80m-0-0"><div class="_1mf _1mj" data-offset-key="9f80m-0-0"><span data-offset-key="9f80m-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="25euf-0-0"><div class="_1mf _1mj" data-offset-key="25euf-0-0"><span data-offset-key="25euf-0-0"><span data-text="true">I'm also still spending a few hours a day on my back, holding my breast away from the crease to expose it to air and help the healing. It's a bit of an ordeal, but I'm hoping that by this time next week, I'll have more news of increased healing. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="bbh4g-0-0"><div class="_1mf _1mj" data-offset-key="bbh4g-0-0"><span data-offset-key="bbh4g-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="5bsf5-0-0"><div class="_1mf _1mj" data-offset-key="5bsf5-0-0"><span data-offset-key="5bsf5-0-0"><span data-text="true">Finally, the lightning pain through the breast happens much less often and doesn't last long. I'm grateful for that. I've been able to sleep on my side sometimes, which also is helpful. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="bdvu5-0-0"><div class="_1mf _1mj" data-offset-key="bdvu5-0-0"><span data-offset-key="bdvu5-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="eejce-0-0"><div class="_1mf _1mj" data-offset-key="eejce-0-0"><span data-offset-key="eejce-0-0"><span data-text="true">On Tuesday, I attended my first breast cancer support group run by Hope Connections for Cancer Support. A friend receiving treatment at the NIH tipped me off, and because it's all Zoom now, they were fine with me joining from Jersey. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="esno5-0-0"><div class="_1mf _1mj" data-offset-key="esno5-0-0"><span data-offset-key="esno5-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="dai00-0-0"><div class="_1mf _1mj" data-offset-key="dai00-0-0"><span data-offset-key="dai00-0-0"><span data-text="true">There were 8 of us, including the moderator (not a breast cancer survivor). Some of the women had completed their treatments, two had yet to have surgery, one was in process of receiving chemo, and me. They all spoke about their journeys and struggles. No one had as bad a time with radiation burns as I'm having.</span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="9jul8-0-0"><div class="_1mf _1mj" data-offset-key="9jul8-0-0"><span data-offset-key="9jul8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="6k9r6-0-0"><div class="_1mf _1mj" data-offset-key="6k9r6-0-0"><span data-offset-key="6k9r6-0-0"><span data-text="true">I shared about my previous experience, current situation, and these diary entries. The participants wanted to read these, so I sent a link in the chat. The moderator didn't want me to share it, but then a participant spoke up that she did want to see it. That was a little weird, but otherwise, I'm glad I attended. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="3i2ne-0-0"><div class="_1mf _1mj" data-offset-key="3i2ne-0-0"><span data-offset-key="3i2ne-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="cmg94-0-0"><div class="_1mf _1mj" data-offset-key="cmg94-0-0"><span data-offset-key="cmg94-0-0"><span data-text="true">I also have been making other kinds of changes to cope with the pain. Importantly, I've increased the number of online recovery meetings I've been attending. So many good things have come out of that, especially a few new friends. I've also increased and deepened my meditation practice. That work includes a daily online international meditation group that has a different leader each time. Expanding my meditation practice has helped in many ways.</span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="cs4d7-0-0"><div class="_1mf _1mj" data-offset-key="cs4d7-0-0"><span data-offset-key="cs4d7-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="9b44s-0-0"><div class="_1mf _1mj" data-offset-key="9b44s-0-0"><span data-offset-key="9b44s-0-0"><span data-text="true">As ever, thank you for your kind thoughts, prayers, love, gifts, funny notes, and positive vibes. </span></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="4586f-0-0"><div class="_1mf _1mj" data-offset-key="4586f-0-0"><span data-offset-key="4586f-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="757s2" data-offset-key="btrbb-0-0"><div class="_1mf _1mj" data-offset-key="btrbb-0-0"><span data-offset-key="btrbb-0-0"><span data-text="true">Don't forget to schedule your mammogram! Early detection is key. </span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-43614728127155286902022-01-16T10:40:00.002-05:002022-01-16T10:40:07.534-05:00The Breast Cancer Diaries, vol. 2, issue 3<p><b> <span data-offset-key="e07mf-0-0"><span data-text="true">Hope in 2 Tubes</span></span></b></p><div data-contents="true"><div class="" data-block="true" data-editor="270av" data-offset-key="7253m-0-0"><div class="_1mf _1mj" data-offset-key="7253m-0-0"><span data-offset-key="7253m-0-0"></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="31ecf-0-0"><div class="_1mf _1mj" data-offset-key="31ecf-0-0"><span data-offset-key="31ecf-0-0"><span data-text="true">This past Thursday (today is Sunday), I saw my new dermatologist, Dr. Singh, who examined the entire treatment area and spent some time looking at the radiation burns under the left breast and in the armpit. He prescribed Triamcinolone cream, a medium-to-strong steroid, to be applied the red, swollen areas that were not open wounds, and Muprirocin ointment, a topical antibiotic for the open wounds. Both would be applied twice a day.</span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="a7bgd-0-0"><div class="_1mf _1mj" data-offset-key="a7bgd-0-0"><span data-offset-key="a7bgd-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="6fept-0-0"><div class="_1mf _1mj" data-offset-key="6fept-0-0"><span data-offset-key="6fept-0-0"><span data-text="true">While I was there, I also expressed concern about some new birthmarks which had emerged since the treatment. Dr. Singh took another look and said he wasn't concerned about what he saw, but in a month, I needed to return for a full-body scan. It's been a while since I've had one. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="3ngao-0-0"><div class="_1mf _1mj" data-offset-key="3ngao-0-0"><span data-offset-key="3ngao-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="h6j0-0-0"><div class="_1mf _1mj" data-offset-key="h6j0-0-0"><span data-offset-key="h6j0-0-0"><span data-text="true">In the early 1990s, I had a melanoma removed from my left thumb. It was right at the spot where the thumb joins my hand. A birthmark started changing shape and growing quickly, so I had it removed. It was tested and identified as a melanoma. The dermatologist asked me to return so that he could go back to the spot and dig out as much as possible to prevent any further skin cancer. He did. It sucked, but he got it all. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="45ec1-0-0"><div class="_1mf _1mj" data-offset-key="45ec1-0-0"><span data-offset-key="45ec1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="aps8h-0-0"><div class="_1mf _1mj" data-offset-key="aps8h-0-0"><span data-offset-key="aps8h-0-0"><span data-text="true">Since then, I am scanned to check for further issues. Thankfully, that's been the only melanoma so far. But, now that I've had breast cancer and radiation, my dermatologist and I need to be even more vigilant. Add it to the list. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="e0qii-0-0"><div class="_1mf _1mj" data-offset-key="e0qii-0-0"><span data-offset-key="e0qii-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="60p9m-0-0"><div class="_1mf _1mj" data-offset-key="60p9m-0-0"><span data-offset-key="60p9m-0-0"><span data-text="true">Back to the tubes o' hope...</span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="dvkjt-0-0"><div class="_1mf _1mj" data-offset-key="dvkjt-0-0"><span data-offset-key="dvkjt-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="a04cu-0-0"><div class="_1mf _1mj" data-offset-key="a04cu-0-0"><span data-offset-key="a04cu-0-0"><span data-text="true">Thursday, I applied the medications as directed in two doses. On Friday, at 3 am, I awoke to find that not only had I slept 5 hours (!!!), but when I looked at the treatment area, I saw some improvements. First, the armpit was about half as red and angry as it had been, and under the breast, the burned skin was begining to slough off. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="7eb47-0-0"><div class="_1mf _1mj" data-offset-key="7eb47-0-0"><span data-offset-key="7eb47-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="4rk4r-0-0"><div class="_1mf _1mj" data-offset-key="4rk4r-0-0"><span data-offset-key="4rk4r-0-0"><span data-text="true">In the past couple of days, the armpit has been peeling, and increasingly less painful, although I'm still treating it with the medications. There are now some very itchy patches, the worst of which being a spot an inch to the right (as you face it) of the armpit scar. It's exactly where the bra strap touches my chest and is tender and red. When I'm not treating it with the Triamcinolone, I'm moisturizing it with the Cetaphil eczema cream. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="na7j-0-0"><div class="_1mf _1mj" data-offset-key="na7j-0-0"><span data-offset-key="na7j-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="ce795-0-0"><div class="_1mf _1mj" data-offset-key="ce795-0-0"><span data-offset-key="ce795-0-0"><span data-text="true">The nipple area is peeling, but thanks to the steroid cream, the skin underneath is pink, and not angry red. It is still very sensitive and hurts when even soft fabric touches it.</span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="fb037-0-0"><div class="_1mf _1mj" data-offset-key="fb037-0-0"><span data-offset-key="fb037-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="ciskj-0-0"><div class="_1mf _1mj" data-offset-key="ciskj-0-0"><span data-offset-key="ciskj-0-0"><span data-text="true">Underneath the breast, unfortunately, it's still very red and angry. Now that most of the old skin has sloughed off, the new skin is very tender. Whenever I'm moisturizing or treating the area, I employ a hand mirror to see what the state of things are at the moment. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="835ef-0-0"><div class="_1mf _1mj" data-offset-key="835ef-0-0"><span data-offset-key="835ef-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="f3vv6-0-0"><div class="_1mf _1mj" data-offset-key="f3vv6-0-0"><span data-offset-key="f3vv6-0-0"><span data-text="true">At the center of the bright red wound line under the breast, there's a dark purple, nearly black area along the crease. The newer blisters are smaller in size and height. In fact, most of the small blisters appear as flat, red sores. I know it sounds vile, and it's pretty awful, but trust me when I tell you that this is an improvement. Previously, they looked like tiny, angry, red mountains with white tops. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="fmsmo-0-0"><div class="_1mf _1mj" data-offset-key="fmsmo-0-0"><span data-offset-key="fmsmo-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="eb1qf-0-0"><div class="_1mf _1mj" data-offset-key="eb1qf-0-0"><span data-offset-key="eb1qf-0-0"><span data-text="true">Also, the width of the affected area has expanded. It's now about 3/4 of an inch further up the underside of the breast and about an inch on the chest below the crease. The length of the affected area also has expanded. It's now almost up to my sternum in the inside and an inch and a half longer on the outside edge (not quite out to outside of the breast). Both edges are particularly tender, dry quickly, and require extra care.</span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="9rdmb-0-0"><div class="_1mf _1mj" data-offset-key="9rdmb-0-0"><span data-offset-key="9rdmb-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="7tdj7-0-0"><div class="_1mf _1mj" data-offset-key="7tdj7-0-0"><span data-offset-key="7tdj7-0-0"><span data-text="true">As the blisters heal, I can treat that portion of the underside and chest with the steroid cream. For now, though, it's Mupirocin for that area. The antibiotic ointment burns like mad for a good 10 minutes after I apply it. Apparently this is normal. Thankfully, doesn't burn the entire time it's on me. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="cvjp9-0-0"><div class="_1mf _1mj" data-offset-key="cvjp9-0-0"><span data-offset-key="cvjp9-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="db9no-0-0"><div class="_1mf _1mj" data-offset-key="db9no-0-0"><span data-offset-key="db9no-0-0"><span data-text="true">As far as other pain goes, I still get the lightning strikes through the entire breast, pain at my sternum, and random sharp pains, but they don't last as long as they had previously. On the whole, I am glad to say that the severity of internal breast pain has greatly improved. Certain times of the day it does get worse, though. Around 2 pm, for some reason, the pain comes on hard. It's also bad later in the evening. I've been taking Alleve prior to those times to try to lessen the pain. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="an8v9-0-0"><div class="_1mf _1mj" data-offset-key="an8v9-0-0"><span data-offset-key="an8v9-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="a8n1a-0-0"><div class="_1mf _1mj" data-offset-key="a8n1a-0-0"><span data-offset-key="a8n1a-0-0"><span data-text="true">So, hope in 2 tubes. I'm glad that the universe nudged me to call the dermatologist and use the C card to get in quickly. I can't imagine how much worse it would have gotten if I hadn't. The best news is that since Thursday night, I've slept at a minimum 5 hours each night. Last night, I slept 6 hours! Being able to sleep has made such a difference, and I am so very grateful for it. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="d52h2-0-0"><div class="_1mf _1mj" data-offset-key="d52h2-0-0"><span data-offset-key="d52h2-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="4akdh-0-0"><div class="_1mf _1mj" data-offset-key="4akdh-0-0"><span data-offset-key="4akdh-0-0"><span data-text="true">This week, no doctors' visits, thankfully. I will have my first virtual breast cancer support group session on Tuesday evening, thanks to a friend's recommendation. It will be good to "meet" other women experiencing the same things. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="3uk7r-0-0"><div class="_1mf _1mj" data-offset-key="3uk7r-0-0"><span data-offset-key="3uk7r-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="3k9uv-0-0"><div class="_1mf _1mj" data-offset-key="3k9uv-0-0"><span data-offset-key="3k9uv-0-0"><span data-text="true">Thanks, as always, for your feedback, kind thoughts, funny emails and private messages, gifts, prayers, and love. I appreciate all the positive energy coming my way. Hope you all are safe and well. </span></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="at1k9-0-0"><div class="_1mf _1mj" data-offset-key="at1k9-0-0"><span data-offset-key="at1k9-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="270av" data-offset-key="adnab-0-0"><div class="_1mf _1mj" data-offset-key="adnab-0-0"><span data-offset-key="adnab-0-0"><span data-text="true">If you haven't scheduled your mammogram yet, early detection is key.</span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-57682671655169135262022-01-12T19:56:00.003-05:002022-01-12T19:56:57.466-05:00The Breast Cancer Diaries, vol. 2, issue 2<div data-contents="true"><div class="" data-block="true" data-editor="dvv5" data-offset-key="fs9uj-0-0"><div class="_1mf _1mj" data-offset-key="fs9uj-0-0"><b><span data-offset-key="fs9uj-0-0"><span data-text="true">A Milestone and a Lot More Pain</span></span></b></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="1ie6b-0-0"><div class="_1mf _1mj" data-offset-key="1ie6b-0-0"><span data-offset-key="1ie6b-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="pitj-0-0"><div class="_1mf _1mj" data-offset-key="pitj-0-0"><span data-offset-key="pitj-0-0"><span data-text="true">You'll be glad to know that I'm keeping this entry short. I'm exhausted and in a high degree of pain. I just don't have it in me to write for any length of time right now. </span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="aa29u-0-0"><div class="_1mf _1mj" data-offset-key="aa29u-0-0"><span data-offset-key="aa29u-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="5cdnj-0-0"><div class="_1mf _1mj" data-offset-key="5cdnj-0-0"><span data-offset-key="5cdnj-0-0"><span data-text="true">Today was my last day of radiation treatment. Rang the hand bell at the nurses' station and everything. Wish I could say the moment was triumphant, but it felt anticlimactic because there's another two weeks or so of radiation side effects ahead of me.</span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="24es8-0-0"><div class="_1mf _1mj" data-offset-key="24es8-0-0"><span data-offset-key="24es8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="fbrp4-0-0"><div class="_1mf _1mj" data-offset-key="fbrp4-0-0"><span data-offset-key="fbrp4-0-0"><span data-text="true">This has been the toughest week yet, and it's only Wednesday. I haven't slept much in days because the pain from the radiation burns has increased a great deal. When I do sleep, it might be for 40 minutes, then there's searing pain under the breast, where it's raw, open, blistered, and weeping. The weeping started yesterday. It's as awful as it sounds. I've been cleaning the area with cotton rounds soaked in antiseptic at least 4 times a day, but it just keeps on weeping.</span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="5hils-0-0"><div class="_1mf _1mj" data-offset-key="5hils-0-0"><span data-offset-key="5hils-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="3ms5c-0-0"><div class="_1mf _1mj" data-offset-key="3ms5c-0-0"><span data-offset-key="3ms5c-0-0"><span data-text="true">There's also my armpit, which is barely recognizable. It's swollen (not like the seroma, but the whole thing), very angry looking, and open in two spots. That piece is a mystery to me. The armpit has barely been any trouble since the beginning of the treatment, but since I've been receiving the "boost" to the scar on the breast (not the armpit), it's turned into a truly sore spot. </span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="d0i85-0-0"><div class="_1mf _1mj" data-offset-key="d0i85-0-0"><span data-offset-key="d0i85-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="e536p-0-0"><div class="_1mf _1mj" data-offset-key="e536p-0-0"><span data-offset-key="e536p-0-0"><span data-text="true">I've been doing all I can with the moisturizers, calendula, Neosporin, and cortisone creams, but the burns have gotten the better of me. Dr. Desai said that they expected it and offered me a narcotic for the pain, which I declined because I don't take narcotics (my anniversary is coming up, watch for the post). He also said to watch for a fever because it's easy to develop an infection at this point. Frankly, it looks pretty scary to me already. </span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="11rl-0-0"><div class="_1mf _1mj" data-offset-key="11rl-0-0"><span data-offset-key="11rl-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="bgqsk-0-0"><div class="_1mf _1mj" data-offset-key="bgqsk-0-0"><span data-offset-key="bgqsk-0-0"><span data-text="true">I made an appointment for tomorrow morning with a new dermatologist. Turns out, my guy retired. He is younger than I am by about 15 years, and I said something like that to the scheduler who said he took a medical retirement. Hope he's OK. He was a good doctor. </span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="ccub2-0-0"><div class="_1mf _1mj" data-offset-key="ccub2-0-0"><span data-offset-key="ccub2-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="csu0-0-0"><div class="_1mf _1mj" data-offset-key="csu0-0-0"><span data-offset-key="csu0-0-0"><span data-text="true">I told the scheduler of my situation and asked if either of the docs had experience with radiation burns from treatment. She said they both could deal with it. I told her of the immediacy, and she squeezed me in. Hopefully, the doc will be able to offer me some hope and relief. </span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="8bdos-0-0"><div class="_1mf _1mj" data-offset-key="8bdos-0-0"><span data-offset-key="8bdos-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="6kgvr-0-0"><div class="_1mf _1mj" data-offset-key="6kgvr-0-0"><span data-offset-key="6kgvr-0-0"><span data-text="true">Wish me luck! </span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="677q6-0-0"><div class="_1mf _1mj" data-offset-key="677q6-0-0"><span data-offset-key="677q6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="1t1h4-0-0"><div class="_1mf _1mj" data-offset-key="1t1h4-0-0"><span data-offset-key="1t1h4-0-0"><span data-text="true">Thanks, as ever, for your continued support, prayers, and love. I appreciate it more than you will ever know. </span></span></div></div><div class="" data-block="true" data-editor="dvv5" data-offset-key="f9pqq-0-0"><div class="_1mf _1mj" data-offset-key="f9pqq-0-0"><span data-offset-key="f9pqq-0-0"><br data-text="true" /><br /></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-40164301938353012702022-01-06T15:55:00.003-05:002022-01-06T15:55:40.984-05:00The Breast Cancer Diaries, vol. 2, issue 1<div data-contents="true"><div class="" data-block="true" data-editor="fhmcs" data-offset-key="246bu-0-0"><div class="_1mf _1mj" data-offset-key="246bu-0-0"><b><span data-offset-key="246bu-0-0"><span data-text="true">Radiation Burns and the Change in Orientation and Target</span></span></b></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="e1vfp-0-0"><div class="_1mf _1mj" data-offset-key="e1vfp-0-0"><span data-offset-key="e1vfp-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="2k79q-0-0"><div class="_1mf _1mj" data-offset-key="2k79q-0-0"><span data-offset-key="2k79q-0-0"><span data-text="true">Well, it's been a bit of a tough week since the last diary entry. I now have radiation burns in the crease, under my left breast. And, wow, the lightning pain has increased in intensity and frequency. There's also a lot of pain when I change position in bed. Sleep is precious and in short supply. </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="2s19e-0-0"><div class="_1mf _1mj" data-offset-key="2s19e-0-0"><span data-offset-key="2s19e-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="dinh-0-0"><div class="_1mf _1mj" data-offset-key="dinh-0-0"><span data-offset-key="dinh-0-0"><span data-text="true">Thankfully, yesterday was the last time that the entire breast will be irradiated. However, I am reminded by every medical professional I see that "radiation is cumulative, and it will get worse before it gets better." </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="ac52o-0-0"><div class="_1mf _1mj" data-offset-key="ac52o-0-0"><span data-offset-key="ac52o-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="e876p-0-0"><div class="_1mf _1mj" data-offset-key="e876p-0-0"><span data-offset-key="e876p-0-0"><span data-text="true">I've heard that sentence at least twice a day so far this week. I've had to say it to pretty much everyone I've talked to who hasn't had cancer. Essentially, it means that for the next two weeks or so after my last treatment on January 12, my boob will keep on cooking inside and out. </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="4uihn-0-0"><div class="_1mf _1mj" data-offset-key="4uihn-0-0"><span data-offset-key="4uihn-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="14pvh-0-0"><div class="_1mf _1mj" data-offset-key="14pvh-0-0"><span data-offset-key="14pvh-0-0"><span data-text="true">The burns have caused open wounds, which sting like crazy. The Dr. Desai thought I'd be able to tolerate the Silvadene cream he prescribed. But no. I'm allergic to sulfa, which is one of the primary ingredients. I had a reaction and had to stop it because it made things worse. </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="7gnb1-0-0"><div class="_1mf _1mj" data-offset-key="7gnb1-0-0"><span data-offset-key="7gnb1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="d861v-0-0"><div class="_1mf _1mj" data-offset-key="d861v-0-0"><span data-offset-key="d861v-0-0"><span data-text="true">For now, I'm employing my old friend from removing the adhesive after the surgery, Band-Aid's Hurt Free antiseptic wash. After I very gently pat it onto the area with soaked cotton rounds, I let it dry, or dry it with the hair dryer on the cool setting from an arm's length away. Then, I gently apply Neosporin cream. When I spoke to Dr. Desai about it today, he said that now that the area isn't receiving treatment directly, with how I'm caring for it, the area should start improving in 7-10 days. He also said that everything I'm experiencing is expected and typical (aside from the allergies).</span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="vkpr-0-0"><div class="_1mf _1mj" data-offset-key="vkpr-0-0"><span data-offset-key="vkpr-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="46vbb-0-0"><div class="_1mf _1mj" data-offset-key="46vbb-0-0"><span data-offset-key="46vbb-0-0"><span data-text="true">This next part is tricky to explain, but I'll do my best. The radiation therapists recommended getting as much air on the area as possible, which is a challenge when I'm carting around the boob that ate Clifton. But, what I've been doing is using a t-shirt as a sling, and lying on the bed holding the boob up and away from the crease. I'll do this for a couple of hours at a time. At first, I was using my left hand to support the breast, but it started bothering my shoulder. Necessity is the mother of invention, so they say. </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="dnkaj-0-0"><div class="_1mf _1mj" data-offset-key="dnkaj-0-0"><span data-offset-key="dnkaj-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="d1kai-0-0"><div class="_1mf _1mj" data-offset-key="d1kai-0-0"><span data-offset-key="d1kai-0-0"><span data-text="true">The drawback to doing this is that my boob really hurts inside. The new position isn't comfortable. But, it's what I have to do to heal the burns, and that's a higher priority at the moment. </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="ab96k-0-0"><div class="_1mf _1mj" data-offset-key="ab96k-0-0"><span data-offset-key="ab96k-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="c1nmb-0-0"><div class="_1mf _1mj" data-offset-key="c1nmb-0-0"><span data-offset-key="c1nmb-0-0"><span data-text="true">Now that I'm back to working at home in the mornings after 2 weeks of vacation, I am airing the area in the afternoons and evenings. After I post this entry, I will assume that position and watch the rest of "Don't Look Up." [Sidebar, I've gained a new appreciation for Leonardo DiCaprio.]</span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="d5f2a-0-0"><div class="_1mf _1mj" data-offset-key="d5f2a-0-0"><span data-offset-key="d5f2a-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="7n2k2-0-0"><div class="_1mf _1mj" data-offset-key="7n2k2-0-0"><span data-offset-key="7n2k2-0-0"><span data-text="true">Today, the radiation therapists and Dr. Desai set me up to treat the scar area on the left side of my breast, to give a "boost" to the area where the cancer was removed. As I mentioned last time, I'm now on my right side, left shoulder tilted somewhat to the left, with my left hand on my left hip. The set up takes a bit longer and requires clear stickers in three locations by the scar. Tammy, my favorite therapist, drew a large black marker circle around the scar to denote the treatment area. (Note to self, wear black t-shirts for after the next 4 treatments.) She, or whomever will be treating me, will do it each time. The radiation itself lasts about 20 seconds. </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="ejt6f-0-0"><div class="_1mf _1mj" data-offset-key="ejt6f-0-0"><span data-offset-key="ejt6f-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="cb9g7-0-0"><div class="_1mf _1mj" data-offset-key="cb9g7-0-0"><span data-offset-key="cb9g7-0-0"><span data-text="true">Before I got off the table today, Tammy assured me that the burns were not as bad as most of what she's seen, so I feel pretty good about that, but sad for the women with the tougher burns. Since TCNJ's president gave us all a day off tomorrow, I can spend more time getting air to the area to help it heal. In fact, I'll be doing a lot of that all weekend long.</span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="6ljd2-0-0"><div class="_1mf _1mj" data-offset-key="6ljd2-0-0"><span data-offset-key="6ljd2-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="6eqme-0-0"><div class="_1mf _1mj" data-offset-key="6eqme-0-0"><span data-offset-key="6eqme-0-0"><span data-text="true">On the other side of that restful coin is the fact that I've had to cut my calorie intake significantly. It's to make up for the fact that I haven't been able to exercise since the appearance of the burns, which are located exactly where my bra band sits, under my breast. It's a challenge all the way around. When I wear a bra, I experience pain from the wounds. When I don't, I experience the gravity pains. Wounds win. No bra for most of the time until there's improvement.</span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="3uado-0-0"><div class="_1mf _1mj" data-offset-key="3uado-0-0"><span data-offset-key="3uado-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="a0gtm-0-0"><div class="_1mf _1mj" data-offset-key="a0gtm-0-0"><span data-offset-key="a0gtm-0-0"><span data-text="true">I just telling myself that this will all pass shortly, and if I can jsut hang on until February, I'll see and feel improvement and healing.</span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="bc93o-0-0"><div class="_1mf _1mj" data-offset-key="bc93o-0-0"><span data-offset-key="bc93o-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="9q6tm-0-0"><div class="_1mf _1mj" data-offset-key="9q6tm-0-0"><span data-offset-key="9q6tm-0-0"><span data-text="true">Then, the next stage begins: medications to throw me into menopause and block estrogen. And all the adventures that go along with them. </span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="9qmj1-0-0"><div class="_1mf _1mj" data-offset-key="9qmj1-0-0"><span data-offset-key="9qmj1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="8rrck-0-0"><div class="_1mf _1mj" data-offset-key="8rrck-0-0"><span data-offset-key="8rrck-0-0"><span data-text="true">Thanks, as ever, to everyone following along who sends good cheer, exceedingly funny and dark memes (more of those, please!), hugs, positive vibes, prayers, and love. Your continued support through this challenging time means a great deal to me. Right back atcha.</span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="dotl6-0-0"><div class="_1mf _1mj" data-offset-key="dotl6-0-0"><span data-offset-key="dotl6-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="35fh9-0-0"><div class="_1mf _1mj" data-offset-key="35fh9-0-0"><span data-offset-key="35fh9-0-0"><span data-text="true">P.S.</span></span></div></div><div class="" data-block="true" data-editor="fhmcs" data-offset-key="bdoki-0-0"><div class="_1mf _1mj" data-offset-key="bdoki-0-0"><span data-offset-key="bdoki-0-0"><span data-text="true">Friends have asked again for links to my lists. Since a few people have said they do not wish to use Amazon, I created a wool list at one of my favorite small businesses, Jimmy Beans Wool: Click on this link </span></span><span class="py34i1dx"><span data-offset-key="bdoki-1-0"><span data-text="true">https://www.jimmybeanswool.com/secure-html/onlineec/accountWishListSelect.asp</span></span></span><span data-offset-key="bdoki-2-0"><span data-text="true"> and enter my email address. If you put it in as a referral, you'll get free shipping and I'll get a discount on my next order, too! If you don't have my email, private message me for it. Thanks! </span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-10912894090184822962021-12-31T12:02:00.000-05:002021-12-31T12:02:45.860-05:00The Breast Cancer Diaries, vol. 1, issue 17<p><b> <span data-offset-key="38dc9-0-0"><span data-text="true">Radiation Week 3 Done, Feeling the Effects</span></span></b></p><div class="" data-block="true" data-editor="7dnpt" data-offset-key="aeqi4-0-0"><div class="_1mf _1mj" data-offset-key="aeqi4-0-0"><span data-offset-key="aeqi4-0-0"></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="fkidt-0-0"><div class="_1mf _1mj" data-offset-key="fkidt-0-0"><span data-offset-key="fkidt-0-0"><span data-text="true">Some interesting and different stuff happened this week, as far as side effects go, and I'll get to them in a moment. But first, I had a pretty big day yesterday, treatment-wise. Before being taken in for radiation, I was met by Tammy, who had given me my first treatment tattoo and set me up with the CT. She told me that after my radiation, I would need to take another CT to prepare for the last leg of my treatment beginning later next week. Now that I've experienced some swelling and other changes in the breast, I can understand why they waited to take this CT until yesterday. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="d47h8-0-0"><div class="_1mf _1mj" data-offset-key="d47h8-0-0"><span data-offset-key="d47h8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="47khp-0-0"><div class="_1mf _1mj" data-offset-key="47khp-0-0"><span data-offset-key="47khp-0-0"><span data-text="true">A quick memory jog for you: the first 16 sessions take place with my body facing down, left breast hanging through a hole in the table. The radiation machine treats one side of the area from the armpit to the ribs just below my breast, then swings above me (always feels like it's close enough to bonk me on the head, but never does) and treats the other side, extending to the center of my ribcage. Sometimes, they do it in reverse order. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="c9eaq-0-0"><div class="_1mf _1mj" data-offset-key="c9eaq-0-0"><span data-offset-key="c9eaq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="7ef82-0-0"><div class="_1mf _1mj" data-offset-key="7ef82-0-0"><span data-offset-key="7ef82-0-0"><span data-text="true">The final 5 sessions, which they call a booster, will take place with my body laying on my right side, twisted with my left shoulder leaning back so that my scar side of the left breast is available for very targeted treatment. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="9kmjh-0-0"><div class="_1mf _1mj" data-offset-key="9kmjh-0-0"><span data-offset-key="9kmjh-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="eg3se-0-0"><div class="_1mf _1mj" data-offset-key="eg3se-0-0"><span data-offset-key="eg3se-0-0"><span data-text="true">Tammy and her colleague Kim (who sometimes sets up my treatment with Mitch, who is always there) instructed me to lie onto a thick, blue, bean bag-like pad on top of the CT table. Then, after explaining what would happen, they pushed the pad up around me so that it formed to my body's shape in that position. Then, Tammy used a compressor to vacuum the air out of the pad. The newly shaped form will be used for the future treatments to ensure they treat the same area each time. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="1k45d-0-0"><div class="_1mf _1mj" data-offset-key="1k45d-0-0"><span data-offset-key="1k45d-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="bap9m-0-0"><div class="_1mf _1mj" data-offset-key="bap9m-0-0"><span data-offset-key="bap9m-0-0"><span data-text="true">They also took digital photographs of me in the position, similarly to they way they photographed me in the position I've been in for the past three weeks. That weirded me out because I'm really protective of my physical self. But, it's necessary for them to make sure they're getting the same spot at my scar every time. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="b7of3-0-0"><div class="_1mf _1mj" data-offset-key="b7of3-0-0"><span data-offset-key="b7of3-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="bm6kj-0-0"><div class="_1mf _1mj" data-offset-key="bm6kj-0-0"><span data-offset-key="bm6kj-0-0"><span data-text="true">Afterward, I walked across Easton Avenue to the CARES building at St. Peter's for my appointment with Dr. McManus, my breast surgeon. As ever, she thoroughly examined the area, especially the new scar offshoot in my armpit and my exceedingly sore nipple area (more on that later). Dr. McManus said that there is nothing to worry about, thankfully, and that everything she was seeing was as to be expected from radiation. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="1ghr0-0-0"><div class="_1mf _1mj" data-offset-key="1ghr0-0-0"><span data-offset-key="1ghr0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="dnfdb-0-0"><div class="_1mf _1mj" data-offset-key="dnfdb-0-0"><span data-offset-key="dnfdb-0-0"><span data-text="true">Then, she leaned in very close (we were both double-masked, with N95s underneath), held my newly trimmed head in her hands, looked me in the eyes, and said, "You're going to get through this, and you're going to be OK." It was profoundly comforting. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="c61c1-0-0"><div class="_1mf _1mj" data-offset-key="c61c1-0-0"><span data-offset-key="c61c1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="4ms7b-0-0"><div class="_1mf _1mj" data-offset-key="4ms7b-0-0"><span data-offset-key="4ms7b-0-0"><span data-text="true">Speaking of newly trimmed, thanks again to Kate Jaggers, who gave me the Wahl trimmers; they have come in very handy! (Although, I need practice getting the back of my head.)</span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="cekqi-0-0"><div class="_1mf _1mj" data-offset-key="cekqi-0-0"><span data-offset-key="cekqi-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="1hkgk-0-0"><div class="_1mf _1mj" data-offset-key="1hkgk-0-0"><span data-offset-key="1hkgk-0-0"><span data-text="true">To say that I'm grateful to have today off from radiation is putting it lightly. This week, I've been feeling the side effects much more broadly and consistently. In short, the entire left side of my chest hurts all the time now. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="bip95-0-0"><div class="_1mf _1mj" data-offset-key="bip95-0-0"><span data-offset-key="bip95-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="du74u-0-0"><div class="_1mf _1mj" data-offset-key="du74u-0-0"><span data-offset-key="du74u-0-0"><span data-text="true">Sleep has been even more difficult than usual because if I turn and/or twist, I'll awake from the pain. It's been a strong pulling sensation just to the left of my sternum and along my left flank, below the armpit. The armpit discomfort is pretty steady, as usual. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="eqd2j-0-0"><div class="_1mf _1mj" data-offset-key="eqd2j-0-0"><span data-offset-key="eqd2j-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="5ornr-0-0"><div class="_1mf _1mj" data-offset-key="5ornr-0-0"><span data-offset-key="5ornr-0-0"><span data-text="true">Another sensation that has returned from post-surgery days is the feeling of having a lightning storm in my left breast. It's like an electric stabbing feeling that starts at my very sore nipple and goes straight back to my chest wall, spreading throughout the breast along the way. Thankfully, I'm having a break from that particular nightmare today, but it sucked mightily yesterday and didn't let up much at all. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="6i74s-0-0"><div class="_1mf _1mj" data-offset-key="6i74s-0-0"><span data-offset-key="6i74s-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="bug7d-0-0"><div class="_1mf _1mj" data-offset-key="bug7d-0-0"><span data-offset-key="bug7d-0-0"><span data-text="true">Even though I've been advised to wear a cotton bra, today I've returned to my sports bras for more support. It's been helpful. The suggestion to return to more support came from Dr. McManus. I've doubled the frequency of cream applications, which is helping take care of my skin. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="44omf-0-0"><div class="_1mf _1mj" data-offset-key="44omf-0-0"><span data-offset-key="44omf-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="phr9-0-0"><div class="_1mf _1mj" data-offset-key="phr9-0-0"><span data-offset-key="phr9-0-0"><span data-text="true">If it wasn't so slathered in therapeutic creams such as Calendula and Cetaphil eczema, I think the nipple area would be in really bad shape. Tammy commented on it, "That looks really raw and angry." That's exactly how it feels, Tam. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="6mkl0-0-0"><div class="_1mf _1mj" data-offset-key="6mkl0-0-0"><span data-offset-key="6mkl0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="5q2fd-0-0"><div class="_1mf _1mj" data-offset-key="5q2fd-0-0"><span data-offset-key="5q2fd-0-0"><span data-text="true">The rest of the breast is now pretty red, although the scar side remains paler than the inside portion. I asked Dr. Desai's nurse about that, and she said that it happens. I'll see Dr. Desai again on Monday, as per usual. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="fhbkv-0-0"><div class="_1mf _1mj" data-offset-key="fhbkv-0-0"><span data-offset-key="fhbkv-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="f0r44-0-0"><div class="_1mf _1mj" data-offset-key="f0r44-0-0"><span data-offset-key="f0r44-0-0"><span data-text="true">Otherwise, the prevailing fatigue has really set in. After I do most things, I need a rest. By 2 pm, I'm wiped out. That side effect makes most things a struggle, so during this 2-week vacation, I've been trying to do what I can while I have energy, and resting when I don't. Mornings are much better than any other time. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="3kh8r-0-0"><div class="_1mf _1mj" data-offset-key="3kh8r-0-0"><span data-offset-key="3kh8r-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="49ttu-0-0"><div class="_1mf _1mj" data-offset-key="49ttu-0-0"><span data-offset-key="49ttu-0-0"><span data-text="true">I'm also having increased memory problems, although that also could be hormones (or lack thereof). I've been forgetting which days I've made plans to walk with people or forgetting to look on the calendar. I've also been forgetting more words than usual. It's tiresome, but for now, I'm very grateful for people who finish my sentences. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="bn5o4-0-0"><div class="_1mf _1mj" data-offset-key="bn5o4-0-0"><span data-offset-key="bn5o4-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="d78up-0-0"><div class="_1mf _1mj" data-offset-key="d78up-0-0"><span data-offset-key="d78up-0-0"><span data-text="true">After I finish radiation, there's a gap of a couple of weeks before I start the next phase of treatment with Dr. Omene. The break will be appreciated, I predict. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="42a12-0-0"><div class="_1mf _1mj" data-offset-key="42a12-0-0"><span data-offset-key="42a12-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="5haii-0-0"><div class="_1mf _1mj" data-offset-key="5haii-0-0"><span data-offset-key="5haii-0-0"><span data-text="true">Thanks again, especially to everyone who has been checking in on me lately. I know I haven't been reaching out the way I normally would. I'm just wiped out and stuff hurts.</span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="310ss-0-0"><div class="_1mf _1mj" data-offset-key="310ss-0-0"><span data-offset-key="310ss-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="3rdqa-0-0"><div class="_1mf _1mj" data-offset-key="3rdqa-0-0"><span data-offset-key="3rdqa-0-0"><span data-text="true">Thanks, as always, for the prayers, kind thoughts, positive energy, very funny memes and images, movie and TV recommendations, gifts, and love. I am grateful for your continued reading of these diary entries. I can only hope that someone finds them useful someday (or today).</span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="31of8-0-0"><div class="_1mf _1mj" data-offset-key="31of8-0-0"><span data-offset-key="31of8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="7bjpq-0-0"><div class="_1mf _1mj" data-offset-key="7bjpq-0-0"><span data-offset-key="7bjpq-0-0"><span data-text="true">If you haven't gotten your mammogram, please schedule it. Early detection is key. </span></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="alpg-0-0"><div class="_1mf _1mj" data-offset-key="alpg-0-0"><span data-offset-key="alpg-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="7dnpt" data-offset-key="95iri-0-0"><div class="_1mf _1mj" data-offset-key="95iri-0-0"><span data-offset-key="95iri-0-0"><span data-text="true">Happy New Year!!! </span></span></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-17623824835878023162021-12-24T08:34:00.002-05:002021-12-24T08:34:10.432-05:00The Breast Cancer Diaries, vol. 1, issue 16<p><b><span data-offset-key="96erd-0-0"><span data-text="true">Radiation: Nine Treatments Down, 12 to Go</span></span></b></p><div data-contents="true"><div class="" data-block="true" data-editor="3q3fs" data-offset-key="vd4g-0-0"><div class="_1mf _1mj" data-offset-key="vd4g-0-0"><span data-offset-key="vd4g-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="96cib-0-0"><div class="_1mf _1mj" data-offset-key="96cib-0-0"><span data-offset-key="96cib-0-0"><span data-text="true">I have a little break today because the radiation treatment center at St. Peter's is closed for Christmas Eve. Even though this and next week's shorter treatment schedule stretches out the number of weeks, I'm glad for the slight pause. Why? I'm feeling some side effects. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="fe5mq-0-0"><div class="_1mf _1mj" data-offset-key="fe5mq-0-0"><span data-offset-key="fe5mq-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="dtsti-0-0"><div class="_1mf _1mj" data-offset-key="dtsti-0-0"><span data-offset-key="dtsti-0-0"><span data-text="true">On Tuesday, I met Marilyn at Colonial Park for a walk on the D&R Canal Path, expecting it to be pretty typical of our walks. However, this time, it was a struggle. I'd gone for treatment 2 hours earlier, and was feeling a lot of heaviness in my breast, skin sensitivity, acute soreness in my armpit and left side of the breast, and fatigue. Marilyn is used to walking at a quick pace, and normally that's no problem for me. Not this week, though. On the return trip (we had walked south for an hour and then turned around), I kept having to let her know that I simply couldn't walk any faster. It was just too painful and my breathing was labored (which came as a big surprise to me since I've been on the treadmill regularly and going out for walks). I may limit my walks to an hour until after the treatment is over. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="bq0ai-0-0"><div class="_1mf _1mj" data-offset-key="bq0ai-0-0"><span data-offset-key="bq0ai-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="7pj7-0-0"><div class="_1mf _1mj" data-offset-key="7pj7-0-0"><span data-offset-key="7pj7-0-0"><span data-text="true">My friend Joe, who experienced his own battle with cancer, had warned me that it would get increasingly worse before it gets better. I'm grateful to have been prepared. Talking with many others who have traveled this path previously (no matter what the cancer) has been very useful. Everyone's experience seems to be uniquely theirs. Some people don't have a hard time with radiation, while others like me do.</span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="4rr79-0-0"><div class="_1mf _1mj" data-offset-key="4rr79-0-0"><span data-offset-key="4rr79-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="7fjhd-0-0"><div class="_1mf _1mj" data-offset-key="7fjhd-0-0"><span data-offset-key="7fjhd-0-0"><span data-text="true">I met with Dr. Desai twice this week, on Tuesday and Thursday. I asked him what I should do about the next booster since I'm on the J&J vaccine and have had my 2 shots. He recommended getting a booster every 6 months, but if I can get it in January (will be 5 months), I should. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="2190m-0-0"><div class="_1mf _1mj" data-offset-key="2190m-0-0"><span data-offset-key="2190m-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="fpvsf-0-0"><div class="_1mf _1mj" data-offset-key="fpvsf-0-0"><span data-offset-key="fpvsf-0-0"><span data-text="true">He's keeping a close eye on the changes to the scar and the seroma in my armpit, as well as any changes to the left breast and the skin underneath it. The redness of my skin and associated nipple pain had become considerable, so he instructed me to double the applications of calendula and/or Cetaphil cream for eczema. I'm alternating between the two every few hours, which has helped some. Although at the rate we're going with all this, I may reach the point when I'm constantly schmearing myself with emollients. My original joke with radiation was "Deb, the other white meat," but in reality, I've become a toasted bagel. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="5eru0-0-0"><div class="_1mf _1mj" data-offset-key="5eru0-0-0"><span data-offset-key="5eru0-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="f7kcs-0-0"><div class="_1mf _1mj" data-offset-key="f7kcs-0-0"><span data-offset-key="f7kcs-0-0"><span data-text="true">I've also begun taking Aleve again daily, which means Nexium, too. When I take Aleve for any long term pain, it causes its own problems. I've tried other medications that I can tolerate, but they haven't been effective for me. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="3m4o2-0-0"><div class="_1mf _1mj" data-offset-key="3m4o2-0-0"><span data-offset-key="3m4o2-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="7n6ih-0-0"><div class="_1mf _1mj" data-offset-key="7n6ih-0-0"><span data-offset-key="7n6ih-0-0"><span data-text="true">This couse of treatment is to help with the inflammation. I'm experiencing some notable swelling throughout the treatment area this week, and the NSAIDs should help with that. Although frankly, it just hurts all the time. Sometimes it's a continuous dull ache. Sometimes it's the ache plus some stabbing. For instance, as I type this, I'm feeling the big dull ache plus some stabbing in my armpit and left side of my breast. A moment ago, when I got up to apply some cream, I felt the pain of gravity and the swelling.</span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="1qrop-0-0"><div class="_1mf _1mj" data-offset-key="1qrop-0-0"><span data-offset-key="1qrop-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="6kjug-0-0"><div class="_1mf _1mj" data-offset-key="6kjug-0-0"><span data-offset-key="6kjug-0-0"><span data-text="true">I just keep telling myself, "This is only temporary. It's just going to feel this way and increasingly worse for just a couple of months." This technique actually works for me, knowing that it will really suck for a period of time, but that there's an eventual endpoint to this pain. I just have to tough it out for a while and endure the new reality as it comes. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="c0koi-0-0"><div class="_1mf _1mj" data-offset-key="c0koi-0-0"><span data-offset-key="c0koi-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="d8r6a-0-0"><div class="_1mf _1mj" data-offset-key="d8r6a-0-0"><span data-offset-key="d8r6a-0-0"><span data-text="true">Which is not to say that it hasn't crossed my mind that "increasingly worse" could get really bad. When it does, I practice what Rose calls, "Just-in-time worrying." I'm leaving the future in the future and staying in today. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="6lffe-0-0"><div class="_1mf _1mj" data-offset-key="6lffe-0-0"><span data-offset-key="6lffe-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="4q008-0-0"><div class="_1mf _1mj" data-offset-key="4q008-0-0"><span data-offset-key="4q008-0-0"><span data-text="true">For those of you keeping score, the armpit scar seems to have reached a stopping point with regard to the length/size of the new offshoot. That whole area gets especially red and tender after treatments now. I will see Dr. McManus (my breast surgeon) on the 30th to get her take on it and to give her a halfway milestone on the treatment. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="cibre-0-0"><div class="_1mf _1mj" data-offset-key="cibre-0-0"><span data-offset-key="cibre-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="f8o99-0-0"><div class="_1mf _1mj" data-offset-key="f8o99-0-0"><span data-offset-key="f8o99-0-0"><span data-text="true">During this week, I've been on vacation and will be next week, too. I'm grateful for the big blocks of time to rest (and to slather on the creams). The recent covid spike has resulted in my returning to my practices of early in the pandemic: only meeting people for walks outdoors (and limiting those), having groceries delivered, and keeping out of indoor public places. If I weren't feeling so sore and wiped out, I'd probably be having a hard time returing to hermitude. So far, the isolation is small potatoes. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="1hpum-0-0"><div class="_1mf _1mj" data-offset-key="1hpum-0-0"><span data-offset-key="1hpum-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="1k0o-0-0"><div class="_1mf _1mj" data-offset-key="1k0o-0-0"><span data-offset-key="1k0o-0-0"><span data-text="true">Mind you, the huge amount of privilege I have to be able to live this way doesn't escape me for one moment. I am profoundly grateful to be able to afford the outrageous health insurance that covers the best care possible. So many people are not this fortunate, and we are way long overdue for GOOD universal health care. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="crad8-0-0"><div class="_1mf _1mj" data-offset-key="crad8-0-0"><span data-offset-key="crad8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="9jpu1-0-0"><div class="_1mf _1mj" data-offset-key="9jpu1-0-0"><span data-offset-key="9jpu1-0-0"><span data-text="true">I'm trying not to think about what happens when the divorce COBRA expires at the end of 2022. But I will reach out to Cigna to seek options because this plan has been a lifesaver, literally. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="4rlcr-0-0"><div class="_1mf _1mj" data-offset-key="4rlcr-0-0"><span data-offset-key="4rlcr-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="fm969-0-0"><div class="_1mf _1mj" data-offset-key="fm969-0-0"><span data-offset-key="fm969-0-0"><span data-text="true">As ever, I am truly grateful for all your positive thoughts, prayers, kind wishes, gifts, and cheering on (I'm looking at you Mele). I enjoy reading all your feedback in comments, as well as those in private messages and handwritten letters. Thanks for your friendship and love during these challenging times for all of us. </span></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="dgp65-0-0"><div class="_1mf _1mj" data-offset-key="dgp65-0-0"><span data-offset-key="dgp65-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="3q3fs" data-offset-key="djajd-0-0"><div class="_1mf _1mj" data-offset-key="djajd-0-0"><span data-offset-key="djajd-0-0"><span data-text="true">Merry Christmas to all who celebrate!</span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-45476525860994621512021-12-17T12:44:00.004-05:002021-12-17T12:44:45.910-05:00The Breast Cancer Diaries, vol. 1, issue 15<p></p><div data-contents="true"><div class="" data-block="true" data-editor="d39c9" data-offset-key="9362f-0-0"><div class="_1mf _1mj" data-offset-key="9362f-0-0"><b><span data-offset-key="9362f-0-0"><span data-text="true">Week 1 of Radiation Is in the Bag</span></span></b></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="bnd18-0-0"><div class="_1mf _1mj" data-offset-key="bnd18-0-0"><span data-offset-key="bnd18-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="f4hhk-0-0"><div class="_1mf _1mj" data-offset-key="f4hhk-0-0"><span data-offset-key="f4hhk-0-0"><span data-text="true">I'm happy to say that as of this morning, I've completed the 5th session of radiation, which means I've just got 16 treatments left to go. So far, the side effects haven't been that bad. But there's one I need to go see my surgeon, Dr. McManus, about. I won't be able to see her until the 30th, though, due to the holiday.</span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="bharf-0-0"><div class="_1mf _1mj" data-offset-key="bharf-0-0"><span data-offset-key="bharf-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="ej45c-0-0"><div class="_1mf _1mj" data-offset-key="ej45c-0-0"><span data-offset-key="ej45c-0-0"><span data-text="true">The incision under my arm, where she removed two lymph nodes has changed. It's tough to explain it, but it now looks like at the bottom end of the smiley face incision, where the smooth scar stops, there's a wiggly scar growing up out of it. My armpit and seroma area especially are now sore. I'll see Dr. Desai on Monday, as I will each week, and he'll take a look at it then. </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="78kbh-0-0"><div class="_1mf _1mj" data-offset-key="78kbh-0-0"><span data-offset-key="78kbh-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="6e3ji-0-0"><div class="_1mf _1mj" data-offset-key="6e3ji-0-0"><span data-offset-key="6e3ji-0-0"><span data-text="true">Dr. McManus had warned me that with radiation two things would happen: 1. I'd probably feel some of the same kind discomfort or pain I had after the surgery, and 2. my breast would change. So far, she was right on both points. As of Tuesday, I'm back to trying to sleep on my right side, with my left arm resting along the top, like I had been after the surgery. Each day this week, there's been some kind of change and addition of discomfort. </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="ar4qg-0-0"><div class="_1mf _1mj" data-offset-key="ar4qg-0-0"><span data-offset-key="ar4qg-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="c3bp1-0-0"><div class="_1mf _1mj" data-offset-key="c3bp1-0-0"><span data-offset-key="c3bp1-0-0"><span data-text="true">Monday was the tattoo bruise, which is much improved thanks to mulitple applications of arnica each day. All of the tattoos are a bit raised so there's a question of whether I'm allergic to the India Ink. They form a constellation of small black dots on the left side of my breast, my side below my breast, on my back, and below my shoulder (where the bruised one is). It wouldn't surprise me if I were allergic. If there's a reaction, weird or otherwise, it seems I'm going to have it. </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="e4tdm-0-0"><div class="_1mf _1mj" data-offset-key="e4tdm-0-0"><span data-offset-key="e4tdm-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="cureo-0-0"><div class="_1mf _1mj" data-offset-key="cureo-0-0"><span data-offset-key="cureo-0-0"><span data-text="true">Tuesday was the addition of the new scar or something else at the lymph incision. Wednesday is what I'm calling Heavy Lefty Day. Since then, it's like Lefty weighs more. Reminds me a lot of the pulling sensation and pain I experienced during the first two weeks after the lumpectomy whenever I removed my bra and needed to hold up Lefty manually. It's not as painful as it was, but, as I said previously, it's changed the way I (try to) sleep. </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="38llc-0-0"><div class="_1mf _1mj" data-offset-key="38llc-0-0"><span data-offset-key="38llc-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="7elpn-0-0"><div class="_1mf _1mj" data-offset-key="7elpn-0-0"><span data-offset-key="7elpn-0-0"><span data-text="true">I'm just having the worst insomnia I've had in my life since I've been off progesterone. Other cancer survivors have talked with me about fatigue. There's a fair amount of it, and I should expect it to worsen as the radiation treatments continue and thereafter for a good month or so. I'm really looking forward to getting a good night's sleep at some point.</span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="egu0g-0-0"><div class="_1mf _1mj" data-offset-key="egu0g-0-0"><span data-offset-key="egu0g-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="c1lso-0-0"><div class="_1mf _1mj" data-offset-key="c1lso-0-0"><span data-offset-key="c1lso-0-0"><span data-text="true">Much as the cotton bras are comfortable and well needed at this time to prevent further skin damage from the radiation, they are not very supportive. For a large-breasted person, this presents challenges when trying to prevent the heaviness discomfort. For one, it means that when I walk with friends, I have to ask them to walk slower because bouncing hurts (see also nipple pain; more on that below). But, it too shall pass. </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="60mu8-0-0"><div class="_1mf _1mj" data-offset-key="60mu8-0-0"><span data-offset-key="60mu8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="99m5o-0-0"><div class="_1mf _1mj" data-offset-key="99m5o-0-0"><span data-offset-key="99m5o-0-0"><span data-text="true">It's a new experience each day. Yesterday, I noticed that my left breast is much warmer than the rest of my body, as one might expect that given the radiation dosage. This morning, I noticed that the scar on the side of my breast has changed color, and there is an extension of the deeper color about 1/8th of an inch on all sides. </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="77goh-0-0"><div class="_1mf _1mj" data-offset-key="77goh-0-0"><span data-offset-key="77goh-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="afa8c-0-0"><div class="_1mf _1mj" data-offset-key="afa8c-0-0"><span data-offset-key="afa8c-0-0"><span data-text="true">Since Monday, the skin on my breast is becoming redder, but only on the side closest to my sternum, and not toward the top. The calendula cream (3x daily so far) is staving off any further burning. Lastly, but not least, my left nipple hurts. All the time. If you've ever experienced chafing there (lots of runners have), you'll understand what I mean. </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="1uocp-0-0"><div class="_1mf _1mj" data-offset-key="1uocp-0-0"><span data-offset-key="1uocp-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="9ccle-0-0"><div class="_1mf _1mj" data-offset-key="9ccle-0-0"><span data-offset-key="9ccle-0-0"><span data-text="true">All things considered, it's really not all that bad. I am pretty tired by the afternoons, but I decided to take some vacation time and will be off from work for the next two weeks. </span></span><span class="diy96o5h" data-offset-key="9ccle-1-0" spellcheck="false" start="181"><span data-offset-key="9ccle-1-0"><span data-text="true">Patty Scott</span></span></span><span data-offset-key="9ccle-2-0"><span data-text="true"> suggested some adventure days, visiting "Some Guy" Park, among other favorites. So, if you're all vaccinated and boosted, and want to meet for a leisurely walk in a Jersey park during the next two weeks, let me know! </span></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="6gkn1-0-0"><div class="_1mf _1mj" data-offset-key="6gkn1-0-0"><span data-offset-key="6gkn1-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="d39c9" data-offset-key="dumar-0-0"><div class="_1mf _1mj" data-offset-key="dumar-0-0"><span data-offset-key="dumar-0-0"><span data-text="true">Thanks, as ever, for your support, kind words, prayers, love, and gifts. I'm always grateful for all the feedback I receive when I post these updates. </span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-86543020981327796612021-12-13T21:12:00.004-05:002021-12-13T21:12:23.273-05:00The Breast Cancer Diaries, vol. 1, issue 14<p><span data-offset-key="d7ifm-0-0"><span data-text="true">Tattoo'ed Me</span></span></p><div data-contents="true"><div class="" data-block="true" data-editor="bn4no" data-offset-key="b7qp-0-0"><div class="_1mf _1mj" data-offset-key="b7qp-0-0"><span data-offset-key="b7qp-0-0"><span data-text="true">Today, I had my first radiation dose and received 4 new tattoos. The set up portion of the appointment took less time than last week's, and was in a different room, with three radiation oncology professionals. I'm not sure (and will ask tomorrow), but one may have been a nurse. One was a trainee being coached through the session.</span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="d7g0r-0-0"><div class="_1mf _1mj" data-offset-key="d7g0r-0-0"><span data-offset-key="d7g0r-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="blfgl-0-0"><div class="_1mf _1mj" data-offset-key="blfgl-0-0"><span data-offset-key="blfgl-0-0"><span data-text="true">The table they had me face down on was similar to the previous one, but had a bit more padding on the bar where my ribs were. I was able to relax my neck and turn it at a better, less uncomfortable angle. Since the last appointment, I've been increasing my exercise and yoga, which I'm sure helped. Overall, the positioning wasn't that bad, and I could hack it. </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="15hqn-0-0"><div class="_1mf _1mj" data-offset-key="15hqn-0-0"><span data-offset-key="15hqn-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="6lfcp-0-0"><div class="_1mf _1mj" data-offset-key="6lfcp-0-0"><span data-offset-key="6lfcp-0-0"><span data-text="true">They took several x-rays and aligned me with the radiation equipment afterward. They marked my skin up on several places on the side of my breast as well as my back and under my arm -- about 2 inches left of the lymph incision scar with black marker. Next, Dr. Desai approved the treatment plan after checking out all the images. Then, they gave me the radiation. </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="10kv3-0-0"><div class="_1mf _1mj" data-offset-key="10kv3-0-0"><span data-offset-key="10kv3-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="1jmdf-0-0"><div class="_1mf _1mj" data-offset-key="1jmdf-0-0"><span data-offset-key="1jmdf-0-0"><span data-text="true">The radiation machine first was positioned on my left side for about 2 minutes, then moved up and over me and down my right side, below the table, for treatment there. The actual treatment took about 5 minutes. </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="62j6l-0-0"><div class="_1mf _1mj" data-offset-key="62j6l-0-0"><span data-offset-key="62j6l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="d3mg5-0-0"><div class="_1mf _1mj" data-offset-key="d3mg5-0-0"><span data-offset-key="d3mg5-0-0"><span data-text="true">Afterward, I was tattooed at the marked up places. They all hurt. "A small pinch" was not what I experienced. More like a quick stab and then a burning feeling. One didn't go well and hurt more than the others. I've got a weird bruise in that spot by the lymph scar. It looks like a deep red circle on top of a dark blue bruise. I put some arnica on it, so that should help. 6 hours later, I'm just a bit sore from the tattoos. </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="fqk6b-0-0"><div class="_1mf _1mj" data-offset-key="fqk6b-0-0"><span data-offset-key="fqk6b-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="5pmje-0-0"><div class="_1mf _1mj" data-offset-key="5pmje-0-0"><span data-offset-key="5pmje-0-0"><span data-text="true">I didn't feel or see any effects from the radiation and didn't expect to today. On my way out of the treatment area, I was handed my schedule on a calendar. I will receive 16 treatments to my whole breast and the lymph area and 5 treatments that will be directed to the lumpectomy region specifically. They call that last portion a "booster." That's the part of the treatment when they switch from proton to electron radiation and change my positioning. The machine also will be closer to the breast, which is hard to imagine. I honestly thought the machine might graze me when it passed over because it was so close. </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="c87ct-0-0"><div class="_1mf _1mj" data-offset-key="c87ct-0-0"><span data-offset-key="c87ct-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="f77du-0-0"><div class="_1mf _1mj" data-offset-key="f77du-0-0"><span data-offset-key="f77du-0-0"><span data-text="true">After the treatment, I visited with Dr. Desai and his nurse. First, I met with the nurse alone, and she interviewed me about the experience and asked me a few general health questions. I had some questions about what to expect, and she readily answered them. She also weighed me. I lost 4 lbs since the last time they weighed me a couple of weeks ago, which is a good thing. I've been giving myself a pass because... CANCER, but I stopped when I made the decision about the radiation vs. chemo. Since I passed the 6-week mark from the surgery, I've gotten serious about returning to healthier eating and increased execise (especially in terms of intensity). </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="b4moi-0-0"><div class="_1mf _1mj" data-offset-key="b4moi-0-0"><span data-offset-key="b4moi-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="cvmdk-0-0"><div class="_1mf _1mj" data-offset-key="cvmdk-0-0"><span data-offset-key="cvmdk-0-0"><span data-text="true">Dr. Desai talked to me about the schedule and what I can reasonably expect and when. I should be alright this week, but by next week, I'll see redness and peeling. Hopefully, no blistering or anything worse. I'll apply the calendula and other moisturizers often and liberally. They recommended Aquafor, but said Cetaphil would be fine. </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="d12ir-0-0"><div class="_1mf _1mj" data-offset-key="d12ir-0-0"><span data-offset-key="d12ir-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="62uq8-0-0"><div class="_1mf _1mj" data-offset-key="62uq8-0-0"><span data-offset-key="62uq8-0-0"><span data-text="true">Then, we talked about the state of the country and politics for a minute before I headed home. Dr. Desai is a big fan of all the stickers on my car (non-political and mostly mention places I've hiked/visited) and started talking about folks with mean-spirited political stickers and heated arguments. I offered that ideally, I'd like to see folks be able to disagree without becoming disagreeable. </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="57s4k-0-0"><div class="_1mf _1mj" data-offset-key="57s4k-0-0"><span data-offset-key="57s4k-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="frcke-0-0"><div class="_1mf _1mj" data-offset-key="frcke-0-0"><span data-offset-key="frcke-0-0"><span data-text="true">I was reminded of my former father-in-law who had very different political leanings. We were able to get along pretty well in spite of it. We even gently poked fun at each other now and then. (Separately, today is 2 years since the divorce was finalized. My answer to folks' questions regarding that today has been "Bigger fish to fry.") </span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="ac847-0-0"><div class="_1mf _1mj" data-offset-key="ac847-0-0"><span data-offset-key="ac847-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="1apue-0-0"><div class="_1mf _1mj" data-offset-key="1apue-0-0"><span data-offset-key="1apue-0-0"><span data-text="true">As always, early detection is key. Book your mammograms, folks!</span></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="emd6v-0-0"><div class="_1mf _1mj" data-offset-key="emd6v-0-0"><span data-offset-key="emd6v-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="bn4no" data-offset-key="cpsol-0-0"><div class="_1mf _1mj" data-offset-key="cpsol-0-0"><span data-offset-key="cpsol-0-0"><span data-text="true">Thanks again for all your support, kind words (and gifts!), prayers, and love. I say it every time because I mean it all the time.</span></span></div></div></div>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0tag:blogger.com,1999:blog-11855407.post-33317737295902048822021-12-10T02:52:00.000-05:002021-12-10T02:52:03.851-05:00The Breast Cancer Diaries, vol. 1, issue 13<div data-contents="true"><div class="" data-block="true" data-editor="dcc09" data-offset-key="22a9s-0-0"><div class="_1mf _1mj" data-offset-key="22a9s-0-0"><span><span data-offset-key="22a9s-0-0"><span data-text="true">Just</span></span></span><span data-offset-key="22a9s-1-0"><span data-text="true"> a reminder folks, early detection is key. Get your mammograms!</span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="19kgn-0-0"><div class="_1mf _1mj" data-offset-key="19kgn-0-0"><b><span data-offset-key="19kgn-0-0"><br data-text="true" /></span></b></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="7512l-0-0"><div class="_1mf _1mj" data-offset-key="7512l-0-0"><b><span data-offset-key="7512l-0-0"><span data-text="true">Radiation Treatment Plan and Preliminary CT</span></span></b></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="brb63-0-0"><div class="_1mf _1mj" data-offset-key="brb63-0-0"><span data-offset-key="brb63-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="maom-0-0"><div class="_1mf _1mj" data-offset-key="maom-0-0"><span data-offset-key="maom-0-0"><span data-text="true">Yesterday afternoon, I met with Dr. Desai, my radiation oncologist, to talk about risk, give consent, and map out the treatment plan. Afterward, I had a CT to help with the radiation setup and to confirm if the treatment plan would work for me. We discussed the possible side effects and what I could reasonably expect to experience. He also let me know about my positioning (face down) and why. I also received the first of 3 tiny tattoos on my left breast for radiation positioning. </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="d5fd2-0-0"><div class="_1mf _1mj" data-offset-key="d5fd2-0-0"><span data-offset-key="d5fd2-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="fphnj-0-0"><div class="_1mf _1mj" data-offset-key="fphnj-0-0"><span data-offset-key="fphnj-0-0"><span data-text="true">The risks are typical for radiation treatment, which I've covered in earlier diary entries, so I won't repeat them here. He said I should expect more acute side effects because the treatment time would be compressed. Dr. Desai said he would be following the Canadian fractionation method, which accelerates the treatment time (3 weeks instead of 6) and increases the dosage of radiation. But, I'd need a CT to determine my precise measurements and see if there were too many "hot spots" in the breast to be treated this way. </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="bdp98-0-0"><div class="_1mf _1mj" data-offset-key="bdp98-0-0"><span data-offset-key="bdp98-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="f0aeq-0-0"><div class="_1mf _1mj" data-offset-key="f0aeq-0-0"><span data-offset-key="f0aeq-0-0"><span data-text="true">There's a fair amount of scientific literature supporting the practice, especially for early-stage breast cancers with no positive lymph nodes. I have 1 positive node, but the amount of cancer in that node was 3 mm, so Dr. Desai thinks I'm a good candidate for this method of treatment. What is encouraging is that there were fewer side effects in women receiving treatment in this way than in the longer treatment schedule. I'm hoping that it holds true for me, as well (although with my sensitive skin, it might be an unrealistic expectation). What I'm most concerned about is the area under my breast and where my armpit is. Most issues occur where skin meets skin. I'll be applying the calendula ointment liberally and often after the treatment. Dr. Desai said the reason why they tell patients not to use anything prior to the treatment is that it increases the radiation exposure. </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="50ur8-0-0"><div class="_1mf _1mj" data-offset-key="50ur8-0-0"><span data-offset-key="50ur8-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="5lo2r-0-0"><div class="_1mf _1mj" data-offset-key="5lo2r-0-0"><span data-offset-key="5lo2r-0-0"><span data-text="true">For the first two-thirds of the treatment schedule, I will be lying face down with my left breast hanging through a space in the table, rather than on my back. Dr. Desai explained that this would be done to prevent my heart, lungs, and other organs from experiencing increased exposure to the proton radiation. Later in the treatment, they'll switch it to electrons, and I'll be on my side so the machine will be closer to where my scar is and where the tumor was removed. The tech explained the second positioning to me after she completed the CT scan. </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="177hb-0-0"><div class="_1mf _1mj" data-offset-key="177hb-0-0"><span data-offset-key="177hb-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="6kb4n-0-0"><div class="_1mf _1mj" data-offset-key="6kb4n-0-0"><span data-offset-key="6kb4n-0-0"><span data-text="true">Prior to the technical part of the visit, I was asked to disrobe from the waist up. The tech placed stickers on my scar and nipple. Yep, my favorite -- adhesive on tender areas. At another point, while I was being scanned, she placed another sticker on my back that was supposed to stay on until I returned on Monday. It's already gone. My bra must have rubbed it off.</span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="3j0jf-0-0"><div class="_1mf _1mj" data-offset-key="3j0jf-0-0"><span data-offset-key="3j0jf-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="cageq-0-0"><div class="_1mf _1mj" data-offset-key="cageq-0-0"><span data-offset-key="cageq-0-0"><span data-text="true">During the scan, I was positioned on the table in such a way that my neck was twisted toward the right, and resting on a cushion. My arms were over my head, with my hands gripping two vertical handles emerging from the table. The table was a bit dome shaped and only partially cushioned. It arched my back with no knee cushioning. The tech also put a round cushion under my ankles to lift my feet. No wonder Dr. Desai asked if I had any back troubles! I used to have some problems in my lower back, but it wasn't part of this discomfort. </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="et6rj-0-0"><div class="_1mf _1mj" data-offset-key="et6rj-0-0"><span data-offset-key="et6rj-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="fkuf5-0-0"><div class="_1mf _1mj" data-offset-key="fkuf5-0-0"><span data-offset-key="fkuf5-0-0"><span data-text="true">The tilted neck twisting was uncomfortable and bothered me overnight. Worse, there is a metal bar covered by a minimal cushion that lies against the ribs under the breast. I will likely end up bruised in that area from lying on top of it for 15 minutes plus, 5 days a week. I also will be returning to my home yoga practice to deal with the twisting and uncomfortable positioning. </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="6ms1p-0-0"><div class="_1mf _1mj" data-offset-key="6ms1p-0-0"><span data-offset-key="6ms1p-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="3auh1-0-0"><div class="_1mf _1mj" data-offset-key="3auh1-0-0"><span data-offset-key="3auh1-0-0"><span data-text="true">The tech said that everyone complains about the rib bar, but that they wouldn't be able to achieve a reproducible positioning if they tried to cushion it further. If everyone complains about it, why isn't it improved? Going through cancer treatment is tough enough, why can't some engineer develop a more comfortable radiation table experience?</span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="bt3qh-0-0"><div class="_1mf _1mj" data-offset-key="bt3qh-0-0"><span data-offset-key="bt3qh-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="6qkeq-0-0"><div class="_1mf _1mj" data-offset-key="6qkeq-0-0"><span data-offset-key="6qkeq-0-0"><span data-text="true">Finally, after the CT scan, the tech gave me a tiny India ink dot of a tattoo on the side of my breast, below the midpoint of my scar by an inch. It didn't hurt while she did it, but I was a little sore afterward. Two more tattoos will be coming on Monday, when the radiation techs complete the set up and give me my first treatment.</span></span></div><div class="_1mf _1mj" data-offset-key="6qkeq-0-0"><span data-offset-key="6qkeq-0-0"><span data-text="true"> </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="1qfrg-0-0"><div class="_1mf _1mj" data-offset-key="1qfrg-0-0"><span data-offset-key="1qfrg-0-0"><span data-text="true"> </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="6hlfp-0-0"><div class="_1mf _1mj" data-offset-key="6hlfp-0-0"><span data-offset-key="6hlfp-0-0"><span data-text="true">It's clear that radiation is going to suck, but it's not going to suck as much as chemo. If I can tolerate the higher dosage for the 21 visits, it will be better than drawing it out for 6 weeks. The treatment will go into January because I'll miss two Fridays due to Christmas and New Years Cancer Center closures, but I'll probably need those breaks. </span></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="4vq0l-0-0"><div class="_1mf _1mj" data-offset-key="4vq0l-0-0"><span data-offset-key="4vq0l-0-0"><br data-text="true" /></span></div></div><div class="" data-block="true" data-editor="dcc09" data-offset-key="diua-0-0"><div class="_1mf _1mj" data-offset-key="diua-0-0"><span data-offset-key="diua-0-0"><span data-text="true">Thanks again for all your support, kind words and thoughts, prayers, and love. It means a great deal when folks take the time to comment.</span></span></div></div></div><p><span data-offset-key="a08qb-0-0"><span data-text="true"></span></span></p>Deb Schiffhttp://www.blogger.com/profile/00930921557637227921noreply@blogger.com0